Discover and read the best of Twitter Threads about #Patient

Most recents (24)

Exactly 7 years ago, I spent #StrokeAwarenessDay undergoing emergency #thrombectomy for #basilar artery occlusion. #BAO

Today, I'm still in awe and celebrating how #modern #medicine saved me from locked-in syndrome and enabled me to live a normal life, against all odds.

1/ 🧵
2/ So far, I have avoided sharing this information as part of my professional life, fearing it would somehow disqualify me as a credible clinician-scientist. Finally, I realize that the experience only strengthened my resolve to give future patients the second chance I was given.
3/ What happened in brief:

I was a healthy, 25yo medical student, all excited to have finished the first 10K run of my life not even 5 hours before my family reacted #FAST and called 911.
Read 20 tweets
Thread 🧵: Reflections of a Parent/Caregiver After Six Years Implementation of CDC Guidelines (warning long but I am very interested in feedback)

Since babies, my kids, have intimately known #pain. At one time their #pain was intermittent & #acute. Sadly, they now struggle 1/
#chronicpain & are young adults. Our kids 1st 13/16 years of life, our family had a #safetynet, their #pediatrician. He was highly intelligent, compassionate, he challenged the system & in the most authentic sense #partnered with families. #Pain was not a major concern when 2/
the kids were under his care. The nature of their disease often brought us to the ER & hospitalizations. The hospitalizations resulted due to inability to manage #pain, dehydration, & other issues caused by a flare in their #disease. My husband & I attempted to minimize the 3/
Read 45 tweets
Just a friendly reminder @moderna_tx told the @SECGov that the @US_FDA defines #mRNA as gene therapy. And called it an unprecedented new category of #medicines tho they really want that #vaccine classification anyways for liability protections & fear the public wouldn’t take it.
They know the #COVID19 #vaccine isn’t a vaccine but human #gene #therapy.
The @US_FDA #fda reaffirmed their definition of modified viral #nucleic acid that alters #CELL Jan 30th 2020 #COVID ImageImageImageImage
Read 16 tweets
@ibdgirl76 What I really struggle w & it’s not just re the lack of care for those in pain & stigma they face, overall the system & many (not all) inds wi not set up to address issuers #patients & #caregivers have re care. There is literally no place to go. Yes, there are 1/
@ibdgirl76 #patient representatives but they are there essentially to watch out for health facility. File a concern & most times you are not part of the process, nor do you know the outcome. There literally is a lack of protection for #patients. Maybe some clinics or healthcare 2/
@ibdgirl76 facilities better than others but often #patients are left w no #voice. I understand, but in NO way condone aggression, physical harm, threats or name calling to #medicalpersonnel. They deserve a safe place to work, yet I understand the rise of these incidences 3/
Read 6 tweets
Making money from #STOCKMARKET is a most BORING REPITITVE JOB..
One just need to keep it simple, Boring & need to repeat it every day, week, month, year.

And in this #Thread will try to explain how to do it in such way..

You can Start it with 3lk-30lk-3cr..
It's up to u.. 🤗🙏
Divide your Capital in 3 parts..
1-1-1 lakhs or 10-10-10 lakhs or 1-1-1 crore respectively..

Let's name them

Part 1 : Fix Income Source
Part 2 : Make money with market
Part 3 : Wealth creation by Compounding

Below is the description of all 3 parts.. 👇
Part 1 : FIX INCOME SOURCE

We all know that stock market is uncertain & beyond anyone's control. So if we enter in it as a Full Time Job then 1st thing we must do is to fix our earnings for our family's daily livelihood.
So for that we need to make our Fix Income Source from it.
Read 10 tweets
I wonder whose bright idea it was that if a #vagina managed penetrative #sexual activity, it must be pliable to #insertion of the speculum 😒. Whoever that was definitely disregarded the physiology of sexual #arousal & vaginal changes in the moment that facilitate #penetration.
@vagina_museum shows that everyone's apparatus is different then how can #Gynecology stick to a one size fits all model? #publichealth should strive to develop minimally invasive self administered #screening tests & #gynaecologist must #research on making procedures comfortable.
researchgate.net/publication/22…
This shows that topical #anesthetic agents reduce #pain and #discomfort during speculum manipulation. Why can't the usage of topical #anesthesia be a #standard process in #Gynecology? Why such blatant disregard for #patient #comfort? 😠 #misogyny much?
Read 5 tweets
PHASE 1 LAUNCH! New study reveals yawning gap in medical care for energy-impaired
thisiswellless.com

#pwME #NEISvoid #FBLC #LongCovidWork #LongCovidCosts #TreatLongCovid #CountLongCovid #miilionsmissing #HealthEquity #patientled #medtwitter #wellless

A THREAD > Image shows 'energy' used for patient activities on a graph
Long-Covid visual report quantifies money, time, work and energy spent on the battle to get medical care, and introduces new language of the “well-less” to improve patient awareness and support.
@long_covid @longcovidwork @actionforme @chronicinclude #EDS #PoTS #postviral Image shows a new healthcare spectrum from Well[ness] throug
I tracked and analysed my own health interactions from 2020 across nine different self-data sources, including @BupaUK @Bupa , @LloydsBank , @timspector (Zoe Covid Symptom Tracking App(, email, SMS, mobile and calendar data #Datavisualization #selfanalytics #dataviz
Read 25 tweets
#WeekendLecture
#HistoryofEVT

It’s no secret that #EVT for AIS has been a complete game changer for the field resulting in dramatic reduction in death & disability

Join us to explore the #history of EVT in collaboration with @SVINJournal, to celebrate the inaugural issue Image
Many thanks to @Mahmoudneuro, #RaulNogueira and @DiogoHaussen whose review entitled:
👉“Tx Advancements in the Endovascular Management of Stroke” celebrates the advances in #ETV

🆓 #openaccess

ahajournals.org/doi/full/10.11…
1st #Fun fact: Interventional treatment of AIS dates all the way back to 1950s‼️
Sussman & Fitch reported 3 cases of IA infusion of fibrinolytics
Didn’t work 😫. Probably because they were performed in a non-hyperacute fashion
But this laid the foundation for years of refinement Image
Read 21 tweets
1/ Excited to share how T cell therapies kill #leukemia!! multi-omics + new #computational #singlecell tools for longitudinal analysis 👉unexpected answer! cell.com/cell-reports/f…

*👏* @elhamazizi! 🙏 @dpeer Cathy Wu @MDAndersonNews @CPRITTexas @ColumbiaBME @sloan_kettering
2/ We studied donor lymphocyte infusion (DLI) - an #Immunotherapy for relapsed #leukemia after #BMT & the #og of #celltherapy. Previously, we showed DLI reversed T cell exhaustion - but didn't know why/how/which T cells were responsible...
ashpublications.org/blood/article/…
3/ To address these ?'s, we modeled intraleukemic T cell dynamics by integrating longitudinal, multimodal data from ~100K T cells (!) during response (R) or resistance (NR: nonresponder) to DLI.
Read 18 tweets
Dear @OptumRx & @SanfordHealth you are NOT his #physician. You know nothing of his #health hx. Two years ago #Sanford #Bismarck #pain clinic pulled all #patients off #opioid #pain medications. This was not #patientcentered care, but care deemed appropriate BY administrators 1
Now @OptumRx & @SanfordHealth #insurance sending out letters re #opioid #pain #medications. My son had to move from a #Sanford clinic to another clinic due to #abandonment. Yep, abandonment. Plain & simple what you did was harmful & not based on #patients needs. You need 2
to look at research, that shows the harms of what u r doing. @SanfordHealth administration in Bismarck informed me 2 years ago when all #patients pulled off #opioids that it was the ‘national standard’ of care established by @CDCInjury @CDCDirector. The guidelines are NOT 3/
Read 9 tweets
Um absolutely adore this thread! I must read for #NEISvoid #CPP #RareDisease. My kids experienced much of what is mentioned in thread. 1st they have a rare disease, 2nd had a rare medical procedure to try to address symptoms, it caused complications. My kids now have T3 1/
the ‘care’ they receive has often been #traumatic as they don’t fit nicely into a box 📦. It’s because of their experiences (& my husbands) that I advocate. As young adults they still have to interact w the #healthcare industry but they are distrustful ( & rightly so). So many 2/
Physicians do not understand #medicaltrauma & their roles in it. I know it’s hard to be a #physician today, I know it’s hard to be in #healthcare but to dismiss, shame & blame a #patient is harmful not only psychologically but physically. 3/
Read 4 tweets
I know that there are #patient advocates that take issue with @BethDarnall work but I find it critical. I know many individuals in my community that have wanted to decrease their opioids or get off all together for various reasons. Listening to their stories are frightening. 1/
What I don’t condone, is #physicians & #antiopioid proponents utilizing work done such as @BethDarnall or other psychologist that work in the area of #pain to be dismissive of those with #acute or #chronicpain. Sadly, this occurs all too often and has caused a distrust by 2/
those with #acute or #chronic pain. I believe that we need a wide variety of options. I believe that care should be individualized. That this is often not occurring is NOT the fault of those working to provide options. Those in the field that dismiss patients by saying #pain 3/
Read 5 tweets
@medcitynews reports that even with the #remote #patient #monitoring (#RPM) codes, reimbursement for #digitalhealth remains a challenge. The article is linked below, but for a deeper dive, read the thread 1/
medcitynews.com/2021/09/remote…
We've knows about this for a long time @omadahealth--really since our founding. We got an #NPI. We billed #claims. We helped get the first ever #CPT code (0488T) for fully virtual care. But there's more to do. 2/
(You can learn about contracting as a #virtualfirst #provider @_DiMeSociety workshop on that very topic this week! Register here:us02web.zoom.us/webinar/regist… ) 3/
Read 12 tweets
Sometimes I hear people dismiss the possible role of a persistent #pathogen (such as a herpesvirus) in the development of a chronic #disease b/c the same pathogen can be found in healthy people
2/ I see it differently 👉 While the presence/absence of a persistent pathogen in a patient with chronic symptoms matters, the real question is: what is the pathogen doing? Is its ACTIVITY different in patients vs. healthy people?
3/ More specifically, in the #patient with chronic symptoms is the pathogen expressing different #proteins/metabolites? And are these proteins/metabolites increasingly interfering with human gene expression, metabolism, and the immune response?
Read 5 tweets
There seemed to be some confusion about (the use of) words in @CommonsHealth Committee yesterday morning, so here's a [Thread] to try to clarify.

First "#commercial". It is of course the case that many parts of the #NHS use commercial providers, e.g. of software, whether that...
...is @Microsoft365 for word processing, spreadsheets & e-mail; or IT systems to handle patients' records in hospitals (e.g. @CernerUK) & General Practice (e.g. @TPP_SystmOne, @EMISHealth, @CegedimHS); or software to drive complicated equipment like #MRIscanners, etc.

This is...
..entirely normal use of #commercial software & software services, for which the #NHS body is the #DataController. Apart from when that software goes wrong, I don't believe many would have concerns about this.

Then there are #commercial providers of #NHS services, about which...
Read 13 tweets
I am perplexed how #RogerChou can not only sit on the #CDCOWG but is a lead author. He recused himself at the #CDC meeting due to #COIs bc of his work as ‘expert witness’ in Purdue litigation but is lead author 🤷🏻‍♀️ @CDCDirector @CDCInjury could you explain how this is ethical? 1/
Listening to the #CDCOWG from perspective of #caregiver & advocate was disheartening. For me @CDCDirector assurances that #patients voices were heard was meaningless. She may say that we’ve been heard but then how are so many feeling as we haven’t been? Why are the #legislation 2
of these guidelines continuing? Why are those who have benefitted from #opioid #pain medications being removed, shamed & stigmatized? Why is care not individualized? It’s very clear our #voices have not been heard. There is nothing that was said that eased my concern for 3/
Read 19 tweets
Thread: Thoughts on #valuebased & #patientcenteredcare

Within #healthcare & #advocacy there seems to be a great deal of discussion on both #valuebased care & #PCC. #Healthcare costs have skyrocketed’ & thus a need to #reduce. I am not an #economist but as a #caregiver I 1/
definitely have seen ‘waste’. From my POV costs will continue to skyrocket even if #valuebased care is implemented. One reason (again not an economist) is the vulture ‘istic’ aspect of industries profiting from our system. The other reason is that our system is not centered 2/
around the #patient or patients needs. Thus, if the value based metric is reduced hospital admissions, this, on the face seems straight forth, however if the patients needs are not taken into account but only focused on established metric, costs could (& I will argue often r) 3/
Read 14 tweets
In a meeting I watched today, microglia priming was mentioned in #LongCovid and #ME/CFS. It’s important to clarify what “microglia priming” means. Microglial priming does not mean that after a trigger has “cleared” microglia remain perpetually activated
2/ Instead, microglia priming goes like this 👉 When microglia or other glial cells detect #infection, injury, or inflammatory mediators, they enter a state of activation in which they change morphology and release their own neuroexcitatory inflammatory mediators
3/ Then, after activating, they retain a “primed” functional state which causes an even more robust response to *subsequent* infectious/immune/#inflammatory challenges. And as cells, microglia live long lives (they are not replaced as often as many other cell types)
Read 13 tweets
#PatientCentric care, #PtExperience #Tokenism, #HoldingSpace #WeAreBetterTogether ⚠️ long thread.
Recently I attended a meeting of an organization whose focus is in improving #healthcare. This is a highly respected organization. One ☝🏼 of their founding principles is the 1/
engagement of various #stakeholders including #patients and #caregivers. This was not the 1st meeting of this org. I have attended. I walked away from this particular meeting sad, frustrated & a bit angry. The topic was on #patientcentric care. A topic that is near & dear 2/
to me. The caliber of individuals involved was spectacular; academics, researchers, consultants. As I scrolled through participants as well as listened to the conversation and watched the comments come across the screen I was enthralled with the dialogue however 3/
Read 21 tweets
The field of #psychology has MANY problems. SO many levels of wrong:

1-clinicians designing torture
2-a strategy to exploit the lack of ethics by APA leadership to gain scope of practice
3-monetizing harm
4-validating minority distrust of #mentalhealth

nytimes.com/2015/05/01/us/…
The details are damning. It was clearly about expanding turf/scope of practice with a “deal with the devil” to bypass civilian regulations & go after DoD💰💰💰

There was not any commitment to human rights but manipulating words to craft unethical policy

journalofethics.ama-assn.org/article/profes…
There have been reputation repair attempts, to distance self from torture, however professional societies tend to fixate on gaining or protecting turf & scope of practice. They use patients for “stories” but in reality show little care about patients.

apa.org/news/press/op-…
Read 11 tweets
#MGL #MahanagarGas
CMP ₹1219

Target: 1300/1400/1500/higher
SL: No SL for #Investment. For ST keep 900

Buy on dips
Best Buy range: 1000-1100

Only for #patient #longterm #investor

Please do your due diligence

#StockMarket #NSE #BSE #gas #Investing #Invest
#MGL

🔗Expanding CGD network and new business areas for PNG CNG
🔗Consistent promoter holding 32.5%. GoM holds 10%
🔗Distributor in prominent city of Mumbai and surrounding areas
🔗Improving business prospects post COVID
#MGL

🔗Reasonable valuation and consistent dividend payer 3% yield
🔗Experienced Management
🔗Debt free
🔗Increasing cash flows
🔗Positive guidance of revenue and margin expansion by Management
🔗Low crude oil price is positive
Read 6 tweets
@timmins316 #Occupy: Thank you.
Follow more from our Research in this thread:
@timmins316 #Occupy: March 23 2020:

Was #COVID19 released by the US Army team during the Wuhan Military World Games in 17-27 October 2019, which team is said to have eaten at the fish market in Wuhan & stayed in a hotel close to that market ?

rabblerouser.blog/2020/03/23/pat… via @NeoJohnBrown
@timmins316 @NeoJohnBrown #Occupy: Jan. 23 2020 #China started a large #Lockdown around #Wuhan, after 18 affirmed #COVID19-deaths and several hundreds of infected patients.
Later, searching for "#Patient #Zero", they found the earliest infection in November 17 2019, in Wuhan.
👉straitstimes.com/asia/east-asia…
Read 20 tweets
Did you miss the talk "Panorama of #lupus in 2020?" I did yesterday for @LupusEurope?

No worries, I'm starting a #tweeter #SLE #thread so that you can pick up the slides you're interested in 👍

Check below for the SLIDES ⬇️
Slide #1
Current classification of #Lupus
Slide #2
What is #lupus #SLE
#Lupusawareness
Read 18 tweets

Related hashtags

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3.00/month or $30.00/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!