🧵For the past couple of weeks, my child, severely disabled by Long Covid since a Delta wave infection in her teens has been battling Covid, again. She called NHS 111 for help. NHS 111 said she was not eligible for Paxlovid and was too young to have a serious Covid infection...
... The NHS 111 person proceeded to tell her that Covid "is now mild", that there is no such thing as Long Covid, and that even if there is such a thing as Long Covid, people don't get it if they are vaccinated, then went off to expound personal pet theories about Covid and LC.
She would've had a more informative conversation if instead of NHS 111 she'd called a speaking clock.
Meanwhile: 1. A new Covid wave is coming, with an outbreak in East Asia. Feeling like your throat is full of broken glass, nosebleeds are some of this variant's early symptoms.
2. The NHS provides no antivirals (minimal eligibility). 3. The NHS has no vaccination programme (minimal eligibility). 4. NHS staff work without PPE and can come into work with Covid. 5. NHS hospitals no longer routinely test for Covid, hospital infections aren't monitored.
6. Since NHS Covid sick leave ended in July 2023, NHS trusts have been sacking more workers with Long Covid. 7. It's exam season, and students are expected to sit exams 5 days after testing positive. They might still be positive, still ill and very contagious while sitting exams.
8. Most schools have no Covid mitigations in place. Parents are pushed to send sick children in. 9. Children and young people do develop Long Covid. At March 2024, there were an estimated 112,000 children in England and Scotland alone with LC. That's when the UK stopped counting.
The "seasonal virus" is becoming a year-round occurrence. We are heading into another summer that could be spent upgrading school environments (installing CO2 monitors and HEPA filters ahead of winter months when windows are closed) to reduce the spread of airborne infections.
We are heading into another summer after Covid Inquiry @covidinquiryuk modules that heard evidence about the lack of pandemic preparedness, the lack of adequate PPE in hospitals, that could be spent learning the inquiry's lessons, so we can have "lessons learned" for next time.
@covidinquiryuk This "next time" is now. Like last time, we are unprepared. Like last time, there is no infection control. Like last time, NHS 111 is woefully uninformed about Covid and about its post-viral sequelae, Long Covid. Five+ years on, there is no LC treatment, 1 in 4 clinics have shut.
@covidinquiryuk Instead of getting ready to deal with another wave, NHS trusts will be figuring out which workers to lay off to meet staff funding cuts (~50% in places) made to meet the Treasury's targets. Schools will be working out how to get more sick children in to meet presenteeism targets.
@covidinquiryuk MPs will be voting on cutting support for disabled people, including those disabled by post-viral illness, injuries, or conditions that become disabilities while they're stuck on waiting lists. And on how not to provide treatment or care for patients with no prospect of recovery.
@covidinquiryuk Then there'll be a recess when we get a break from ministers holding forth about how forcing sick and disabled people into work and sick children into school is an "opportunity" and complaining why UK productivity is not "back to pre-pandemic level". Lack of public health maybe?
@covidinquiryuk I would welcome any ideas for breaking this vicious cycle. A nation's economic health, educational attainment, productivity, all start with public health. They don't start with pushing healthy people into illness and disability, or ill and disabled people into poverty. Any ideas?
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I am rarely at a loss. But I am at a loss. When I started advocating for workplace rights for people with #LongCovid it was in response to personal experience and to horrific stories of people losing jobs to what is, ultimately, disability discrimination. 1/1
Exhausted people, many made ill by workplace infection, battling cognitive problems, unable to stand up to bad bosses or fight tribunals with no funds, while the employers had lawyers, money, time and energy to wear them down. The response needed was to stop these job losses. 2/2
What was needed was to get people the flexibility they needed to work around symptoms and medical appointments, safe adapted workplaces, recognition of Long Covid as a disability. To get union reps to support workers in meetings where they are outgunned by management and HR. 3/3
🧵OK, folks, while we wait for #LongCovid clinical experts to challenge Friday's cunning stunt in the press, here's what you can do (pls read thread):
Complain to the Guardian or their regulator Impress
That paper should know bettershorturl.at/yLRTWor impressorg.com/standards/comp…
For Daily Mail: corrections@dailymail.co.uk.
For Telegraph:
Or don’t waste time and go straight to their regulator IPSO under the clause 1 Accuracy (Discrimination clause is *deliberately designed to fail* - don't bother)...shorturl.at/vHUV4 ipso.co.uk/complain/Compl…
Telegraphs headline "There is no such thing as long Covid, say health officials" is inaccurate - nobody even in the press release they regurgitated said "there is no such thing as Long Covid". This press release:
No peer-reviewd study, not even a preprintscimex.org/newsfeed/exper…
No economic sense in ending #SelfIsolation. 1 in 4 bosses say #LongCovid the main cause of sickness absence. Of UK population almost 2% are #pwLC (40% for 1-2 years). You can't fill 500,000 posts when tens of thousands a month are losing jobs to illness @longcovidwork@long_covid
At least two in three #pwLC are frontline workers (ONS, TUC, @long_covid data). @longcovidwork we hear of more and more losing jobs. There are 100,000+ vacancies in the NHS alone, doctors and nurses. Can the #NHS afford to lose more to infection and disability? @sajidjavid
Can UK schools afford to have more teachers becoming ill with #Covid each week and keep getting reinfected? Does @nadhimzahawi expect them to work while ill if #SelfIsolation ends? And how does losing more teachers to #LongCovid help the UK economy?