I had joined Twitter (pre X) to talk about Covid-linked chronic illness and advocate for employment rights, so people losing health wouldn't lose jobs. But I end up talking a lot about welfare because people do lose jobs, employers discriminate, and disability injustice is vast.
Covid is a special case study — disability discrimination began the instant the decision was made that some lives were expendable, ostensibly to protect others' "freedoms" (to get infected and disabled too, as it mostly turned out). But it's not unique, and solidarity is vital.
Six years on, many people don't know why their health is gone. Not just why they quickly get exhausted or can't remember what they were saying minutes ago. But why they've had a heart attack. Why they can't walk. Why they have waves of pain, sight, hearing, neurological problems.
Why they have gastric problems, pregnancies that go wrong, early menopause or aggressive diseases associated with chronic inflammation. Why their parents get early onset dementia. Why their children are ill all the time and struggle at school. Society has *chosen* not to answer.
But the upshot is more disability adding to existing disabilities, compounded by unequal health access, untreated conditions on waiting lists turning into disabilities, and people becoming disabled with age as their state pension age retreats. Welfare becomes a lifeline for many.
And so there isn't some unique, isolated case. People becoming newly disabled, for whatever reason, often don't know their rights, are discovering that employers don't accommodate them but dump them, and the safety net they'd assumed was there is not or it's a hostile nightmare.
It doesn't matter when or how you get here, but this is where you arrive: the disability space, full of toxic — and, as needs rise, rapidly toxifying — political narratives, discrimination and injustice. So we need to talk about welfare. Not because we want to — we are forced to.
We are forced, however ill or exhausted, to swim constantly against this toxic tide of lies and ignorance. Against lobbyists braying for and politicians delivering cuts and cruelty, the media manufacturing consent by actively disinforming or by passively parroting disinformation.
No matter which disability it is: lobby groups, media and politicians pick on them in turn. No matter what form of welfare: X trolls, TV and tabloids will rage-bait about it in turn.
Wouldn't it be nice not to talk about welfare — to talk about rights, workplace access instead?
Post-2020, almost 1 in 4 people in the UK now lives with some disability. It doesn't matter if they work or not, or what age they are, they'll get pulled into this cuts-motivated toxic soup.
It's as if we are not equal citizens and don't vote. But we are. And we do. And we will.
We can choose. Not to consume media that attacks us. Not to vote for MPs who don't represent us. Not to trust charities that get co-opted into injustice.
We'll win equality, compassion, fairness with or without them. Now back to welfare — though we didn't start that conversation.
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🧵For the past couple of weeks, my child, severely disabled by Long Covid since a Delta wave infection in her teens has been battling Covid, again. She called NHS 111 for help. NHS 111 said she was not eligible for Paxlovid and was too young to have a serious Covid infection...
... The NHS 111 person proceeded to tell her that Covid "is now mild", that there is no such thing as Long Covid, and that even if there is such a thing as Long Covid, people don't get it if they are vaccinated, then went off to expound personal pet theories about Covid and LC.
She would've had a more informative conversation if instead of NHS 111 she'd called a speaking clock.
Meanwhile: 1. A new Covid wave is coming, with an outbreak in East Asia. Feeling like your throat is full of broken glass, nosebleeds are some of this variant's early symptoms.
I am rarely at a loss. But I am at a loss. When I started advocating for workplace rights for people with #LongCovid it was in response to personal experience and to horrific stories of people losing jobs to what is, ultimately, disability discrimination. 1/1
Exhausted people, many made ill by workplace infection, battling cognitive problems, unable to stand up to bad bosses or fight tribunals with no funds, while the employers had lawyers, money, time and energy to wear them down. The response needed was to stop these job losses. 2/2
What was needed was to get people the flexibility they needed to work around symptoms and medical appointments, safe adapted workplaces, recognition of Long Covid as a disability. To get union reps to support workers in meetings where they are outgunned by management and HR. 3/3
🧵OK, folks, while we wait for #LongCovid clinical experts to challenge Friday's cunning stunt in the press, here's what you can do (pls read thread):
Complain to the Guardian or their regulator Impress
That paper should know bettershorturl.at/yLRTWor impressorg.com/standards/comp…
For Daily Mail: corrections@dailymail.co.uk.
For Telegraph:
Or don’t waste time and go straight to their regulator IPSO under the clause 1 Accuracy (Discrimination clause is *deliberately designed to fail* - don't bother)...shorturl.at/vHUV4 ipso.co.uk/complain/Compl…
Telegraphs headline "There is no such thing as long Covid, say health officials" is inaccurate - nobody even in the press release they regurgitated said "there is no such thing as Long Covid". This press release:
No peer-reviewd study, not even a preprintscimex.org/newsfeed/exper…
No economic sense in ending #SelfIsolation. 1 in 4 bosses say #LongCovid the main cause of sickness absence. Of UK population almost 2% are #pwLC (40% for 1-2 years). You can't fill 500,000 posts when tens of thousands a month are losing jobs to illness @longcovidwork@long_covid
At least two in three #pwLC are frontline workers (ONS, TUC, @long_covid data). @longcovidwork we hear of more and more losing jobs. There are 100,000+ vacancies in the NHS alone, doctors and nurses. Can the #NHS afford to lose more to infection and disability? @sajidjavid
Can UK schools afford to have more teachers becoming ill with #Covid each week and keep getting reinfected? Does @nadhimzahawi expect them to work while ill if #SelfIsolation ends? And how does losing more teachers to #LongCovid help the UK economy?