Thought for the evening:

It’s not OK to dismiss #MCAS because you don’t know much about it.

#MedTwitter

🧵 It’s not OK to dismiss #POTS because you don’t know much about it.

A few thoughts on the #LongCOVID expert consensus paper. 🧵

First up, a declaration of interest: I had the privilege of being a member of the expert consensus panel who contributed to the paper.

papers.ssrn.com/sol3/papers.cf… “It is important to recognize that Long COVID is an umbrella term encompassing several different disorders including e.g. dysautonomia, neuroinflammation, endothelial dysfunction, hypercoagulation, impaired fibrinolysis, mast cell disorders, and mitochondrial dysfunction.

Helpful article on vitamin B12 deficiency and replacement.



Key points (direct quotes from the article)…🧵 bmj.com/content/383/bm…
The clinical picture is the most important factor in assessing the significance of results of blood tests assessing cobalamin (B12) status because there is no “gold standard” test to define deficiency.

I gave a talk to our local #LongCovid Professional Network today on "Long COVID: What's going on in blood vessels?" Focussed mainly on what we know about clotting in Long COVID. Here are a few of the papers that I mentioned. #TeamClots🧵 Microclots: There are now quite a number of papers on this - this one from 2021 by @resiapretorius @dbkell and others demonstrated the presence of microclots in #LongCovid.
cardiab.biomedcentral.com/articles/10.11…

A couple of weeks ago, we spotted some water dripping through the kitchen ceiling. We did the natural thing and phoned a plumber to check for leaks in the bathroom up above. He couldn’t find anything, so he went away. (1/) Last night, the leak got worse. With a bit of exploring, my wife found where the water was coming from. I cut off the water supply to the leak and booked a plumber to come tomorrow morning. I started to think… (2/)

I’ve just finished reading the “Covid Vaccine Adverse Reaction Survival Guide” by @CarolinePover, available through the @ukcvfamily website: ukcvfamily.org/cvars-guide

It’s time for a book review! (1/21) Caroline starts with a brief outline of her story of suffering a severe reaction to the Covid vaccine. I’d love to have heard more of her story, but that isn’t the main purpose of the book. (2/21)

I’ve just finished reading “Just Wobbling Along: My First Five Years with Parkinson’s Disease” by @HMellorMac and can highly recommend it for all, especially healthcare professionals. #MedTwitter

Buckle up, cos it’s time for a book review! (1/11)

amazon.co.uk/JUST-WOBBLING-… I’m going to reflect on the key themes that struck me on reading Helga’s account of her first 5 years with #Parkinsons. While not wishing to distract from the Parkinson’s context, I suspect some themes will strike a chord with people who live with other chronic conditions. (2/11)

Privileged to have co-authored this paper with Dr Harriet Carroll @angryhacademic and Dr Ewen Millar, reporting the cases of two people with chronic neurological reactions after receiving a #COVID19 #vaccine. . Here are the main messages: (1/8)
@RS_COVID19researchsquare.com/article/rs-142… Vaccines have saved lives, and the benefits of vaccination have been well established. However, no intervention is risk-free, and some people have suffered #VaccineInjuries. We report two cases of #VitaminB12 deficiency post-vaccination, with severe neurological symptoms. (2/8)

I’ve recently joined @DoctorsWithME. I’m not an ME specialist, so why did I join? Some of my patients have #MEcfs, and I want to understand enough about their condition to be able to give them the best care I can. I’ve a lot to learn, but here’s a running commentary: (1/7) The @NICEComms guideline on ME/CFS is very helpful. Any healthcare professional who is involved in the care of #pwME would do well to read it. nice.org.uk/guidance/ng206 (2/7)