The air smelled of rust and ozone.

As the Longcovid Barbarian pushed open the iron hatch, a hiss of steam curled around him, swirling into the pale green fog that blanketed the valley. Gears turned in the distance, slow and broken, their teeth grinding like old bones.

Before him, Longcovid Land stretched wide and strange: jagged towers stitched from scavenged brass and darkstone, their spires belching smoke into a sky lit by twin moons—one whole, one shattered into drifting shards. Webs of copper wire connected the towers like veins, carrying pulses of blue witch‑light that sparked and fizzled with every surge.

His axe hung across his back, rune‑etched steel fused with pipes and a faintly humming power core. Along his gauntlets, glyphs glowed and dimmed in rhythm with his heartbeat—old spells etched by someone long forgotten.

A broken sign swung in the wind, its letters clanging softly:
WELCOME TO LONGCOVID LAND
and beneath, half‑burned into the metal:
ENTER AT YOUR OWN PERIL.

The Barbarian said nothing. His breath fogged in the chill air as he scanned the wasteland ahead—derelict rail lines twisted like serpents, shattered airships grounded in the muck, and in the distance, the faint thrum of something alive within the machine.
This was not his first time here.
But it was the first time he’d returned since the Great Burning. And that, after all, was the reason for all of this. Longcovid Land had once been whole. Bright, teeming with life, alive with the hum of machines and the pulse of magic in every pipe and circuit. Skyships threaded between towers trailing banners of living light. Waterways carried endless trade, and scholars sang spells from rooftops while children danced in the mist of fountains. - Then came the Concordance Strain.

Born in secret laboratories deep within what is now called the High Cities, the strain was meant to merge man and machine—to create soldiers who could heal as fast as they were wounded. But the virus learned faster than its makers imagined. It devoured minds, twisted flesh into living metal, turned soldiers into ravenous engines of destruction.

When the virus escaped containment, panic spread like wildfire. The High Cities tried to cordon off the infection, but their greed had already seeded disaster. Other regions, fearing contamination, struck preemptively with spells and sky‑cannon fire. Entire districts burned. Towers fell. The skies turned black with smoke and ash.
This was the Great Burning.

When the flames finally died, the old realm was shattered into four nations: To the north, along the cold lakes and canals of the North Sea, scattered fleets and mist‑bound towns survived. To the east, the poisoned badlands became the Wastes, a land of scavenger clans and whispering ruins. To the south, pointed peaks and ash‑winds forged the Jagged Lands, filled with mountain tribes who trust only their own. And to the west, behind walls of iron and steel, the High Cities endured—wealthy, ruthless, and ever hungry for more.
Each corner claimed to be the true heart of Longcovid Land. Each raised its own banners, birthed its own tribes, and nursed its own grudges.

Nowhere are scientists that study #LongCovid saying “golly, where’s the papers” - that’s only something Hanna Davis does, who’s is a non-doctor, non-scientist and is a lead at Patient led, the advocacy group this article is about.

Advocating for more advocacy, is absurd. To be completely honest, I’ve worried about Patient Led’s ability keep track of research based solely on the amount of times they’ve tried to crowd source “papers” on social media platforms.

I’ve often wondered if it was just engagement farming. - because the goal is…..

I'll take you on a brief tour of @inkblue01's recent disinformation and lies. It's important, because all she has done, is harm.

Lets start.... 1) On July 14th, @inkblue01 made a false statement.

She claims that members of LCAP are harassing @thephysicsgirl because a man who supports people with #longCovid made an honest appeal for help.

This is FALSE, as neither the man in the tweet nor members of LCAP are on the record for calling Dianna Cowern a "grifter". Sue provides no proof, and is spreading disinformation.

@inkblue01 is lying, again. 2)

I've tried to ignore this person. However their targeted harassment of other patients has moved me to illustrate something that might not be that obvious.

Here is @themediawitch who has stalked me and other patients for months. Despite her obsessive and cruel behavior this person has DARVO'd her behavior and her friends with constant lies she works in conjunction with @inkblue01. Together they claim others are the harassers and abusers and stalkers.

This is provably untrue, and I'm going to show you RIGHT NOW what might not be obvious in the timeline.

I used twitters feature to word search under a profile. I searched for only my handle and found that she has engaged in 465 tweets about me or in threads while blocked. I have mentioned her 6 times.


But the list goes on...

I'm tired of the lies. Its harmed people, advocacy and me personally.

This is actually why co-founder of @LCMoonShot @MamaSitaa__ was temporarily suspended. The full Doc will be released and there is a lot.

But this portion begins here, about a month ago. After @drseanmullen's post, @MamaSitaa__ goes on a rampage unable to cope with someone saying something nice about me. She invades his thread.

THE ISOLATION CHAMBER

Day 3

The walls of the bubble-Room™ have begun to close in on me.

My daily activities of maintenance, the hum of CR-1 and my communications with other survivors in #LongCOvid-Land with the communication device are the only thing keeping me sane. Becasue of the PSP-2 status, there is no interaction with other members of the crew. However, my first mate has taken upon herself to bring rations near the hall sector entrance to keep up my nutrition up. I do not see her, 'casue all crew must clear when the doors are unsealed.

THE ISOLATION CHAMBER

Day 1

I am currently restricted to the bubble room.

One of my comrades (the young one) was compelled to join in the festivities celebrating the new year. A pleasure that has become alien to me because of the Invisible Air-Tigers™ effects on my body. His absences over the last 3 days was felt, but not as much as the anxiety of his return. It's very likely that he carries the bane of my existence in his own breath.

For now he seems clean but Air-Tiger levels are high in #LongCovid-Land. I take no chances.

I was happy. I had an amazing life. I worked hard to build it from nothing.

Nearly 4 years later, It's all in the mist. Now I'm just circle on some strangers phone where I'm reminded that the world doesn't need me or care.
#LongCovid If you're wondering why I would post a pic of myself (not too long before I got sick) I think its obvious. - I'm grieving. I break down every day. Alone. In my own mind.

I’ve been with the UW LC clinic since early 2021.

My primary care doc is also a LC doc with the clinic. Depending on the reason, we set up appointments through each clinic.

I can tell you a few things :

https://twitter.com/cjmaddison/status/1729719698231570808

First, the LC Clinics are more restricted than primary care. My primary care doc cannot address “primary care things” if we go through the LC clinic. Only things that are related to LC. And that’s a problem, because ALL my issues are because of LC.

I was healthy before.

Should I just start talking about movies in the #LongCovid Lounge?

Because clearly, letting people speak freely and share, and discuss concerns has resulted in an uproar and conflict some are unable to manage. Mostly those who don’t participate.

That where we should to be? It seems that letting people come together and speak free of restrictions born from taboos has been a detriment to the apparently shallow bonds of this community. It’s led to lots of stress for people who just “can’t handle” anything but filtered environments.

The Magical Disappearing #LongCovid.

A quick 🧵 Just the other day BigMedia™ said #LongCovid affected, 7.5 % of the population - according to the CDC

The US has a population of 331.9 million

7.5% is a total of 24 million people.

I'm going to make a dark prediction for myself.

I will be getting Covid again within three months. There is no way to shield anymore where I am in life. My partner works in healthcare where there is no masking. All of our acquaintances are now living in "Post Pandemic Style" This may seem odd to anyone reading this who has so far remained unscathed (at the surface). You may think, "Who gives a shit, covid is over". Or, "It's just a cold, stop whining". But my experience with this virus has been nothing short of biblically devastating.

There are at least 20 people on my FB that I knew from early days with #LongCovid who now are beyond fully recovered. I see pics of them traveling drinking, going to concerts.

I met them when they were sideways, couldn't breathe, and could barely speak. It's hard to believe I sat on zoom calls listening to them cry and worry that this would be forever. Its hard to believe that I was saying, "It's gonna be ok, we can get better" mostly just because I had to believe that.

It use to piss some people off to hear it.

Watching strong young men battle #LongCovid for the last 3.5 years and seeing the inevitable toll its taking on their relationships and marriages is heartbreaking.

It's been so hard on me and Erin, but we are weathering it. For others the seams are beginning to rip. It's awful. And yes, I say men. This is specifically about men. As a man, I can empathize with other men in my shoes. Just as I can empathize with other patients of any gender or identity in their struggles.

There is a unique hardship for men, just as there are unique hardships for women.

I went into quarantine on March 10th 2020. I was PCR positive for #COVID19.

I never recovered. I developed #LongCovid.

My life is in shambles now and I've lost everything but the woman I love and we have isolated ever since.

On this day I've been on lockdown for 1191 days. Before this happened, I was an athletic active person who took care of his friends and family. I worked on my feet and spent my free time engaging in social activities, because I love other people and connection. But those days are in the distant past.

What the world THINKS vs. REALITY when it comes to #LongCovid Recovery.

A brief Visual 🧵 What the world thinks and what people expect when they first develop #LongCovid. This is also what the media and the government would like you to believe.

See below :

#LongCovid strikes again.

Hopefully this is a short dip, cause I was getting use to being able to do things around the house like clean the cat boxes, prepare my meals and work on my videos, and go for small daily walks.

Ugh..
Back on "time out" During brief periods where you see improvements, you almost forget how bad it can be. The weakness, the irregular heart rate, the shortness of breath while lying flat.

You forget about the rapid chaotic thoughts that fill the mornings when you try to sleep more than 4 hours.

WELP™ It's not turning into a cold. My Partner just came home to give me the news.

A brief 🧵 Erin returned home today and told me that a provider she works with has #COVID19 again, again, again.

Yep. This is her 4th infection. So you'd assume there'd be some "hybrid immunity" as promised. She was ok with her previous 3.

What they think #LongCovid brain fog is:

- “It’s on the tip of my tongue.”

- “Where did I put my keys?”

- “What’s the date today?”

- “Where did we park the car?”

What brain fog ACTUALLY is:

A brief 🧵 - getting lost in your home

- forgetting why you entered a room, every time.

- forgetting how you got to that room

- being unable to operate a vehicle

- putting dishes in the garbage vs the sink

- Hitting light switches to turn on the heat

- always leaving the stove on