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Long Covid First Waver. Former history teacher, tutor, veterinary technician, writer, traveler. Cat momšŸˆ. Proud daughter (and niece) of a Vietnam Vet šŸ‡ŗšŸ‡ø.
Dec 3, 2023 ā€¢ 13 tweets ā€¢ 3 min read
If youā€™re šŸ‡ŗšŸ‡ø & living w/#longcovid you are protected by the Americans w/Disabilities Act of 1990. Youā€™re guaranteed accommodations under federal civil rights law.

Which accommodationsā€”that youā€™re *guaranteed* by the šŸ‡ŗšŸ‡ø governmentā€”have you actually received?

Accommodations in: Image
Aug 19, 2023 ā€¢ 8 tweets ā€¢ 2 min read
In 5 - 10 years it will become very clear to *everyone* that our entire history-changing *mass-disabling eventā€ was due to the fact that a group of people in power/with influence simply could not

1) admit they were wrong

and

2) change their minds.

Human ego āž”ļø the #1 problem on this planet.

The Buddha said that ā¬†ļø not me. A little humility from ā€œexpertsā€ who made mistakes early on would be super helpful right now to the entire human population. But instead, they cling to their erroneous ideas šŸ’Æ because they think itā€™s better to be ā€œrightā€ than to be actually ā€œcorrect.ā€ And it is destroying the lives of millions of people.
Aug 11, 2023 ā€¢ 11 tweets ā€¢ 5 min read
ā€œThe survivors are doing it themselves.ā€

Clearing dead bodies #MauiFires.

šŸ§µ: my friend Angieā€™s harrowing experience helping fire survivors.

Hey @fema Maui needs help NOW.

Hey @USPacificFleet command: youā€™re the freaking US Navy & not that far from Maui. A little help?


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Jul 22, 2023 ā€¢ 7 tweets ā€¢ 2 min read
I am going to present a question that requires you to keep more than one concept in your head at a time.

I am explaining what I am doing bc this is The Bird & human critical thinking Ainā€™t What It Used To Be.

Here is some data: As of March 2023 per NBC News: Image
Jun 15, 2023 ā€¢ 10 tweets ā€¢ 2 min read
So I just found out that it is illegal in most US states for parents to disinherit their disabled children.

Which is interesting because my parent disinherited me last year basically BECAUSE Iā€™m disabled and she ā€œdidnā€™t believe it.ā€

Which also means: The flying monkeys/enablers who took part in deliberately destroying my life a year ago at the behest of my parent who wanted my life destroyed because she didnā€™t believe I was disabledā€”& therefore are expecting $$$ from my parentā€™s will as compensation for destroying my lifeā€¦
Jun 15, 2023 ā€¢ 4 tweets ā€¢ 1 min read
Yet the FAA looks at pilots, ground crews, & air traffic controllers in šŸ‡ŗšŸ‡ø that repeatedly make dangerous errors/cause scary near-misses at major US airports and says:

ā€œItā€™s mental rust.ā€ amp.cnn.com/cnn/2023/04/26ā€¦
Jun 13, 2023 ā€¢ 10 tweets ā€¢ 2 min read
My intuition has helped me on several important occasions.

1. Before my Dad died.

2. When ā€œthe novel coronavirusā€ hit Wuhan in late 2019.

3. In 2022 when I could ā€œtellā€ a group of people were hiding something very important from me. And they were. scientificamerican.com/article/intuitā€¦ I knew my Dad was dead 2 hours before I was told officially. He was on the different continent.

I sent N95s to everyone I knew in early/mid January 2020.

I left the state of Mass. last year as a group of ā€œfriendsā€ & ā€œfamilyā€ were planning to take even more of my possessions.
Jun 13, 2023 ā€¢ 5 tweets ā€¢ 2 min read
I have a weird intuitive nudgieness ongoing about Nipah. And Hendra, which isnā€™t on this list.

Great list. Excellent šŸ§µ šŸ’Æ FYI: Hendra

who.int/health-topics/ā€¦
Jun 10, 2023 ā€¢ 5 tweets ā€¢ 1 min read
ā€œLong covid numbers are relatively low compared to the total number of people who have been infected.ā€

Really?

Half of all people on twitter w/long covid never received a diagnosis.

No diagnosis = not in the official statistics. Millions of people are having health problems post-covid but are being told by media/MDs that long covid is rare.

So they donā€™t think they have long covid.

Or they donā€™t ā€œbelieveā€ they have long covid.

Or they ā€œhopeā€ they donā€™t have long covid/are ignoring the possibility.
Jun 10, 2023 ā€¢ 5 tweets ā€¢ 1 min read
Person on twitter:
Iā€™d rather get long covid than wear a mask.

Person w/cognitive issues post-covid: My doctor said itā€™s not Alzheimerā€™s so Iā€™m fine.

Person w/25 new health problems post-covid: Long covid isnā€™t real plus I was vaccinated.

WHO: there is no emergency. CDC: Covid is over so weā€™re not collecting data anymore.

POTUS: Covid is over. You can tell because no one is masking.

Doctors: If youā€™re concerned about a highly transmissible disease that can destroy your entire life youā€™re clinically insane.
Jun 10, 2023 ā€¢ 9 tweets ā€¢ 2 min read
Imagine what itā€™s like for people who have spent 3+ years desperately sick, disabled, and alone with long covid. Some of us were not only abandoned by family, friends, and society, but we were victims of financial and property crimes. No one cares. Not law enforcement, not elected officials, no one. People with LC have zero civil rights despite being protected (on paper) by the #ADA.
Mar 27, 2023 ā€¢ 8 tweets ā€¢ 4 min read
@1goodtern Covid-induced executive function impairment. I will scream that into the covid-addled void until the day I die. I worked in special ed (3 years) and with 7th graders (for an eternity). I have an M.Ed. I know executive function impairment when I fucking see it. It is EVERYWHERE. @1goodtern news-medical.net/amp/news/20230ā€¦
Mar 25, 2023 ā€¢ 4 tweets ā€¢ 1 min read
ā€œInadequate human, financial and material resources.ā€

In other words, humanityā€™s screwed up system of values (wealth for the elite few = more important than the community) will likelyā€”according to the government of Tanzaniaā€”result in the Marburg outbreak getting out of hand. And just to be clear: there are no vaccines or treatments for Marburg. Image
Mar 23, 2023 ā€¢ 6 tweets ā€¢ 2 min read
According to Websterā€™s Dictionary, ā€œabuseā€ is defined as ā€œimproper treatment.ā€

Since an individual associated w/@CDCgov is calling other scientists ā€œabusiveā€ bc heā€™s feeling pouty on Twitter, here is a @1goodtern-inspired thread:

5 Ways the CDC is ā€œAbusive.ā€ 1. They denied covid tests to sick Americans who ā€œhadnā€™t been to Chinaā€ in the first few months of 2020. Including me. Which has = fuel/ā€œevidenceā€ for denialist HCWs who ā€œdonā€™t believe long covid exists.ā€
Mar 23, 2023 ā€¢ 4 tweets ā€¢ 1 min read
If someone disagrees w/you about science, but others agree w/that person, that person is NOT ā€œabusive.ā€

And no. You arenā€™t an f-ing hero for using the word ā€œabusiveā€ in your attempt to paint yourself as a hero.

Youā€™re a worm w/ZERO CONCEPT of the reality of ā€œabuse.ā€

#CPTSD The biggest issue with solving covid & long covid is certain select self-described ā€œprofessionalsā€ with fragile egos who make everything ten times more complex bc they canā€™t play nice with the other kids. We are doing this TO OURSELVES.
Mar 21, 2023 ā€¢ 5 tweets ā€¢ 2 min read
1,124 days since my ā€œacuteā€ covid.

I see #fungi trending in covid šŸŒ

2021: I nearly died of severe fungal growth in my lungs that ā€œbaffledā€ my Harvard-educated pulmonologist. I was in the ICU for a wk. My nurse suspected HIV.

My family called it ā€œmental illness.ā€ After my discharge, my health insurance company tripled my monthly premium. & then they refused to pay for medication to help my lungs recover bc the medication was ā€œtoo expensive.ā€

The system isnā€™t ā€œbroken.ā€ Itā€™s working for certain specific groups.

But sure. Ignore covid.
Mar 5, 2023 ā€¢ 5 tweets ā€¢ 1 min read
Ok, personal anecdote.

For 2.5 years my cognitive ability was like rice pudding. I literally could not fix a microwave meal if it had more than 2 instructions. Meaning ā€œmake vent in cover, microwave for 4 minutesā€ was šŸ’Æ fine. But ā€œmake vent in cover, microwave 4 minutes, stir, microwave 2 more minutesā€ was totally fucking impossible. Too many instructions. That was my #longcovid cognitive impairment. But I spent 1.5 of those 2.5 years with ZERO IDEA about why my brain wasnā€™t working normally.

Which was fucking terrifying & traumatizing.
Mar 5, 2023 ā€¢ 4 tweets ā€¢ 1 min read
Quite (fucking) possibly.

I had a troll jump all over me in my dms a few months ago bc I dared comment on erectile dysfunction post-covid. We actually had a lovely chat. Once I showed him I actually gave a shit abt his welfare. Itā€™s not impossible. It is. Honestly. It must be a major cause of all sorts of bad behavior/moods. Iā€™m not an expert for obvious reasons. But it canā€™t be good.
Mar 5, 2023 ā€¢ 7 tweets ā€¢ 1 min read
If I post an article that does not include recommendations for masking, ventilation, & clean air itā€™s because I have been screaming into the void about those issues for eternity. So have many of you. Maybe those key words turn some people off. Maybe we need to rethink our language & approach. Maybe brains limited by cognitive impairment due to SARS2 see 1 or 2 words & tune out completely. Maybe a tweak to language can cut thru the SARS2-induced fog & denial. Just a thought from someone who spent 3 years in special ed.
Mar 5, 2023 ā€¢ 4 tweets ā€¢ 1 min read
ā€œMolnupiravirā€™s mechanism of action also carries the risk of spawning new viral variants. Recall that its entire modus operandi is, essentially, destruction via mutation. Certain scenarios, some as banal asā€

ā¦@LongDesertTrainā© insideprecisionmedicine.com/topics/patientā€¦ ā€œa person forgetting to finish their full course of medication, may bring about all of the mutation with none of the destruction.ā€
Mar 4, 2023 ā€¢ 5 tweets ā€¢ 3 min read
This tweet is specifically for @ashishkjha @AshishKJha46 (whichever/both):

THE AMERICANS WITH DISABILITIES ACT DOES NOT ā€œWORKā€ FOR PEOPLE LIVING WITH #LONGCOVID.

Iā€™ve said this a billion times on Twitter.

Crickets. šŸ¦—šŸ¦—šŸ¦—šŸ¦—šŸ¦—šŸ¦—šŸ¦—šŸ¦—šŸ¦—šŸ¦— 1. People with long covid have ZERO federal civil rights. Ask me how I know.