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Long COVID Justice (Links in Bio!) Profile picture
Long COVID Justice (Links in Bio!)
@LongCOVIDnetwk
- Join our action list: https://t.co/YLjoRYca61… - All our links: https://t.co/jr8VGK7KyR… - Find us @longcovidjustice where skies are blue!
Feb 21 • 10 tweets • 3 min read
What We’re Reading: High-risk patients alarmed by CDC’s plan to ease covid isolation guidance, by Fenit Nirappil & Lena Sun in the Washington Post. 🧵 Upper left corner has wavy yellow shape with blue text that says “What We’re Watching, @longcovidjustice.” White box with black text says “High risk patients alarmed by CDC’s plan to ease covid isolation guidance. Activists worry the planned changes could jeopardize paid covid leave policies, fuel long covid rates and endanger immunocompromised and elderly people. By Fenit Nirappil and Lena H. Sun in the Washington Post.” Below this is a yellow drawing of a megaphone next to white text that says: “plus tools for resistence - call or write your elected officials, or write a letter to the ed... How We’re Responding: Calling & writing our elected officials to demand that the CDC puts people over profits, and writing letters to the editors of our local papers.

Plus check out our Direct Action Toolkit for inspo on taking direct action, ✊tiny.cc/direct-action-…
Aug 17, 2023 • 12 tweets • 3 min read
We need your votes so that we can engage more people in the fight for pandemic justice & disability justice! Help us bring a patient-led panel on Long COVID to this year’s South by Southwest Conference & Festival - voting closes on Sun 8/20!

🗳️ VOTE! https://t.co/SLEtX5iarmtiny.cc/sxsw-LongCovid…
Blue and aqua background. At the top left is a yellow illustration of a hand with finger extended pressing a “vote” button with yellow text below, so it reads “Vote for Patient-Led Long COVID panel @ SXSW.” Below is a screenshot of two comments in black text on white. The first comment says “This is such an important topic that needs more attention! Would love to hear this panel at SXSW!” and the reply from Gabriel San Emeterio says, “Thank you, Malory! I couldn’t agree more with you. It’s such an important topic and this panel is patient led, which is also crucial. Conversations about disa... As part of an effort to bring critical conversations about #LongCOVID to broader audiences, our co-founder Gabriel San Emeterio (@gabrielhse) is joining forces with fellow longhaulers fi_lowenstein (@fi_lowenstein), Pato Hebert & Miles Griffis (@mileswgriffis) to offer this panel
Jun 1, 2023 • 5 tweets • 2 min read
RECOVER released a paper playing into gaslighting & myths of disability fraud, promoting misleading “scoring” prioritizing #LongCOVID symptoms less common in other conditions - like loss of taste/smell - over those most common in LC itself… This is repeating bad history: many were harmed and even killed by an #AIDS definition that excluded symptoms common in women and drug users. Diagnostic gatekeeping weaponizes our medical records, fuels care and treatment restrictions, sets patients against one another…