Well, last night's feeling that April is starting *early* was validated today, with @autismspeaks 's announcements.
So, as a PSA for those who want to do right by #ActuallyAutistic people ... Don't buy into it. Any of it.
It sounds lovely, but is very problematic. (Thread)
The idea that the change of logo design came from *listening* to autistics is laughable at best.
Someone who was listening wouldn't have merely re-coloured the puzzle piece that the community finds offensive.
They wouldn't have left the dominant colour blue, as they would have heard the community's thoughts on how the gendering of autism hurts girls, women, and non-binary folks when it comes to matters of DX and representation.
If we "appear unresponsive", it's because we're ignoring you, Karen. Allistic people tend to have no idea how loud and obnoxious they can be, never mind how overbearing and in-your-face they can be. It's all too much- shutting down helps shut it OUT.
"Eye contact" is a thing that varies wildly from culture to culture, and feels/means something different to different people. Would you be so dehumanizing about people from a different country who aren't as obsessed with making.maintaining eye contact?
Twitter, I've been seeing a lot of disturbing articles about "seclusion rooms" being used against #ActuallyAutistic kids in both Canada and the USA... and the comments sections on them can be... well, something. So, I’d like to say a few words.
For one, I think that people come up with some pretty wild ideas in their heads about autistic kids, to justify seeing inhumanity as somehow being reasonable. Allow me to go off on a slight tangent here.
I'm so tired of violent behaviour being blamed on anyone but the aggressor. "You pushed her into this" is not different than "If she would have just gone out with him, he wouldn't have shot all those people".
It's funny how "Oh, person in crisis! Not responsible for actions!" rhetoric/sympathy is never extended to autistic people in crisis... especially when in meltdowns intentionally provoked by people LIKE this violent "warrior mom".
So, in an effort to raise a bit more #AutismAwareness, I’d like to discuss “elopement”. I invite other autistics to add in their own experiences - this could be educational! - but as far as what I’m about to say, I’m really just speaking to my own experience and thoughts.
First, I’d like to say that “elopement” is a ridiculous term. Right up there with “differently abled”, IMHO. It’s running away. It’s wandering. Call it what it is!
Secondly - and this is in response to a person who came at me yesterday - no one “dies from elopement”,
just like no one dies from “running away”. Yes, there are all kinds of ways that one can meet their end running away, but those would be the cause of death - drowning, starvation, hypothermia, murder, etc. I don’t know why “died from elopement” rubs me the wrong way, but it does.
Mini #AutismAwareness rant: One thing I really resent about the warrior mom / pro ABA narrative is how they've weaponized the term "evidence based". Their big thing about ABA is that it's "evidence based" - but the statement is extremely problematic without context.
"Evidence based" in the case, means "evidence that the behaviour has changed". Fair enough - they do change the kids. However, the change is a trauma reaction. If you break a kid down to where they bottle everything up, rather than self regulate? Not a good thing.
If you destroy a child's sense of autonomy, in order to elicit compliance - especially for things the child does NOT want? Leaving that kid with PTSD for life - a reality for most ABA survivors? Not good things.
None of this comes up when saying "evidence based", however.
Now - I don’t believe myself to be “greater than” those who are self diagnosed by virtue of my formal diagnosis, but I Think I should put it out there as cred. Consider it using my privilege for good.
Most places won’t cover DX (Bizarre, with how medicalized autism is in public discourse!), and assessment can be prohibitively expensive. Even for those who have it covered / can afford it, there can be huge waiting lists. Assessment comes with many barriers.
Ok guys, here we have it: The kitchen I designed / my husband built, using the tree that destroyed our house in the tornado!
(with 159 digits of pi tiled into the backsplash)
Our neighbourhood had a ton of gorgeous, 100+ year old hardwood trees that got ripped up like they were nothing. Mostly oak and - like ours - black walnut. It made me so sad to see everyone cutting them up into manageable pieces to dispose of. I GET it, but still - such a loss.