'cystic encephalomacia of superior R parietal lobe & redemonstrated dilated perivascular space in L basal ganglia'
Jun 7 • 25 tweets • 5 min read
I was co-hosting a space yesterday where people were invited to speak openly about feelings & goings on in their lives.
I'm so grateful for spaces like these.
We desperately need more of this.
We have all been thru so much & continue to need support in so many ways ❤️
Spaces like these are a true life line for so many.
There are those who simply need a space to talk about feelings & thoughts dealing with chronic illness & how it effects their lives.
Many who are silent in other spaces find their voice in spaces like these :).
May 21 • 19 tweets • 4 min read
This week, I went for 2nd neuro psyche eval at stroke clinic to dx extent of cognitive decline due to strokes & brain damage post Covid.
Drs notes just added to my chart -
"Major neurocognitive disorder with severe impairments."
They are trying to access the extent of the damage from the strokes & subsequent brain damage & progression.
My memory loss is getting much worse. I forget everything.
Nov 4, 2022 • 12 tweets • 5 min read
I spent yesterday & last night in the ER. I've been sick for 2 weeks with - RAT & PCR.
Though my Covid test was negative, they said I may have one of the new strains not showing up on tests. 6 diff docs who treated me last night said they'd seen lots of this happening recently.
Haven't left my home in weeks.
My partner was most likely asymptomatic & gave it to me after attending an outdoor event.
He masked & quarantined in another part of the house. It wasn't enough.
Jul 6, 2022 • 8 tweets • 4 min read
I'm begging you, please, listen to those of us who have #LongCovid from the 1st wave.
We're sharing experiences & medical traumas to try to help you understand how damaging long term affects of Covid are to help protect you from suffering the same fate. #TreatLongCovid
Sharing isn't easy.
Cognitive decline coupled w emotional impact of so much hate & denial we face takes a toll.
We keep shouting into the void hoping our voices will help others understand how absolutely necessary it is to protect yourself & others. #COVIDisAirborne
May 14, 2022 • 22 tweets • 7 min read
Day 823 of my #longcovid battle
This will mostly be rambling, screaming out into the void as I've felt even more disconnected as my health continues to deteriorate.
Took cpl hrs to get this out & is all over the place but that's ok too.
"mild" case of covid February 2020 led to LC rearing it's ugly head by June 2020. In 1styear, I went from being healthy & active to suffering 100+ symptoms.
Each dr visit & scan found further degeneration & damage. I was met w dismissal & gaslighting from med community.