Autistic w SWS, hEDS, LC - navigating life w brain aneurysms & terminal dx.
1st Wave Covid survivor & stroke survivor.
Posts focus on LC & my cats 🐈
Apr 12 • 7 tweets • 4 min read
US Department of Agriculture "recommendations" for #H5N1 in livestock.
JFC.
No federal quarantine orders.
No state regulatory quarantines.
No official hold orders on cattle.
Also take note of procedures for milk from exposed & affected cattle.
H5N1 milk lagoons.
Wtaf did I just read?
I'm sure this will be fine.
Just fill the countryside with H5N1 lagoons & shoo ALL the wildlife away.
No way this could cause further spread to other mammals.
Sep 5, 2023 • 11 tweets • 3 min read
It's appalling to see so many "celebrated" for walking out of #BurningMan2023 rather than waiting it out & staying to do the right thing.
The majority of these people have left their things behind for someone else to clean up. 1/9
Most who walked out, took only what they could carry - leaving behind their entire campsites.
They don't have solid contingency plans to return & clean up their camps themselves.
I'd love to hear it if they do.
2/9
Aug 6, 2023 • 14 tweets • 3 min read
I'm currently on day 8 of a Covid reinfection.
The 1st (day 3), I was in the hospital with a really scary situation from a complication of symptoms.
I'm so exhausted y'all.
Fever finally broke yesterday.
1/14
The only place I've been that I could have contracted Covid is the grocery store for about 10 minutes for cat food & bread last week.
2 ailes from the door, self check out. I could roll in/out with a quickness! No problem!
Damn it.
2/14
Jul 21, 2023 • 20 tweets • 4 min read
#LongCovid is causing a complete loss of all of my teeth now.
Already had 11 extracted, they are proposing to take another 15 by summer's end.
My teeth are crumbling & nothing can be done to save them.
My dentist says they've seen alot of this in patients recently.
1/8
There have been many who have shared similar stories of extreme tooth loss like mine over the past 3+ years.
The American Dental Association reported an increase of 53% higher instances of cracked or broken teeth over the course of the pandemic.
2/8
Jun 9, 2023 • 26 tweets • 5 min read
Covid has been gnawing at my brain since my first infection February 2020.
Over the past 41 months, I have watched helplessly as it ripped apart my brain in various ways leaving me a shell of my old self.
1/25
#LongCovid #LongCovidBrainDamage
Brain damage has progressed rapidly since 1st scans early '21 w 1st lacunar infarct stroke.
From recent scans:
'cystic encephalomacia of superior R parietal lobe & redemonstrated dilated perivascular space in L basal ganglia'
2/25
Jun 7, 2023 • 25 tweets • 5 min read
I was co-hosting a space yesterday where people were invited to speak openly about feelings & goings on in their lives.
I'm so grateful for spaces like these.
We desperately need more of this.
We have all been thru so much & continue to need support in so many ways ❤️
1/25
Spaces like these are a true life line for so many.
There are those who simply need a space to talk about feelings & thoughts dealing with chronic illness & how it effects their lives.
Many who are silent in other spaces find their voice in spaces like these :).
2/25
May 21, 2023 • 19 tweets • 4 min read
This week, I went for 2nd neuro psyche eval at stroke clinic to dx extent of cognitive decline due to strokes & brain damage post Covid.
Drs notes just added to my chart -
"Major neurocognitive disorder with severe impairments."
They are trying to access the extent of the damage from the strokes & subsequent brain damage & progression.
My memory loss is getting much worse. I forget everything.
Everything.
Nov 4, 2022 • 12 tweets • 5 min read
I spent yesterday & last night in the ER. I've been sick for 2 weeks with - RAT & PCR.
Though my Covid test was negative, they said I may have one of the new strains not showing up on tests. 6 diff docs who treated me last night said they'd seen lots of this happening recently.
Haven't left my home in weeks.
My partner was most likely asymptomatic & gave it to me after attending an outdoor event.
He masked & quarantined in another part of the house. It wasn't enough.
Jul 6, 2022 • 8 tweets • 4 min read
I'm begging you, please, listen to those of us who have #LongCovid from the 1st wave.
We're sharing experiences & medical traumas to try to help you understand how damaging long term affects of Covid are to help protect you from suffering the same fate. #TreatLongCovid
1/7
Sharing isn't easy.
Cognitive decline coupled w emotional impact of so much hate & denial we face takes a toll.
We keep shouting into the void hoping our voices will help others understand how absolutely necessary it is to protect yourself & others. #COVIDisAirborne
2/7
May 14, 2022 • 22 tweets • 7 min read
Day 823 of my #longcovid battle
a thread.
This will mostly be rambling, screaming out into the void as I've felt even more disconnected as my health continues to deteriorate.
Took cpl hrs to get this out & is all over the place but that's ok too.
1/21
"mild" case of covid February 2020 led to LC rearing it's ugly head by June 2020. In 1styear, I went from being healthy & active to suffering 100+ symptoms.
Each dr visit & scan found further degeneration & damage. I was met w dismissal & gaslighting from med community.
2/21