SO much continued infighting in the community.

Same old narratives purposefully pushed to drive division.

#LongCovid patients speaking about their experiences, need for treatments & funding being hijacked by others.

I'm so over all of this.
1/5 I have #LongCovid caused by a Sars-cov-2 infection early 2020.

I want research & treatments focusing on Sars-cov-2 as THAT is what has led to the vast damage to my body.

2/5

US Department of Agriculture "recommendations" for #H5N1 in livestock.
JFC.
No federal quarantine orders.
No state regulatory quarantines.
No official hold orders on cattle.

Also take note of procedures for milk from exposed & affected cattle.





H5N1 milk lagoons.
Wtaf did I just read?

I'm sure this will be fine.

Just fill the countryside with H5N1 lagoons & shoo ALL the wildlife away.

No way this could cause further spread to other mammals.

It's appalling to see so many "celebrated" for walking out of #BurningMan2023 rather than waiting it out & staying to do the right thing.

The majority of these people have left their things behind for someone else to clean up.
1/9

Most who walked out, took only what they could carry - leaving behind their entire campsites.

They don't have solid contingency plans to return & clean up their camps themselves.

I'd love to hear it if they do.
2/9

I'm currently on day 8 of a Covid reinfection.

The 1st (day 3), I was in the hospital with a really scary situation from a complication of symptoms.

I'm so exhausted y'all.

Fever finally broke yesterday.

1/14 The only place I've been that I could have contracted Covid is the grocery store for about 10 minutes for cat food & bread last week.

2 ailes from the door, self check out. I could roll in/out with a quickness! No problem!
Damn it.

2/14

#LongCovid is causing a complete loss of all of my teeth now.

Already had 11 extracted, they are proposing to take another 15 by summer's end.

My teeth are crumbling & nothing can be done to save them.

My dentist says they've seen alot of this in patients recently.

1/8 There have been many who have shared similar stories of extreme tooth loss like mine over the past 3+ years.

The American Dental Association reported an increase of 53% higher instances of cracked or broken teeth over the course of the pandemic.

2/8

Covid has been gnawing at my brain since my first infection February 2020.

Over the past 41 months, I have watched helplessly as it ripped apart my brain in various ways leaving me a shell of my old self.

1/25

#LongCovid
#LongCovidBrainDamage Brain damage has progressed rapidly since 1st scans early '21 w 1st lacunar infarct stroke.

From recent scans:

'cystic encephalomacia of superior R parietal lobe & redemonstrated dilated perivascular space in L basal ganglia'

2/25

I was co-hosting a space yesterday where people were invited to speak openly about feelings & goings on in their lives.

I'm so grateful for spaces like these.
We desperately need more of this.
We have all been thru so much & continue to need support in so many ways ❤️
1/25 Spaces like these are a true life line for so many.

There are those who simply need a space to talk about feelings & thoughts dealing with chronic illness & how it effects their lives.

Many who are silent in other spaces find their voice in spaces like these :).
2/25

This week, I went for 2nd neuro psyche eval at stroke clinic to dx extent of cognitive decline due to strokes & brain damage post Covid.

Drs notes just added to my chart -

"Major neurocognitive disorder with severe impairments."

Dementia.

#LongCovid
#LongCovidAwareness
1/9 I'm shook.

I'm 45 years old & have just been dx with dementia.

Idk what I was hoping for, maybe that they would tell me things weren't as bad as I thought.

I guess I had actually hoped for a little dismissal for a change.
2/9

Did you know that #purrtherapy is legitimate medicinal vibration therapy?

Ragnar is an amazing Purr Therapist!

He knows his work is super important & takes great pride in his healing powers.

#RescueCat
#RagnarCat Cats purrs vary between 25-140 hz.

Vibrations btwn 10-50 hz help increase the speed of healing of bones, muscles & tendons as well as decreasing inflammation throughout the body.

Vibrations of 18-35 hz helps increase joint mobility & decrease swelling of joints.

I'm turning 45 this week.

I just learned I have cognitive impairment akin to early stage Dementia or Alzheimers usually seen in someone 30 - 40 years older than i am.

I'm loosing it y'all.

#stroke
#LongCovid
#LongCovidBrainDamage Had a cognitive/memory assessment done today w one of my neuro.

They are trying to access the extent of the damage from the strokes & subsequent brain damage & progression.

My memory loss is getting much worse. I forget everything.

Everything.

I spent yesterday & last night in the ER. I've been sick for 2 weeks with - RAT & PCR.
Though my Covid test was negative, they said I may have one of the new strains not showing up on tests. 6 diff docs who treated me last night said they'd seen lots of this happening recently. Haven't left my home in weeks.
My partner was most likely asymptomatic & gave it to me after attending an outdoor event.
He masked & quarantined in another part of the house. It wasn't enough.

I'm begging you, please, listen to those of us who have #LongCovid from the 1st wave.
We're sharing experiences & medical traumas to try to help you understand how damaging long term affects of Covid are to help protect you from suffering the same fate.
#TreatLongCovid
1/7 Sharing isn't easy.
Cognitive decline coupled w emotional impact of so much hate & denial we face takes a toll.
We keep shouting into the void hoping our voices will help others understand how absolutely necessary it is to protect yourself & others.
#COVIDisAirborne
2/7

Day 823 of my #longcovid battle
a thread.
This will mostly be rambling, screaming out into the void as I've felt even more disconnected as my health continues to deteriorate.
Took cpl hrs to get this out & is all over the place but that's ok too.
1/21 "mild" case of covid February 2020 led to LC rearing it's ugly head by June 2020. In 1styear, I went from being healthy & active to suffering 100+ symptoms.
Each dr visit & scan found further degeneration & damage. I was met w dismissal & gaslighting from med community.
2/21