Cematics for vagus nerve stimulatin&Nitrous Oxide production- myofascial release, dry needling & trigger point therapy #STO clinical sports therapy for pain and improved gut motility/ paralysis. Reiki, meditation.. has kept me going with esophageal+widespread paralysis since 2015

https://twitter.com/ArtburkNikki/status/1548366867026153476

To be fair I have been putting in 2 hour to 18 hours of manual neuromuscular activation on soft tissue release ever since but my hands are generating so I have trained A multidisciplinary Team in what I do improve my gut motility / innervated small intestine within a month 🙏🏽🤍🕊

#URGENT Twitter, I need your help-my health is critical I travel abroad to recieve trx in 4 weeks as a #pwME- An anonymous donor has covered the cost of my #HelpApheresis trx🙏🏽🦋 We are Rapidly trying to raise costs co-trx, accommodation, ✈ & care costs. gofundme.com/f/help-Trish-a… I am severely disabled. I have been since the onset of my illness. I suffered rapid deterioration and I'm now suffering widespread structural degeneration after being gaslit heavily for the past 8yrs. This is a chance to Save My Life. My health has been critical all year.

1/7“The cardinal symptom of ME/CFS – PEM or post exertional exacerbation of symptoms.
……the fact that by definition, patients with ME/CFS are made more ill by aerobic exercise.
This has been unequivocally and repeatedly demonstrated by several research groups and confirmed by" 2/7"major govt. bodies in the US: the National Institutes of Health, the Center for Disease Control and the National Academy of Medicine.” #MECFS #LCME #ExertionIntolerant #EnergyLimitingConditions #PostExertionalMalaise #StopRestPace

dialogues-mecfs.co.uk/films/graded-e…

Trigger warning- Will try keep this short. Uncovering the scale of medical gaslighting and corporate corruption. Who teaches our doctors to dismiss medically unexplained symptoms as hysteria?

Lynn Turner- MUS management PowerPoint, Kings College London She also developed the GAS-light model as way of determining which treatments were worth trialling ie cost effectiveness - gauging effectiveness based on patient set goals for graded assessment. If we set the goals, its not on them if the treatments aren't effective, it's on us.

1/5 Please support our petition. #pwME are calling for a yellow card scheme where treatments offered by NHS services can be monitored and reported if harms are caused.

Such schemes exist in place for drug therapies but not for exercise prescription.
change.org/p/department-o… 2/5 This means alot to me, obviously I prescribed exercise as part of my clinical practice. I was a competitive athlete most my life and whilst accessing diagnostics, being prescribed graded exercise made me severly disabled. Something I advocated for, is detrimental to #pwME

Deconditioning theory officially expelled !! Scientists prove what's causing exertion intolerance in #LongCovid- Link it to ME findings and likelihood of developing #MECFS. Have we just solved the pathology of acute to chronic post viral sequel??
jornaldepneumologia.com.br/details/3604/e… Can we now fully do away with the biospychosocial theory and start investing research into developing effective treatments?? #BPSbeGone #StopTheHarm #EndTheStigma #FundTheResearch #FindTheTreatments

I was a clinical sports therapist. My degrees in Sports Coaching and Exercise Science. The Royal Colleges insistent claims that exercise is effective for ME are based on a "deconditioning theory" - Not the actual science that proves #pwME are exertion intolerant. If graded exercise rehab worked for people with #MECFS then why is the recovery rate only 5%? If I could successfully rehabilitate clients post surgery, after years of immobility, chemo damage and serious injury, then why did the principles of GET leave me severly disabled?