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Terri Lewis, PhD #GratefulToBeVaccinated in TN-6 Profile picture
Terri Lewis, PhD #GratefulToBeVaccinated in TN-6
@tal7291
Curious rehabilitation educator #ally #advocate for consumers with complex, rare disease thru 2 Qs: Are we doing the right things? Are we doing things right?
Aug 23, 2021 • 10 tweets • 2 min read
academia.edu/31153922/Asses…
Aug 22, 2021 • 4 tweets • 2 min read
Palliative care state toolkit
Why aren't we doing better at this for community located persons?
…968hg74aj3x51-wpengine.netdna-ssl.com/wp-content/upl… Why aren't we adequately reflecting patients in this service #medtwitter?
chcf.org/wp-content/upl…
Aug 21, 2021 • 6 tweets • 1 min read
The Afghan outrage machine is fully wound up.
But as an American who has lived and worked abroad for long periods of time, let me just say that EVERY American KNOWS that one travels at their own risk and that the US Govt is not your rescue plan if things go south. People employed by US contractors and companies KNOW that in the event of an event like this, it's the responsibility of US companies to safely evacuate their employees.
Aug 2, 2021 • 11 tweets • 3 min read
In a million yrs I never thought I would come to a conclusion like this. But after reviewing hundreds of documents, & data elements, it looks like people w/ chronic illnesses are targeted pawns in a shakedown of opioid mfrs by state AGs in collaboration with federal agencies. In 2017 testimony to the House, CDC personnel told Congress that they lacked evidence of 'what works' and would have to 'build the evidence' to reduce the use of opioids.
#ConfirmationBias
Aug 2, 2021 • 6 tweets • 3 min read
ncbi.nlm.nih.gov/pmc/articles/P…
CDC Disclaimer of posted opioid calculator here.
Jul 25, 2021 • 15 tweets • 4 min read
The Secret Role of Insurers in Medicare Opioid Policy — Pain News Network painnewsnetwork.org/stories/2017/1… This is an important piece of the design to reduce and deny opioids for palliation.
Jul 24, 2021 • 8 tweets • 3 min read
Opioid Use in Medicare Part D During the Onset of the COVID-19 Pandemic
oig.hhs.gov/oei/reports/OE… HHS OIG Toolkits for Calculating Opioid Levels and Identifying Patients At Risk of Misuse or Overdose
oig.hhs.gov/oei/reports/oe…
Jul 9, 2021 • 4 tweets • 1 min read
I am working with a young mom on the west coast with a clear progression of symptoms that looks like EDS associated with a childbirth injury due to an errant epidural. Throughout, her male physicians have gaslighted her, attributing tangible symptoms to psychiatric illness. Rather than letting the data inform a diagnostic process, their theory is to deny, deflect the tangible persistent symptoms that are interrupting her daily life.
This is physician failure to adopt an appropriate diagnostic model, not patient failure.
Siloed care fails complexity.
Jul 9, 2021 • 5 tweets • 2 min read
images.app.goo.gl/7ZTRAhbsbKYHKL… Every loss counts.
Every sigle denial of life-giving care denied counts.
#HealthCareIsAHumanRight
Jul 8, 2021 • 4 tweets • 2 min read
Five undervaccinated clusters put the entire United States at risk

cnn.com/2021/07/08/hea… 'The five clusters are in parts of eight states, starting in the east in GA and stretching west to TX and north to so MO. The clusters also nclude parts of AL, AR, LA, OK and #Tennessee, and are made up of mostly smaller counties but also cities...'
May 14, 2021 • 4 tweets • 1 min read
Let's not park our personal brains at the door.
If you're vaccinated and in an indoor area, but you don't know the status of folks around you, it's perfectly okay to use a mask - maybe even desirable.
If you are indoors with folks for whom you know the status (+/-) just think. Helpful discussion about vaccines right here
May 12, 2021 • 7 tweets • 2 min read
So there's thus thing called a gas pipeline which is operated with digital software that should have been upgraded years ago and regularly maintained but somehow infrastructure hasn't been a funding priority. Now the pipeline (that everyone knew was vulnerable) has been hacked by criminals and the fix that should have been in long ago has to be built as a workaround.
May 12, 2021 • 4 tweets • 2 min read
What HBO’s ‘Crime of the Century’ Doesn’t Tell You disq.us/t/3wuapcq We do what we can. Shamefully, no benefit will accrue to patients from the marketing of this litigation - no better understanding of pain, its' victims, the history of attempts to treat the sickest of all, no improvements to access, no breakthroughs.
Nov 10, 2020 • 9 tweets • 3 min read
1/
 Community physicians...
Do you know how to code your medical records to support complex chronic care cases?
Do you know how to assess for Palliative (not hospice) care?
effectivehealthcare.ahrq.gov/products/palli… 2/ effectivehealthcare.ahrq.gov/products/palli…

Palliative care: Care that provides relief from pain and other symptoms, supports quality of life, and is focused on patients with serious advanced illness and their families.
Nov 9, 2020 • 5 tweets • 2 min read
We have a pain crisis rolling out across the nation for gravely injured folks with centralized pain due to multiple chronic conditions. While exempted from CDC Guidelines 2016, and in many cases, state regulations due to palliative care, fear of DEA is getting in the way of Rxng. We're stranding folks without a life raft and causing unnecessary suffering and increased disability. In the last 24 hrs I have fielded 4 calls regarding patient abandonment and suicide from 3 states.
We need an immediate intervention from #CMS and #CDC.
Nov 7, 2020 • 4 tweets • 1 min read
Representative government is important. Building inclusive participation that includes rural and urban voices, young & old, & membership across diverse groups will be important for redirecting this nation. I'll say again, this was a referendum on leaving rural Americans behind. This is my favorite election photo. The Navajo nation experienced more COVID19 deaths than any other subgroup of our population. The Trump admin ignored them. They organized to vote early by horseback. Image
Nov 7, 2020 • 4 tweets • 2 min read
In this election, while white people whined and cried about being robbed, persons of color got down to business and turned out their communities.
Black lives matter a lot to the results, outcome.
#PeacefulProtest Correction.
Americans of color.
Engaged citizens reclaiming their futures.
Jul 30, 2020 • 18 tweets • 4 min read
Pharmacogenetic analysis.
What does it look like?
If you are a patient or a prescriber, you have tools to help you make decisions and these tools should be used for folks with multiple, complex chronic conditions that generate pain, psychological distress, anxiety, depression. Normal response to NSAIDS. Gabapentinoids are processed through the kidneys (N/A)
Jun 28, 2020 • 5 tweets • 3 min read
@speakingabtpain @BethDarnall @StefanKertesz @CarlynZwaren @ADAWnews @ZachWritesStuff @LeoBeletsky @SubstanceAbuseJ
A critical content analysis of media reporting on opioids: The social ... sciencedirect.com/science/articl… What fuels public policy? Rhetoric.
It sure as hell isn't data - cause there isn't any.
Jun 23, 2020 • 7 tweets • 2 min read
CMS OPIOID GUIDANCE & RESOURCES FOR CONTRACTORS cms.gov/About-CMS/Stor… CMS OPIOID TAPER GUIDANCE
cms.gov/About-CMS/Stor…
Jun 4, 2020 • 6 tweets • 2 min read
I can think of very few reasons to place chronically ill people into electronic handcuffs because of their diagnosis and care needs. Can you?
fullpower.com/news/wp-conten… This is extreme and extremely invasive. ImageImage