#PainAwarenessMonth
My kids have #hereditarypancreatitis. The pancreas can weak havoc on ones body; nausea, malabsorption,vitamin deficiency and #pain; horrible pain. The option we were given was 2 remove #pancreas, spleen, half the stomach & other ‘parts’ to 1/
ensure that there 75% of developing #pancreascancer did not occur & that it would address their pain. It did not. They both came out with multiple complications. While this transplant CAN produce good outcomes there are a number, such as my kids left with #pain 2/
and multiple life issues. Many have been abandoned by the hospital that did the transplant & are having to navigate the system to figure out care. When you have no #pancreas, no spleen, only half a stomach constant #pain, malabsorption & an entire host of issues 3/
many physicians do not want to ‘touch’ you particularly when many of these kids have PTSD due to their experiences. It’s crucial to have a #physician that develops a relationship & is willing to listen, to hear. For many of these kids (and adults) takes to long 4/
to find this. Healthcare is not interested in those who have #chronicpain or #complexillnesses we take ‘too much time’, we come with baggage from other #physicians BUT we deserve care; compassionate and competent care. 5/
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