Robert Saunders (aka McMullen) Profile picture
Author of "stranger and stranger," letter writer, advocate and fundraiser for biomedical ME research.

Nov 11, 2020, 6 tweets

1) Virtual conference on Supporting Patients Living with #longCovid: healthcareconferencesuk.co.uk/conferences-ma…

Wed 9 December

Speakers include: Dr Clare Gerada, Prof Lynne Turner-Stokes and Professor Trudie Chalder. All prominent advocates of graded exercise therapy (GET) and CBT for ME/CFS.

2) The new NICE draft Guideline on ME/CFS states that patients should not be given GET or CBT as a treatment: nice.org.uk/guidance/GID-N…

#LongHaulers may question whether those who have promoted these treatments for ME should be advising on #LongCovid.

3) Highly recommended reading for anyone with #LongCovid – and anyone with an interest in standards in clinical research.

4) KCL interview with Prof Chalder (a #PACEtrial author) on #LongCovid:

5) Dr Gerada’s promoting graded exercise therapy for ME/CFS (based on a model developed by her husband):

6) Slide from a talk by Prof Tuner-Stokes in which she lists the “secondary gains” of being chronically unwell:

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