Discover and read the best of Twitter Threads about #longCovid

Most recents (24)

Erinnert Ihr Euch noch, als Frau Brinkmann erzählt hat, dass nur Virologen etwas zur Pandemiebekämpfung sagen können? Nun, die Charité sieht das mit dem "Schuster bleib bei Deinen Leisten" selbst nicht so eng.

Da machen Mediziner empirische Sozialforschung.
medrxiv.org/content/10.110… Das geht ja auch heute durch die Medien. Nun, selbst dem Laien fallen folgende handwerkliche Probleme auf:
(1) Sample Selection: Der Fragebogen wurde über die Gewerkschaften und deren Agitationsplattform news4teachers verteilt.
Ist das ein irgendwie repräsentatives Sample? Ist es auch nur nicht mit Self-Selection gebeutelt? Nein. Image
Read 11 tweets
1/11This is the bizarre thing @joanna_brady ….

@UsforThemUK are repeatedly heard saying “NO” to ANY form of protection from #COVID19, a virus that we know can cause significant morbidity & mortality in both adults & children.

But they NEVER offer any practical solutions.
2/ Obvs it’s good news that serious illness/death in children from #COVID19 is rare, but there’s no good way to predict which 1 in roughly 10 children’ll be left w/ long term debilitating symptoms, so letting them be so CRUELLY EXPOSED every day they’re @ school is NEGLIGENT!
3/ Negligent, cruel, unnecessary, unconscionable, wicked, brutal, reckless, unforgivable…..
Read 12 tweets
1/10 How fortunate to have both @lensiseethrough & @JuliaHB1 in one place together!

Molly, Julia & @UsforThemUK - Let’s put the physical risks of #COVID19 & #LongCovid to individual children & adolescents to one side for a moment.
2/ And let’s also ignore the devastating effect on any child, of a close family member having serious #COVID19, #LongCovid or dying from #COVID.
3/ And for completeness let’s just forget that EVERY SINGLE ONE OF US wants to “get back to normal” & for the final restrictions to be safely eased…..

LET’S FOCUS SOLELY ON EDUCATION!
Read 10 tweets
Da kommt ein riesiges Problem auf uns zu. #LongCovid und #LongCovidKids ist real und leider keine Seltenheit. Kinder und Jugendliche sind einer erheblichen Gefahr ausgesetzt, wenn sie an #COVID19 erkranken. Die Berichte aus UK sind äußerst alarmierend! 1/x
manchestereveningnews.co.uk/news/greater-m…
„Susannah's experience is borne out by the latest ONS statistics, which state 13 per cent of under-11s and nearly 15 per cent of 12- to 16-year-olds are reporting at least one symptom five weeks after being infected with Covid-19.“ 2/x
Immer wieder wird die dürre „Datenlage“ als Begründung angeführt, keine Impfung für Kinder zu empfehlen. Ich habe den Eindruck, den riesigen rosa Elefanten mitten im Raum wollen viele einfach nicht sehen. 3/x
Read 7 tweets
1/9 Dear @adilray, you & @susannareid100 are 2 of few presenters prepared fo challenge government rhetoric.

Can you ask @MattHancock why, in the face of ⬆️cases & hospitalisations of the #DeltaVariant, schools have virtually no mitigations to ⬇️transmission of an #airborne🦠?
2/ Children account for a significant proportion of ⬆️cases (10,000+ today) & can transmit #COVID19 to their families.

A worrying number of children have got #LongCovid (maybe 10%) & campaigners are trying to prevent them being vaccinated.
CV/CEV kids are a particular concern.
3/ There are several weeks of term left & ⬆️numbers of schools have outbreaks, risking not only the health of pupils, staff & families but also MORE EDUCATIONAL DISRUPTION.

WHY are the lives of CHILDREN being dismissed so callously?

WHY is NOTHING being done to protect them?
Read 9 tweets
Le 3 juin, l’asso @apresj20 lançait un grand appel aux dons en faveur du financement de la recherche pour le #CovidLong.
Grâce à vous, plus de 7 500 € ont été récoltés à ce jour. Pour en savoir plus, voici un petit résumé de nos actions sur ce financement #ApresJ20⬇️
#LongCovid Image
Les fonds, recueillis lors de cette journée, permettent de participer au financement des projets NEUROCOVID et COCOLATE 2. Par ailleurs, ils nous donnent plus de légitimité pour négocier auprès d'acteurs publics et privés le financement intégral. #UnDonpourleCovidLong
Ces actions s’inscrivent dans le cadre de l'un de nos objectifs, à savoir le soutien de la recherche. Rappelez-vous, fin mai nous nous étions déjà engagés à contribuer au financement du projet #Neurocovid, initié par la Pr. Dominique Salmon-Ceron, à hauteur de 10 000 euros.
Read 7 tweets
1/🧵How do we overcome #vaccination hesitancy?
 
#COVID19 ICU pts & #LongCOVID survivors tell me they wanted to get #Vaccinated but had immense pressure from family/friends NOT to…All but 1 said, “I should have protected myself & stayed safe.”

What’s our best approach? Read👇
2/ A significant portion of Skilled Nursing Facility (SNF) Staff remain #unvaccinated. Early data: bit.ly/3gOdSLi. Reasons include mistrust of govt & big pharma, potential side effects, and racism. Staff’s close contact w pts makes it essential to study their reasoning.
3/ N=193 staff from 63 Skilled Nursing Facilities (SNFs) were studied. The best way to overcome misinformation on #Vaccination from social media is to model specific scenarios & prepare positive approaches, NOT guilt or shaming. Let’s look at specifics…

bit.ly/2UmoOYX
Read 9 tweets
New outbreak in 44 kids at a middle school in Israel 🇮🇱 with #DeltaVariant, the second such outbreak at a school this week—both Delta. Several fully vaccinated adults also infected at school. 🇮🇱 also recently stop requiring #COVID19 tests upon arrival. 🧵
timesofisrael.com/in-2nd-israeli… Image
2) Israel just approved vaccines for kids 12-15 in early June so kids under 16 haven’t been fully vaccinated yet. But even if fully vaccinated, while lower risk, #DeltaVariant is still problematic.
3) for those who try to say / claim that kids don’t get sick… 1% hospitalization among kids in UK during #DeltaVariant era is too damn high. Would you roll the dice with 1% hospitalization risk for your kids?
Read 17 tweets
HUGE: A new Covid study suggests a direct impact of Covid on the brain.

The study is the first to compare brain scans pre/post Covid. It affected people with even a mild case, so please read and share if you know someone who's had it. (thread)
NEW: Covid could potentially change the physical structure of the brain.

A new study found shrinkage in several brain areas like the limbic cortex, hippocampus & temporal lobe. These regions are mainly responsible for smell/taste, memory & emotion.
This should be a warning: Brain changes were found in people with MILD illness who were not hospitalized for Covid.

This new study gets us one step closer to understanding the pathogenesis of the neurological features of #LongCovid and what this could mean for our patients.
Read 5 tweets
How many #COVID19 #covidlong #LongCovid long-haulers (former or current) have taken flush niacin in combo with fluvoxamine?
This is why an approximately 1-week low dosing of SSRI (prevents tryptophan from depleting to serotonin) in combo with flush niacin (prevents tryptophan from depleting to NAD+) should do wonders.
Read 8 tweets
“...first longitudinal imaging study in #COVID19 where patients initially scanned before contracted the disease.” An incredibly important @uk_biobank study… 'Brain imaging before and after COVID-19 in UK Biobank’ by an esteemed group. medrxiv.org/content/10.110… @medrxivpreprint
@uk_biobank @medrxivpreprint "significant, deleterious impact of COVID-19 on olfactory & gustatory cortical systems, w/more pronounced reduction of grey matter thickness & volume in L parahippocampal gyrus, L superior (dorsal) insula andL lateral orbitofrontal cortex in COVID patients.” #LongCovid
@uk_biobank @medrxivpreprint Here is the kicker… of the people w/COVID for whom there are records, very few had been hospitalized. These brain effects occurred largely in largely in people not sick enough to be hospitalized. Time to re-think how benign this is in people w/o severe symptoms. Time will tell.
Read 12 tweets
@Christo94242191 @Pneumologiker Orientierung ist ein gutes Thema: SIE orientieren sich an Mortalität - dabei sollte man mittlerweile mitbekommen haben, dass es im Fall von Covid-19 um Morbidität geht. Es ist ein neurotroper Virus, ergo einer, der das zentrale Nervensystem angreift. ACE2-Rezeptoren, an denen 1/x
@Christo94242191 @Pneumologiker er andockt, befinden sich überall im Körper. Man weiß 2021, dass der Virus die Zellen schon beim Andocken beschädigt. SARS-CoV2 hat, Stand jetzt, wie viele unterschiedliche Krankheitsbilder? 200, 300? Von Hautausschlägen über Anosmie, Organschäden selbst bei milden Verläufen 2/x
@Christo94242191 @Pneumologiker (Überraschung, überall dort, wo man die Rezeptoren findet, Herz, Lunge, Nieren, Bauchspeicheldrüse usw.), Hirnschäden (gerade eben bestätigende Studien erschienen, China und Freiburg, aus 2020 gibt es ebenfalls Studien: Gehirne weisen u. a. enormes Entzündungsgeschehen auf 3/x
Read 8 tweets
Exciting news for LONG HAULERS: Doctors Marik, Kory, Been, Yo, Patterson & Peers have collaborated & the FLCCC has released their Long Haul C-19 Protocol called "I-Recover"
👉Full 3-pg PDF: covid19criticalcare.com/wp-content/upl…
#longhaulers #LongCovid #longhauler #FLCCC #covidlong #irecover
👆👆 To the amazing doctors that made this long hauler protocol available to heal and help so many patients, THANK YOU!! @PaulMarik @PierreKory @drbeen_medical @YoDoctorYo @brucep13 @DrTinaPeers We are so thankful for your collaboration and time poured into this! 🙏🙏🙌🙌
👆👆Go Follow!!

New FLCCC Telegram Channel:
👉 t.me/FLCCC_Alliance
FLCCC Chat Group on Telegram:
👉 t.me/joinchat/Bg3BV…

Other Early Treatment: Telegram:
C-19 Expert Panel: Dr. Peter McCullough Channel 👉 t.me/C19ExpertChann…
BIRD Group 👉 t.me/bird_group
Read 4 tweets
DIFFERENT SYMPTOMS—‘Loss of smell’ is no longer a top 10 symptom of the new #DeltaVariant. A headache, sore throat & runny nose are now the most common. New study says catching Delta #COVID19 can feel different— "more like a bad cold" for younger people.🧵
bbc.com/news/health-57…
2) Since the start of May, we have been looking at the top symptoms in the app users - and they are not the same as they were," he says.
The change appears linked to the rise in the Delta variant, first identified in India and now accounting for 90% of Covid cases in the UK.
3) Fever remains quite common but loss of smell no longer appears in the top 10 symptoms, Prof Spector says.

"This variant seems to be working slightly differently," he says.
Read 11 tweets
In a meeting I watched today, microglia priming was mentioned in #LongCovid and #ME/CFS. It’s important to clarify what “microglia priming” means. Microglial priming does not mean that after a trigger has “cleared” microglia remain perpetually activated
2/ Instead, microglia priming goes like this 👉 When microglia or other glial cells detect #infection, injury, or inflammatory mediators, they enter a state of activation in which they change morphology and release their own neuroexcitatory inflammatory mediators
3/ Then, after activating, they retain a “primed” functional state which causes an even more robust response to *subsequent* infectious/immune/#inflammatory challenges. And as cells, microglia live long lives (they are not replaced as often as many other cell types)
Read 13 tweets
On those who participated in the survey on the clinical case definition - Patient AND Researcher is a new category (requested by @Dr2NisreenAlwan and yours truly) :)

2/
The parts of the clinical case definition that have reached consensus:

3/
Read 23 tweets
The CDC guidelines for #LongCOVID are out!!!

@itsbodypolitic and @patientled worked together to give feedback on these and it's really emotional to see our research, including the first report we did back in April 2020, cited here. 1/

cdc.gov/coronavirus/20…
It's going to take a while to go through & see what ended up in here, but a few things stand out to me that we pushed hard for:

A) The inclusion of a comprehensive symptom list, including PEM (and a definition for PEM!) and lesser-discussed but common symptoms. 2/
B) Instructions not to use lab confirmation: "Objective laboratory/imaging findings shouldn't be used as the only assessment of a patient’s well-being; lack of laboratory/imaging abnormalities does not invalidate the existence, severity, or importance of a patient’s symptoms." 3/
Read 6 tweets
1/🧵 🎥
This week I met an extraordinary #COVID19 survivor who lost both hands, both feet & the tip of her tongue. @ccquad was featured on BBC as WINNER of the Queen’s MBE (Member of British Empire) award. Listen to her #Wisdom & teaching point on #Vaccination.

#LongCOVID
2/ @ccquad reached out to my #COVID patient, Autumn, who is now also losing her hands + feet & keeps asking me to share her story so all can learn. She went completely deaf as part of her viral sepsis & blood clotting. Her hearing is back & she’s getting koala prosthetics…🎥
3/ Watching these 2 powerful women meet and share their drive & passion is a major gift to me. They define #resilience. Rebooting life & finding the best way forward regardless of obstacles. Here is what Autumn told @ccquad… “I live freely. I live one day at a time…” Image
Read 6 tweets
1/🧵 I’d like to think as a medical community that we have changed & no longer discharge people w/out appropriate follow-up, but just last week I met a #COVID19 survivor who was discharged from the ICU simply to follow up w his primary care physician.

#LongCOVID #PICS #A2FBundle
2/ He couldn’t return to his job, was fired & had no income for his family. That resulted in him not having enough money for medications, gas, or bills. He missed his doctor’s appointment, his electricity was turned off, so he is unable to apply online for disability. 😤
3/ The cycle continues. I usually see these pts when they get septic again & end up back in my ICU on life support.
Read 4 tweets
1/11 Just for 1 minute, put acute #COVID & #LongCovid to one side.

How exactly do those in the #DfE, #UsForThem, #CRG & the #HartGroup intend to protect children from more educational disruption w/ a highly contagious virus whirling its way through schools across the UK?

How?
2/The ongoing educational damage done by CHOOSING NOT to adequately & effectively mitigate for an #airborne virus w/in UK schools (English esp) was completely avoidable.

IT WAS (& CONTINUES TO BE) A CHOICE, sanctioned by Gvmt AND a mostly complicit media.
3/ Our political leaders chose to follow a THEORETICAL #HerdImmunity “strategy” with a novel virus which RELIED ON unmitigated spread within young, fit parts of society & FACTORED IN that sadly some of those would also become seriously ill or die.
Read 12 tweets
Applies as prophylactic and pretty much overnight recovery for acute #COVID19 too
#epitwitter and #medtwitter will of course ignore
Read 4 tweets
While watching⚽️ my boys alerted me to this story which I missed at the time. Super fit young men motivated to go back to normal asap getting #LongCovid. Tell that to those claiming that LC is mainly in the head of middle-aged women who want to feel sick🙄 eurosport.com/football/premi…
Here’s another one:

bbc.com/sport/badminto…
Read 12 tweets
Eine guter Artikel, der das "Dilemma" der Kinderimpfung & die Entscheidung der Stiko gut erläutert. Interessant wird wohl auch Schutzwirkung zu #MISC / #PIMS sowie #Longcovid #SARSCoV2 #COVID19 zeit.de/gesundheit/zei… via @zeitonline
Dies ist in den vorliegenden Studien noch nicht untersucht. Ergänzen kann man die Diskussion noch um einen weiteren Aspekt: Auch ohne Impfung kann man weiterhin durch Schutzmaßnahmen Infektionen verhindern & ⬆️ Durchimpfung bei den Erwachsenen kann Gesamtzirkulation bei allen ⬇️
Ich wünsche mir, dass das Thema Impfung & Kinder nicht genauso politisiert wird wie im letzten Jahr die Rolle der Kinder in der Pandemie. Dies hilft niemandem. Kinder & Junge haben schon genug Opfer gebracht in der Pandemie & verdienen beides: Infektionsschutz & Förderung
Read 6 tweets
@BrodinPetter My son is 15. Barely missed a day of school until this year. He got Covid in January. He attended just 3 days and has failed more than half his subjects - he'd never failed before.

His doctor diagnosed him with #Longcovid, the children's clinic refused to even accept him.
>
@BrodinPetter Saying they couldn't help him. She tried the adult respiratory clinic. Too you, they wouldn't accept him. She resent a referral to the children's clinic, but *didn't* mention long covid. 6 weeks ago they acknowledged they'd received the request. Nothing since.
>
@BrodinPetter He was infected by a presymptomatic 10 yr old boy.

This reality happened despite us being assured that children don't transmit, children don't get sick, asymptomatic transmission is rare.

Reality says otherwise.
>
Read 10 tweets

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