COVID-19 Longhauler Advocacy Project Profile picture
A U.S. based grassroots, patient-led, all-volunteer 501(c)(3) nonprofit organization advancing the understanding of & expediting solutions for #LongCOVID. #FBLC

Aug 1, 2022, 15 tweets

The U.S. Department of Labor is asking YOU the important questions!

Please Vote For Us & Our Recommendations!
longhauler-advocacy.org/c-19lap-recomm…

Recommendations put forward for the #LongCOVID community came from your participation over the last 2.5 years! Please help elevate those needs!

You do need to register to vote which you can do here
longcovidatwork.ideascale.com/a/register

We have put together a video " C-19LAP: Navigating the Department of Labor (DOL) Long COVID Online Dialogue" which you can also find here!

If you feel @C19LH_Advocacy should be involved in informing stakeholders,we need you to go vote for us! Unfortunately, votes will be considered, and we do want to ensure we have a seat at the table to advocate for you! bit.ly/C19LAPDOL1

The @C19LH_Advocacy ensures comprehensive advocacy for the #LongCOVID community, which means acknowledging all of it's associated conditions & building partnerships with those orgs, researchers, physicians & communities to ensure we work collaboratively. bit.ly/C19LAPDOL2

The level of disability seen in Long COVID & Associated Conditions (LCAC) is largely underestimated & we see a misguided focus on workplace retention, when many are well past that threshold, & it is not being recognized or planned for accordingly. bit.ly/C19LAPDOL3

Capturing dynamic disability is essential for all forms of assistance. A large portion of the #LongCOVID community & those with its associated conditions suffer from dynamic disabilities. It is time to recognize & implement help for this population. bit.ly/C19LAPDOL4

@C19LH_Advocacy data shows nearly 30% of #Longhaulers are #Firstresponders, #HealthcareWorkers, & #Educators. They're being failed by workers comp & turned away from care & pay. These aren't your typical "replaceable" jobs & are in already stressed fields. bit.ly/C19LAPDOL5

#BIPOC communities, single parents & caretakers, pediatrics & independent contractors are only some of the communities overlooked in data collection & planning. We have 9 special pop's chapters that help us better understand some of the issues faced. bit.ly/C19LAPDOL6

There is NO EXCUSE as to why we do not yet have National Public Education & Awareness Campaigns on #LongCOVID at 2.5 years into the pandemic. As we have before, we're calling for accurate, national, commercials, billboards, ads & more to educate the public bit.ly/C19LAPDOL7

Employers should implement long-term employee safety policies. Investing in the long-term health of employees is in the best interest of the employer & the employee. We lay out a comprehensive approach of what that may look like. bit.ly/C19LAPDOL8

A National Dashboard to report non-compliance & submit evals would help inform guidance. Many employees do not feel safe asking for revisions to accommodations, making complaints about coordinators, nor do they have time to wait for EEOC responses. bit.ly/C19LAPDOL9

Many #Longhaulers are now about to lose their licenses & certifications due to being out of work & unable to physically obtain them. Employers can help employeers by supporting legislation that supports our shared goals & offering other help to employees. bit.ly/C19LAPDOL10

Register longcovidatwork.ideascale.com/a/register & then follow the steps below, or watch the video

Vote
longhauler-advocacy.org/c-19lap-recomm…

We hope that we have captured the communities needs in our recommendations! Thank you for your support- @C19LH_Advocacy Leadership

Motivated to get more involved in issues like these & more?

JOIN OUR ADVOCACY TEAMS!

docs.google.com/forms/d/e/1FAI…

If you don’t vote, these ideas don’t make it onto the list.

Only ideas w/ the most votes will be considered from what we gathered, so please don’t just like this post, VOTE 🗳 ❗️

We recognize this takes some time & love but we have days to make a lifetime impression on policy!

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