EDS SYMPTOMS: This classification of symptoms is interesting information if one is needing a collection of random symptoms for billing purposes. However, one effect might be to stop there and neglect to determine underlying etiologies.
For example, fatigue is likely due to non-restorative sleep, which is measurable with a sleep study. I haven’t seen this done. Chronic pain likely induces non-restorative sleep, & Cannabis &/or Opiates might benefit sleep, proving this hypothesis. I haven’t seen such s study.
Depression is likely due to non-restorative sleep & daytime fatigue. Perhaps daytime naps in a flotation chamber, which has seemed to temporarily reduce pain, might benefit pain, fatigue, & depression. Depression is measurable by statistically coherent questionnaires.
Pain likely due to chronic widespread soft tissue (muscle, tendon, ligament) spasm. Muscle spasm measurable with surface electromyography (SEMG). Topical Cannabis preparations/massage reduce muscle spasm & SEMG could prove efficacy. Pain scores with the VAS are scientific.
Pain when upright is likely due to weakened spastic soft tissues that support body tower; due to low Vitamin D & disuse due to sedentariness & invalidism. Full spectrum light, sunbathing, & aquatherapy might reverse this. Again SEMG could measure change.
After aquatherapy has kickstarted strength of the upright body tower, walking can magnify resiliency of the upright tower. Duration of walking is measurable. The point is that symptoms are not the causes.
Even a goniometer might be used to detect reduced joint subluxation as muscle groups are stiffened by exercise. Introducing therapies that are measurable & which demonstrate improvement enables clinicians to deduce the multiple causes of symptom patterns of EDS & Fibromyalgia.
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