I've kept quiet about this, but now ready to announce: I'm running a Health Developer Conference alongside the REWIRED @DHRewired conf - a hands-on, practical health tech conference inspired by, er, 'non-health' tech conferences. Talk is cheap - show me the code.
@DHRewired Lineup so far is looking pretty good! So far we have talks and workshops from:
As you all know I'm not one for being overly critical of drivel. But I'm going to make an exception and challenge every inaccuracy in this (well-meaning) article. (thread)
With all due apology to Martha Gill of the Observer who wrote it. I do think there is some good intention here, but the problem is that: Healthcare is complex. Technology is complex. Healthcare technology is very complex. Trying to simplify it leads to utter bollocks.
"A unified database could be a medical gamechanger"
Well, that's very debatable in itself, but let me spell this out:
The NHS Federated Data Platform will not be a unified data platform.
I'm sure well-intentioned @CamCavendish but this piece completely mashes up #datasharing for #DirectCare of a patient and data sharing for #ResearchAndPlanning, and other 'secondary uses'. These are VERY different in legal basis, IT systems, and privacy.
It's complex and it doesn't make for punchy articles, but it's very important that we are totally clear about the distinction between Direct Care and Planning/Research.
At present, data sharing for Direct Care STILL lags significantly behind data sharing for secondary uses
Because they are built on totally different technologies, progress towards Research and Planning uses of #GPData doesn't advance the cause for Direct Care one iota.
Which is why it's so important the distinction is made and understood. Conflating the issues is counterproductive.
It really feels like we're in the grip of #NHSdataFEVER...
What's going on?
In last few weeks:
#GPDPR - a huge change in how data that your GP saves in your personal GP record gets shared with the Government. The #DPIA (Data Privacy Impact Assessment) still awaited
#TIGRR - a bonkers, breathless AI-centric libertarian wish-list of data deregulation including abolition of some Articles from our own #GDPR laws (NOT EU law, it's UK law)
Tomorrow there will be a new NHS Data Strategy - which conflates many different uses of data to try to send a ALL DATA GOOD MOAR PLEASE message without any real clarity of thought.
@NHSEngland today ran a webinar in which it was claimed that the @PalantirTech#Palantir#Foundry data platform used for the COVID-19 Data Store was "a contract awarded in open competition".
This contract had to be obtained by @openDemocracy through legal action.
If the contract itself was kept secret, it is hard to see how the contract could have been awarded in "open competition using normal procurement rules"
RFC: Baw's Unofficial DRAFT standards for "NHS Prescribable Apps":
(I was asked for an opinion by email but thought worth sharing here)
1) App code must be released as open source (and thereby low cost and openly auditable for clinical safety and what data is stored
2) Apps must be developed by the NHS, for the NHS, using in-house technical talent.
3) Apps should gather the absolute minimum of data, and have an absolute ban on 'surprising' T&Cs or unexpected data gathering.
4) App must be fully owned and operated by NHS organisations on a non-profit basis (eg cost recovery only) These need to be seen like the 'generic drugs' of the NHS clinical app world. Safe, understood, cheap, and reliably available.
I'm calling 'bullshit' on the whole Consultancy scam. @NHSX have commissioned @kscopehealth to help them produce a Digital Clinical Safety Strategy.
Consultancy takes cash, then go and ask dozens of actual (unpaid) experts.
So the Strategy will actually have been written by unpaid NHS safety and other clinical experts, but a private company pockets a wedge of cash for organising a few Teams calls.
On today's call they had us writing our responses in the Teams chat to make their job even easier.
@NHSX seems to be a machine for recruiting for highly paid Director of <NOUN> posts, and then outsourcing the thing that Director is supposed to have expertise in to an outside company.