Marcus Baw Profile picture
UK | NHS General Hacktitioner | Challenging Incompetence in NHS IT & Government | #OpenSource all the way through | #Ruby #Python #GrowthCharts #Discourse
May 26 18 tweets 13 min read
I'm sure well-intentioned @CamCavendish but this piece completely mashes up #datasharing for #DirectCare of a patient and data sharing for #ResearchAndPlanning, and other 'secondary uses'. These are VERY different in legal basis, IT systems, and privacy.

ft.com/content/dc01b3… It's complex and it doesn't make for punchy articles, but it's very important that we are totally clear about the distinction between Direct Care and Planning/Research.

At present, data sharing for Direct Care STILL lags significantly behind data sharing for secondary uses
Jun 21, 2021 8 tweets 3 min read
It really feels like we're in the grip of #NHSdataFEVER...
What's going on?

In last few weeks:

#GPDPR - a huge change in how data that your GP saves in your personal GP record gets shared with the Government. The #DPIA (Data Privacy Impact Assessment) still awaited #TIGRR - a bonkers, breathless AI-centric libertarian wish-list of data deregulation including abolition of some Articles from our own #GDPR laws (NOT EU law, it's UK law)
Jun 16, 2021 20 tweets 13 min read
@NHSEngland today ran a webinar in which it was claimed that the @PalantirTech #Palantir #Foundry data platform used for the COVID-19 Data Store was "a contract awarded in open competition".

This contract had to be obtained by @openDemocracy through legal action. If the contract itself was kept secret, it is hard to see how the contract could have been awarded in "open competition using normal procurement rules"

opendemocracy.net/en/ournhs/weve…
Jun 15, 2021 8 tweets 1 min read
RFC: Baw's Unofficial DRAFT standards for "NHS Prescribable Apps":

(I was asked for an opinion by email but thought worth sharing here)

1) App code must be released as open source (and thereby low cost and openly auditable for clinical safety and what data is stored 2) Apps must be developed by the NHS, for the NHS, using in-house technical talent.

3) Apps should gather the absolute minimum of data, and have an absolute ban on 'surprising' T&Cs or unexpected data gathering.
May 28, 2021 10 tweets 4 min read
OK, I'm sorry. (I'm not) but BULL SHIT.

I'm calling 'bullshit' on the whole Consultancy scam. @NHSX have commissioned @kscopehealth to help them produce a Digital Clinical Safety Strategy.

Consultancy takes cash, then go and ask dozens of actual (unpaid) experts. So the Strategy will actually have been written by unpaid NHS safety and other clinical experts, but a private company pockets a wedge of cash for organising a few Teams calls.

On today's call they had us writing our responses in the Teams chat to make their job even easier.
Mar 26, 2021 8 tweets 1 min read
NHS tectonic/vulcanology update:

Just when NHSX was all settled in and progress was starting to happen... No eruptions for years... New NHSE Transformation Directorate pops up like a shiny new Icelandic archipelago ...clouds of ash will obscure a clear view of anything for years. Progress will be impeded while locals move their goats away from the lava flows
Sep 24, 2020 4 tweets 3 min read
Aha! I think I've finally worked out how the NHS Brand Police decide on who to pursue legally for use of the NHS brand....

If they're profiting hugely from your association with the NHS: Don't Pursue

If they're acting in good faith to provide a free good for the NHS: ATTACK!!! @robdykedotcom @carebuntu

play.google.com/store/apps/det…
Feb 17, 2020 5 tweets 3 min read
Follow the #Rewired20 hashtag for updates on the Digital Health Rewired Conference, where we're running what we think is the first (or one of the first) Developer Conferences specifically aimed at Health Tech digitalhealthrewired.com/digital-health… Among our great line-up we have the #NHSLogin team, demoing how you can integrate NHS Login into your patient-facing apps, for verified patient identity. Real APIs, demoed and taught to you by the team that made them.
Jan 20, 2020 8 tweets 21 min read
I've kept quiet about this, but now ready to announce: I'm running a Health Developer Conference alongside the REWIRED @DHRewired conf - a hands-on, practical health tech conference inspired by, er, 'non-health' tech conferences. Talk is cheap - show me the code. @DHRewired Lineup so far is looking pretty good! So far we have talks and workshops from:

* @ianmcnicoll from @openEHR
* Kev Mayfield on FHIR
* The NHS Frontend team on their NHS UI kit
* NHS Login
* NHS App
* @drdavepao from @RCA on Medical UX
* @rtweed from @RippleOSI on QEWD.js

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