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Comment minimiser les rechutes induites par les activités physiques et cognitives ?

Quelques conseils essentiels pour gérer vos activités selon votre énergie disponible (pacing) & sur le repos ⬇️

drive.google.com/file/d/17XY5dL… (2 pages)
Ces recommandations concernent l’encéphalomyélite myalgique (« syndrome de fatigue chronique »), qui est caractérisée par le malaise post-effort (MPE).

Elles peuvent aussi aider à récupérer de la fatigue post-virale, avec ou sans MPE.

Infos sur l’EM ⬇️
https://t.co/hr7ZmqbGG8
Merci à @EmergeAus pour ce guide. Version originelle en anglais : emerge.org.au/Handlers/Downl…
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Millions Missing France
@MillionsMissgFr
#aprèsJ20 @apresj20 #aprèsJ60 #aprèsJ90 #aprèsJ120

Le syndrome de fatigue chronique, ou encéphalomyélite myalgique (EM), séquelle possible du #COVID19 ?

⚠️ Beaucoup d'infos fausses & dangereuses circulent

Nous sommes une asso de patients d'EM. On vous explique ce que c'est 👇
➡️ Comment apparaît l'EM / SFC ?

Dans ~70% des cas, l'EM suit une infection virale. Elle débute d'abord par un syndrome de fatigue post-virale (SFPV).

Si le SFPV persiste *6+ mois*, un diagnostic d'EM s'envisage. Pas avant : parfois, il faut "juste" du temps pour s'en remettre.
➡️ Symptômes de l'EM (1)

Un épuisement post-infectieux invalidant ?

Oui, mais *pas que* : LE symptôme qui définit l'EM, c'est le malaise post-effort (MPE).

Il vient 12 à 48h, voire 72h, après une activité physique ou cognitive que vous pouviez faire sans problème auparavant.
Read 20 tweets
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Millions Missing France
@MillionsMissgFr
In face of the violent, unjustified attack against Norwegian ME patients in today's edition of Dagbladet, we would like to extend our full support to them & Norges ME-Forening.

No patient should ever be blamed for requiring safe treatments based on sound science.

@ME_Rogaland
Dagbladet ran a 12-page article titled "The ME war - noone has ever seen this before" which unilaterally promoted the views of psychologists that ME is all in the head, and that GET/CBT/LP are appropriate treatments for ME.

Both views have been refuted time and time again.
Studies on psychotherapies for ME have been plagued with methodological errors & patient reports of harm.

Meanwhile, biomedical research on ME consistently shows neurological, immunologic, metabolic & physiological impairments in patients affected by this debilitating disease.
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