1/ At least 250,000 people with chronic illnesses like #MECFS, #Fibromyalgia, #POTS and #EhlersDanlosSyndrome are currently denied thorough investigation and effective health care in the UK.
2/ This number has the potential to double after #COVID19 with many 'long-haul' patients experiencing persistent symptoms which often overlap with the abovementioned illnesses. #LongCovid
3/ More money must be invested in biomedical research into the causes and mechanisms of all chronic illness. Clearly #LongCovid gives researchers the ideal opportunity to study this, as it were, in real-time.
4/ The biopsychosocial model of health has had its day. It has held back our scientific understanding of complex diseases, and provided patients with little more than the tools to develop mindfulness and lifestyle tips.
5/ Health policy and medical education must change in a way that reflects the most up-to-date scientific understanding of these diseases. GPs must be able to order extensive testing and be free to explore different medical-based treatment options with each patient.
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🧵 PART 2: A selection of #MECFS and #LongCovid research papers published in 2025 contd:
26/ 'AI-driven multi-omics modeling of myalgic encephalomyelitis/chronic fatigue syndrome' nature.com/articles/s4159…
27/ 'Heightened innate immunity may trigger chronic inflammation, fatigue and post-exertional malaise in ME/CFS' medrxiv.org/content/10.110…
28/ 'Two neurocognitive domains identified for patients with myalgic encephalomyelitis/chronic fatigue syndrome and post-acute sequelae of COVID-19' frontiersin.org/journals/neuro…
🧵 A selection of #MECFS and #LongCovid research papers published in 2025:
1/ 'Abnormal T-Cell Activation And Cytotoxic T-Cell Frequency Discriminates Symptom Severity In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome' medrxiv.org/content/10.110…
2/ 'Re-visiting professional ethics in psychotherapy: reflections on the use of talking therapies as a supportive adjunct for ME/CFS and "medically unexplained symptoms" (MUS)' jme.bmj.com/content/early/…
3/ "ME/CFS is a diagnosable sequela that develops at an increased rate following SARS-CoV-2 infection." #MyalgicEncephalomyelitis #MECFS link.springer.com/article/10.100…
🧵 1/8 Continuing her impressive work with AI, @JennyWi04810918 asked ChatGPT to devise a treatment plan based on "all the confirmed published research that has been replicated in M.E., starting from 1955 to the present day." Here's what it came up with...
🧵1/11 Jenny Wilson (@JennyWi04810918) is obtaining some fascinating results using AI to interpret test results of anonymous, severely ill #MyalgicEncephalomyelitis patients who have been dismissed by their GP. In this case, Jenny didn't mention ME.
🧵 A selection of #MECFS and #LongCovid research papers published in 2024:
1/ 'Physical exertion worsens symptoms in patients with post-COVID condition : Post-exertional malaise in patients with post-COVID condition' scienceopen.com/hosted-documen…
3/ 'Dysregulation of extracellular vesicle protein cargo in female myalgic encephalomyelitis/chronic fatigue syndrome cases and sedentary controls in response to maximal exercise' isevjournals.onlinelibrary.wiley.com/doi/10.1002/je…