Thread by @s4me_info

Why are the #MECFS patient community concerned for #LongHaulers who might try to exercise themselves back to health?

Watch these two videos that look at the evidence against Graded Exercise Therapy for the often post-viral ME/CFS.

#LongCovid #PACEtrial

dialogues-mecfs.co.uk/films/graded-e…

Independent re-analysis of the the largest trial that claims benefits of GET and CBT.

"The modest treatment effects obtained on self-report measures in the PACE trial do not exceed what could be reasonably accounted for by participant reporting biases."

bmcpsychology.biomedcentral.com/articles/10.11…

A 2017 analysis of patient surveys by @keithgeraghty shows GET is rated negatively by the majority of patients (54%–74%), while pacing "is the most favoured treatment with the lowest negative response rate and the highest reported benefit (44%–82%)."

journals.sagepub.com/doi/10.1177/13…

A 2019 study by @b_m_hughes
& patient researchers found that NHS specialist clinics "were highly inconsistent in their approaches to the issue of treatment-related harm. They placed little or no focus on the potential for treatment-related harm"

journals.sagepub.com/doi/10.1177/13…

Our summary of the flaws of the "definitive" PACE trial of GET and CBT is a, relatively, short read.

"Contrary to the claims of the PACE researchers and their supporters, PACE’s results show that CBT and GET do not work for this disease."

s4me.info/threads/scienc…

And to end this somewhat unplanned thread, the work of Dr @davidtuller1 starts with an in depth look at PACE and its flaws, and has since gone on to cover the inadequacies of many behavioural studies in #MECFS and other related areas.

Where it began 👇
virology.ws/2015/10/21/tri…