Thread by @GeorgeJulian

Gather round twitter, I've not done a post like this for a while, but I'd like to introduce you to Jared.

Last week I spoke to Jared's mum, Vicky, and wanted to share some of what she told me, and let you know how you can help #JusticeforJaredB 1/29

Jared was Vicky's first born, arriving on 20 February 1994. Vicky was a young mum, only 19, but very excited for the future.

Jared was a perfect baby, he didn’t cry a lot, he slept and fed well, but at his 6mth check-up there was concern he wasn’t putting weight on. 2/

From that point on Jared received support. They had input from physiotherapists, occupational therapists and a speech therapist at their home, along with a brilliant community paediatric nurse. 3/

Jared started to receive overnight feeds from about 9mths. Everyone loved working with him, he was such a gorgeous boy and tried his hardest to do what was asked of him. When Jared was six, coming up to seven, his sister was born, and a few years later his brother arrived 4/

Jared loved being a big brother and had a very, very close bond with his little brother. They used to enjoy watching SpongeBob together, playing with lego and as they got a little older playing two player PlayStation games. 5/

Jared had an electric wheelchair and Jared's younger brother used to stand on the back of it as Jared left the house and went to the school bus each day. He’d spend the afternoon waiting for him to come home so they could do the same journey in reverse. 6/

Vicky and her daughter rode horses and Jared would go up to the stables with them occasionally, and he'd often be cold and end up wrapped up in lots of blankets 7/

Vicky was a single parent and didn’t have a lot of spare money, but they had a lot of love and a happy home and Jared had a great relationship with his grandparents. Jared was diagnosed with a metabolic disorder, and learning disabilities, and attended his local special school 8/

Jared didn’t let anything get in his way of having a good life though. He remained small throughout his life, but also had an enormous appetite, he’d eat everything and anything except apples, he drew the line at them, unless they were in a pie 9/

Jared lived at home with his mum, his sister and brother until he was 18. Like any family, they knew each other well, and supported each other. They were a close family unit. 10/

Without Vicky's knowledge, a social worker visited Jared at school when he turned 18 and conducted a Mental Capacity Assessment, which she has never seen.

This assessment deemed Jared to be capable of making his own decisions 11/

One day Jared left for school and asked a seemingly innocuous question, when was he going to Yew Trees again?

(The respite service Jared loved, they did lots of fun things they couldn't necessarily afford as a family, trips to the seaside, or the cinema, that sort of thing) 12/

Vicky didn't think anything of it.

Jared never came home from school that day.

Apparently Jared had mentioned at school he was unhappy at home, and because the social worker deemed him capable of making his own decisions, they were not returning him home. 13/

Jared went to Yew Trees to start with.

Vicky visited him and he talked about coming home.

Then there was a meeting called with lots of professionals present. At the meeting they said to Jared:

'You've a couple of choices.... 14/

'...you're old enough to make your own decisions, you can go home or go to somewhere like Yew Trees called Ability'.

Jared choose Ability. Vicky felt she had to support his decision, he was growing up, if that's what he wanted, who was she to stop him? 15/

Vicky was never asked to contribute to any handover, no-one asked her about Jared's like and dislikes, his medical condition or needs.

She felt like they didn't want her involved and the atmosphere was often difficult when she visited Jared 16/

Jared left school in June after he turned 19 and moved to a supported living bungalow the following September.

Vicky worked full time, and still had two children to support, but would visit Jared as often as she could on her days off and they'd go out and do things 17/

Vicky and Jared would visit Meadowhall Shopping Centre. She'd take him to get his hair cut, that sort of thing.

Jared started talking about wanting to come home, but Vicky felt certain it wouldn't happen because the care provider was being paid a lot to look after him 18/

The last time Vicky saw her son alive was Christmas 2014.

Jared had been at the centre of their family, safe and well and loved in their home for 18 years, and after less than two years in the ‘care’ of Ability, he was dead.

Vicky spoke to Jared on New Year’s Day 2015 19/

On Jan 4 2015 Vicky woke at 7am to a text message from a number she didn't know. The message, sent the night before around midnight, stated Jared had been taken poorly and was currently en route to A&E in an ambulance, and they'd ring her as soon as he arrived at the hospital 20/

No-one rang Vicky. There were no missed calls.

Alarmed she rang his carers to check if Jared was still in hospital. The phone was passed to the manager who informed her over the phone that Jared had died at 1am in hospital.

At this point he had been dead for 6 hours. 21/

No-one contacted Vicky. No-one gave her the chance to be with her son in the last moments of his life. She expressed how no parent should have that choice taken away from them. Nothing can ever prepare you for that pain 22/

Its now coming up to six years since Jared died and Vicky has fought tirelessly for answers about why her son died, suddenly, at the age of 20 with no life-limiting conditions 23/

Since Jared died they've learned he became unwell on Jan 2nd and over the following days his condition did not improve.

Apparently medical advice was sought from Jared GP surgery and he was diagnosed with diarrhoea and vomiting. 24/

This was despite the local hospital advising Jared must attend hospital if he became unwell, this did not happen until a few hours before his death.

Too little, too late 25/

A Serious Incident Report conducted by NHS 111, out of hours GP service suggests Jared should have been taken to A&E sooner and found the carers had been given inaccurate advice about the symptoms of sepsis 26/

After a long and painful wait, Jared's inquest is taking place in 10 weeks, on 7-8 December. This will be the first time Vicky has had an opportunity to put questions to Jared's carers to understand what went wrong between 2nd and 4th January 2015 27/

Jared's case doesn't meet the criteria for Legal Aid Funding. Therefore Vicky is left needing to raise at least £2,500 to cover the legal costs of her solicitor and barrister attending the inquest 28/

It is disgraceful that bereaved families have to fundraise to be legally represented, but that's the position Vicky is left in. If you can afford to donate please do. Jared's @CrowdJustice page is crowdjustice.com/case/justice-f… and please, please share Jared's story #JusticeforJaredB