Thread by @Richard_Autism

I do not believe it. It appears that Christie submitted evidence to have PDA recognised as an ASD in Australia. Did not disclose COI or mention pertinent information that would undermine PDA recognition.

@autismcrc This small group of professionals would be the PDA Development Group, that includes Christie, who has chaired the group.
…emandavoidancecom.files.wordpress.com/2020/08/2016-p…

@autismcrc What the PDA Development Group is and what it does:
…emandavoidancecom.files.wordpress.com/2020/08/pda-de…

@autismcrc This is true. First off Newson originally viewed PDA as a "Pervasive Developmental Coding Disorder", which was a diagnostic grouping of her own creation, that she used between 1986 -1996.
autismeastmidlands.org.uk/wp-content/upl…

@autismcrc Newson created "Pervasive Developmental Coding Disorders" as she thought autism spectrum was too narrow, to include dyslexia & as it is easier for lay persons to understand.

@autismcrc Newson later switched to viewing PDA as "Pervasive Developmental Disorder. Her definitions of PDD's, is not the same as what is accepted. She had her own interpretation of PDD umbrella.

@autismcrc Newson viewed PDD umbrella to be broader than autism spectrum. That PDA is not autism & it is a mistake to call PDA an ASD.
adc.bmj.com/content/archdi…

@autismcrc Newson also said that all persons with a Pervasive Developmental Disorder should have coding issues. The definitions for Pervasive Developmental Disorders does not require a person to have coding issues.

@autismcrc Newson's Pervasive Developmental Disorders group, does not include accepted conditions of Childhood Disintegrative Disorder & Rett's Syndrome. While including Specific Language Impairment, which is definitely, not a PDD or an ASD.

@autismcrc While he does refer the Autism Education Trust guidelines, he does not mention he has been on its various boards.

@autismcrc or that aspects of PDA make it problematic conceptualising PDA as an ASD, for example:
thepsychologist.bps.org.uk/pda-new-type-d…
&
pdaresource.com/files/An%20exa…

@autismcrc it is problematic fitting PDA into autism, as Newson was not trying to make PDA an ASD. Why would she thought PDA was not an ASD?

@autismcrc Newson herself said PDA needs to be different from autism & Asperger's syndrome, which she considered to be the Autism spectrum. Newson did not agree with conflating PDD umbrella with autism spectrum. Which Christie does not mention.

@autismcrc "Clearly, “hanging together as an entity” is not enough if that entity is not significantly different from both autism and Asperger’s syndrome, either separately or apart" Newson et al (2003, p599)

@autismcrc to say Christie's submission is inaccurate is an understatement.

Also hard to argue he does not stand to benefit from PDA being accepted into your diagnostic guidelines.

@autismcrc the point is that one cannot conflate Newson's PDD umbrella definition with accepted PDD umbrella definition as they are 2 different things. Christie is mistaken to view PDA as an ASD.

@autismcrc Yes, some autistic persons do present with PDA, but there is not agreed criteria or standardised tools. So a PDA diagnosis is essentially meaningless at the moment. There is evidence PDA is seen outside of autism.
researchgate.net/publication/33…

@threadreaderapp please could you unroll ?

Thank you in advance.

@autismcrc The more I look at the submissions with people saying PDA is recognised in the UK. That is not a true reflection of PDA's status, especially in 2017. PDA is only diagnosed in parts of the UK.

"Dorset, Kent, Bristol, Brighton and Hove, North Yorkshire and Wales, for example. The situation is often complex, though, with different services and individual professionals within the same area having different viewpoints."

@AutismCRC (Russell, 2018, p14):
pdasociety.org.uk/wp-content/upl…

That is from a 2018 survey based in the UK.

@autismcrc Christie mentions the ADOS and ADIR in autism assessments, but he does not mention that the ADOS is not designed to assess features of PDA.

The case for PDA has simply overstated to you.

@threadreaderapp unroll please.

@autismcrc "With wider definition and interpretation of the autism spectrum PDA has become widely understood in the UK to be a diagnostic profile that is part of the autism spectrum" (71-72). Unclear what definition & interpretation Christie refers too here:

@autismcrc the problem is that the exact opposite has happened under the DSM-5, there is a reduction in the types of people likely to receive an autism diagnosis.
link.springer.com/article/10.100…

@autismcrc Those with Asperger's/ PDD-NOS are those who most likely do not conform to autism stereotypes. There is a debate about lowering diagnostic threshold to includes those who do not conform to autism stereotypes, mainly females.
doi.org/10.1007/s10803…

@autismcrc The drop off rates for an autism diagnosis from DSM4 to DSM5 are substantial, range in literature 21% to 37%. I discuss it in more detail here, including references:
…emandavoidancecom.files.wordpress.com/2020/08/01-aug…

Under DSM5 we are not in a "With wider definition and interpretation of the autism spectrum" as according to Christie, I do not know why he says that. It is not clear what definition or interpretation he is referring to.

It is important as PDA does not conform to autism understandings. PDA is often meant to be diagnosed in those who do conform to autism stereotypes, such as Asperger's/ PDD-NOS/ Atypical autism. adc.bmj.com/content/88/7/5…

The point is persons who most likely to receive a PDA diagnosis, are unlikely to be viewed as autistic under the DSM-5.

Which is ironic, if you consider it.

@autismcrc please notice the above tweets.

This link also considers if PDA solves the problem of a constristed autism definition as under the DSM-5.
…emandavoidancecom.files.wordpress.com/2020/08/01-aug…

@autismcrc I would also point out Christie contrasts PDA to "typical autism". This is nonsense, "typical"/ "more straightforward"/ "normal" autism do not exist under accepted understandings of autism.
doi.org/10.1007/s10803…

As I said the case for PDA has been overstated.

@autismcrc Please see the above tweets.

@threadreaderapp unroll please, thank you in advance.

@AutismCRC To further show that PDA does not conform to autism steroetypes & is unlikely to get a DSM-5 autism diagnosis. Some view PDA as a female form of autism.
ingentaconnect.com/contentone/bil…

@autismcrc
Some argue we need lower diagnostic threshold for autistic females because of issues conforming to DSM-5 criteria.
link.springer.com/article/10.100…
&
researchgate.net/publication/33…

@autismcrc

Those most likely to attract a PDA diagnosis are also most likely to be viewed as non-autistic under the DSM-5.

It is because the case for PDA has been over represented.

@threadreaderapp unroll please & thank you.

https://twitter.com/Richard_Autism/status/1316070656396668929

https://twitter.com/Richard_Autism/status/1316156937323634688

https://twitter.com/Richard_Autism/status/1316157504573919234

@autismcrc @threadreaderapp unroll please.