There is a very simple way to prove that #CPP & #IPP are NOT addicted to our #OpioidRxs. All that needs to be done is to cure our pain. When our pain is cured no one will need to taper us. We would do our own record breaking taper because we are not addicted to our Rx’s.
When our pain is gone we much prefer a drug free life, and we are absolutely not addicted to our pain. Will you accept this challenge Dr Kolodny? Cure our pain if you are that skillful as a doctor then just watch us run from drugs. Try saving us instead of killing us. Until then
Until then, until you can cure our pain the humane and ethical way to treat pain patients is to restore as much of our #QOL as possible which will allow us to have a near normal life while we wait for doctors to find a cure for our pain. #IPP

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More from @JoeAllenNewman

18 Oct
Late at night the scene from my long ago motorcycle accident replays in my head. I am lying on the hard, black pavement numb from head to toe from the impact. I am 15 years old.

There is a policeman and the driver of the car I hit looking down at me in the dark. The policeman ..
The policeman thinks he recognizes me and calls me by someone else’s name. He asks, ‘John, do you want me to tell your parents about this? (He meant to tell them how I died). I said, ‘No’.

The driver of the car says he can’t be inconvenienced by this any longer, and he must..
The driver said he must leave. The policeman tells the driver to be quiet and stay put until I am taken care of.

The ambulance collects me and we drive away with sirens and lights. Though I am numb I can feel broken parts rubbing together.

I wonder if the policeman..
Read 4 tweets
17 Sep
If anyone in the #PROPaganda community believes that pain patients such as those with my brand of severe pain should be able to just use their minds to ignore pain and go about normal work activities w/o pain meds then I volunteer to help them with a scientific study..
Maybe Mr K or any other equally committed #PROP member could volunteer to be the test subject. Using nothing but the power of their minds much as they did when they composed the #2016Guidelines with zero help from pain patients or their doctors ..
They could attempt to do their normal daily activities or work while I reconstruct my pudendal nerve pain by coming in every 15 minutes and alternately either kick them in the groin as hard as I can or drive ice picks into both sides of their groin - my choice
Read 4 tweets
24 Jun
Talked with a lady this evening whose doctor had exposed her to such intense #PROPaganda that she had been conditioned to believe that taking #OpioidRxs automatically made her an addict. In order to please her Dr she took herself off of #OpioidRxs when she was in severe pain.
Since she stopped taking pain meds she is barely able to move. Her inability to tolerate the pain from exercise has made her very frail which resulted in many falls and injuries leading to more pain and less activity. I explained to her that taking pain meds does NOT make her an
I explained that taking pain meds does NOT make her an addict. In fact an addict keeps doing the drug which harms them, but a pain patient takes a pain med which returns their #QOL and strength, but I asked her to consider her situation in this way:
Read 6 tweets
2 Mar
What the #CDC, #PROP, and politicians conspired to do to pain patients in 2016 is far more devastating to pain patients than any “over prescribing” ever was yet only a courageous few have bothered to publicly challenge them for it. Have they successfully denigrated ..
Have they successfully denigrated pain patients to the point that the general public will just turn their heads and ignore the suffering and death which occurs until it hits one of their family members? Shamefully I can recall several times before when these tactics were used ...
I can recall several times before when these tactics were used to eliminate several groups of people who a self proclaimed elite few thought were undesirable. In today’s situation with pain patients I am hopeful that we have learned from past mistakes and such ..
Read 7 tweets

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