Share this page!

Brianne Benness Profile picture
Twitter logo
26 Nov, 4 tweets, 2 min read
Hey friends! Do you want watch some very bad Christmas films on Teleparty with me today?

I'm watching Christmas Inheritance on Netflix around noon Boston time and then Happiest Season on Hulu (important change!) around 4pm Boston time. I'll put up the links ~30 mins in advance.
Okay hi!

If you want to watch (& perhaps snark on) the Netflix Holiday Original called Christmas Inheritance with me, here's the link! Will be starting in about half an hour & taking many breaks.

ps. I'm a bad-sleep zombie today, be warned.

tele.pe/netflix/d031ff…
oh! and don't forget that you have to click the red TP icon in the toolbar after clicking in the link in order to actually join the party. I forgot to put that in the last tweet (but it's in the info thread!).
IIIIIIII might not make it for a 4pm movie given the whole no sleep situation.

So if anybody else hosts something today, tell me so I can RT and also I still want to watch the movie, maybe tomorrow?

• • •

Missing some Tweet in this thread? You can try to force a refresh
　

Keep Current with Brianne Benness

Brianne Benness Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @bennessb

Brianne Benness Profile picture
28 Nov
Really interesting how many people interpreted this as mindfulness bashing.

This was about how I (and many other people) literally do not have the tools to interpret the signals our bodies are sending us until we've done years of research.

See also, my tweet about cipher keys.
[med trauma]

For most of my life, other people *insisted* that my symptoms must have a pattern if I just paid closer attention.

Most people acted as if there was an effort & attention gap rather than a knowledge gap.

This often took the form of literal gaslighting.
The tool I needed to "tune into my body" in my case was a 24/7 heart rate monitor. Nobody suggested that.

I didn't know that was data that could help me and the tools didn't exist for consumers yet anyway.
Read 5 tweets
Brianne Benness Profile picture
28 Nov
If you have suspected or confirmed mast cell problems, what have been the most unexpected early warning signs that it's Time To Take A Benadryl*?

*or other rescue med, etc
I have flushing episodes that are pretty standard, but I definitely also have SUDDEN COGNITIVE & FULL BODY EXHAUSTION (affectionately known as bee brain because my brain uh, feels full of bees) that I am always thrown off by.

"Why do I suddenly need a nap?! Oh. Need benadryl."
One of the strangest discoveries of this crash is that bee brain is not inherently part of my fatigue.

When I unwittingly lived in toxic mold in 2017, I thought that feeling was just part of being exhausted?

I've still had cog fatigue this year, but it's much less... something.
Read 5 tweets
Brianne Benness Profile picture
27 Nov
Doing this as a poll for the option of anonymity, but do any/many of you read through #NEISVoid tweets directly (not through my RTs)?

Just curious.

("When I ask" refers to me, Brianne asking, in case that's verbally confusing)
I know these categories are subjective but time itself is constructed and there's nothing we can do about it.
It's almost my bedtime and I have no idea how this poll will be split when I wake up! (Hopefully later than 5am.)
Read 5 tweets
Brianne Benness Profile picture
26 Nov
well the [sarcastically good] news is that I got terrible sleep before a scheduled holiday zoom call later this morning, which is literally how I became bedbound for months back in April!
I have not gotten better at managing all the Complicated Feelings that come with having a body that regularly says "you can participate in [this planned activity], but there will be unpredictable consequences and they may be permanent!"
And I always feel so preemptively defensive about the IDEA of backing out of a plan with non-sick folks that my brain gremlins always tell me anyone else involved will think I'm A DRAMATIC FAKER.
Read 5 tweets
Brianne Benness Profile picture
25 Nov
Ok honestly I feel like the thing that healthy people don't get about diagnosis is how much it feels like getting the key to a cipher.
Like you spend [months/years/a lifetime] alternately tuning into and out of your body with much concerted effort, but every time you tune in it's just chaos.

Nothing makes sense and everything feels terrible. And those feelings compound each other.
And if you get misdiagnosed (which happens a lot), you're left with this unease like... why hasn't the chaos become a bit more orderly?
Read 7 tweets
Brianne Benness Profile picture
25 Nov
I know PT won't reverse all my symptoms or anything but it's honestly so helpful for me that I'm raging pissed about the myriad ways that PT is inaccessible.

Undiagnosed? No PT.
Chronic condition? Acute PT only.
Hypermobile? Ignorant PT can cause irreparable harm.

Plus, cost.
Like I'm 33 and I've been hypermobile all my life and this is the FIRST TIME I've had an appropriate exercise routine to target weakness & tension that are directly caused by hypermobility.

Three decades and nobody was like 🤔
Because of my whole Thinking About Anatomy Triggers Syncope problem, my current framework for thinking about this whole deal is that our hypermobile bodies just like... settle over time as ligaments crap out and muscles spasm to compensate.

Like how buildings settle over time.
Read 6 tweets

Did Thread Reader help you today?

Support us! We are indie developers!

This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!

Follow Us on Twitter!

Like this author's thread?

Get email notifications when new thread is out from this Author!

Check out other threads from this Author!

Read all threads by @bennessb