Being sick is bad enough - fatigue, pain, shortness of breath. I imagine that to be a member of the majority caste in this country is to be able to just be sick. To be able to focus energy on getting well and maybe (because medical capitalism) how to pay.
There is so much more on the minds of Black patients - considering if the hospital you go to will treat you well (or at all). To have to, in the midst of the emotional and cytokine storm of infection, muster strength to fight for adequate care. To trade rest for diligence.
To have to calculate how a care provider might interpret how you express emotion & pain-too calm & you must be lying, too hysterical & you might invite the non-therapeutic intervention of armed security guards
To second guess fully disclosing your living situation, finances, diet and ability to afford and adhere to medications because of the potential consequences of the judgement that might follow.
Where are Black people safe to be sick? live? drink clean water? breathe clean air? enjoy family? barbecue? run? play with toys? ride in cars? call for mental health assistance? sing with headphones? sleep? read in common rooms?
Where are Black people safe to BE?
And I’m frustrated & angry & sad. This historical reality and present truth is not in any way hidden - it has been in plain sight every day for the last 400+ years and those who don’t see have chosen to put on blinders.
I know the deliberateness of this because the blinders periodically come off for public displays of wokeness. For gestures like hollow black squares and bent knees. For the joining of cocktails, tears and white fragility posed in a flick for the gram.
Even as a physician, I am acutely aware of how the medical establishment has been at the center of anti-Black oppression & has moved very little off that square (if at all) despite so many tripping over themselves to push out press releases about “dismantling structural racism”
How are you dismantling structural racism while trying not to disrupt any part of the structure of your institution? How are you committed to increasing diversity in your fellowship and have 1 person with all their bias doing the primary application screening?
How are you interested in addressing health disparities and your hospital doesn’t even market services to the Black people up the street?
How is everyone welcome when you make no effort to speak their language? Or understand their experience?
Because the reality is that to truly “dismantle structural racism” you must dismantle all of the things require racism for survival.
From insurance companies, to all white C-suites, to the current means of processing applications and promotions.
You cannot just re-plaster and paint a house with a faulty foundation - the walls will crack again.
All that to say is - Dr Moore should not have had to spend her last moments in illness fighting to get treatment she deserved.
I’m so beyond ready to make this all over.
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Last night while researching frailty scores, I vividly remembered being paged at 2am by the paging operator to call a patients family member while I was working in the ICU (back in the day when I did such things 😅)
Things were calm - and I figured a patient family member paging in the middle of the night was probably important - so I called:
“Is this Dr. Weeks?”
“Yes”
“you may not remember me, but I’m ___ you took care of my dad a few months ago and I wanted to talk about his paperwork.”
Now this was curious. This patient died but my mind is a Rolodex of patients I’ve pronounced so I remembered this family well.
“How can I help you?”
“Well I noticed in the admission note you wrote and the discharge summary you listed “failure to thrive” as the chief concern.”
I try to be thoughtful about what I write/say because words matter. I don’t always get it right, but this is a hill I am willing to die on.
*clears throat*
🗣 We don’t need to fix Black people’s mistrust. We need to fix medicine’s lack of trustworthiness. #COVID19#CovidVaccine
It isn’t enough to “remember Tuskegee.” The Tuskegee Syphilis Study ran from 1932- 1972. There’s segregation and disregard for humanity happening in the here and now.
40+ years after Tuskegee ended & 50+ years after “whites only” signs came down and hospitals are still segregated spaces! There are hospitals where it is rare to find a Black patient or provider.
Transparency involves being honest abt who/what you are.
So it’s probably less benevolence driving the consideration to prioritize minorities & more interest convergence. Minorities r disproportionately impacted by the virus & are a large portion of essential low wage workforce
It is in the interest of Black people to take a vaccine that could curb community spread of a virus that is killing us AND it is in the interest of a country that wants to get back to “normal” to not have a workforce that isn’t sick/vulnerable & overcrowding hospitals.
Dear America (the non-racist half):
As a trauma survivor I wanted to remind us that we don’t owe kindness, grace, conversation, understanding or respect to abusers. It is not our job to rebuild bridges others burnt.
Saving the souls of abusers is not the victim’s responsibility
It is not to us to placate the half of the country that hates all that isn’t white, cis, male, hetero, protestant, English speaking and able-bodied.
Our primary responsibility is to ourselves - securing our health, safety & freedom.
We, as victims of trauma, having begun the work to save ourselves, do not need to prove our goodness by doubling back to rescue the ones who burned themselves while attempting to torch us.
To suggest that *we* must now “set aside our differences and come together” asks too much.