Probably PDA relevant.
"Mental health of parents as a factor in dealing with Autism"
Not open access.
tandfonline.com/doi/abs/10.108…
"The results show that not only did the psychological support given to the parents have a direct effect on the mental health of the parents, but that it also indirectly decreased the levels of autistic symptoms of the children."
Why it is relevant is because research suggests that PDA caregivers have high anxiety levels themselves. This is also predicted from being an erratic, unpredictable (extreme) behaviours a CYP with PDA often displays.
Also from emotional contagion, transferring emotions from the high anxiety of CYP with PDA onto the caregiver (and vice versa).
The supportive nature of the PDA community, is also a factor, as it gives PDA caregivers a positive support network. Potentially akin to receiving professional "psychological support" (speculating, still plausibly)?
We know from high numbers of PDA caregiver's involvement in various petitions/ surveys, that they are highly motivated to support PDA. That PDA strategies are good practice.
That PDA literature acknowledges that caregivers being knowledgeable on PDA can potentially bias research results.
What I am actually trying to say is, this study allows for alternative explanation for results of Eaton & Weaver (2020) & Liz O'Nions recent PDA research.

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More from @Richard_Autism

26 Dec
I am going to say this, I am confident that anyone saying that original PDA DISCO questions viewed PDA social manipulative behaviours as being "Strategic"/ not "manipulative" are either mistaken or lying.
Definition of manipulation:
"to control or play upon by artful, unfair, or insidious means especially to one's own advantage"
&
"to change by artful or unfair means so as to serve one's purpose"
merriam-webster.com/dictionary/man…
Example Q11 "Good at getting round others and making them do as s/he wants" from EDA-Q. The EDA-Q is partly based off Original PDA DISCO items.
acamh.onlinelibrary.wiley.com/doi/abs/10.111… ImageImage
Read 37 tweets
26 Dec
Is PDA relevant.
"The role of Facebook Groups in the management, and raising of awareness of, antidepressant withdrawal: Is social media filling the void left by health services?"
Free to access pre-print
repository.uel.ac.uk/item/88w32
I should probably thank Chloe for indirectly leading this article to me, through setting up google scholar alerts for @peterkinderman
Why this is PDA relevant is it fits into these arguments:
Read 8 tweets
21 Dec
So I have been briefly looking into how OCD is assessed. I came across this image. Crikey, it just makes me think even more that PDA should be viewed as an OCD & related disorder.
I do not have time to explicitly how PDA matches up this, but if one looks at the work of Liz O'Nions here.
lizonions.files.wordpress.com/2019/09/1909ch…
One should see that the model she is describing matches up to the OCD cycle.
Read 17 tweets
19 Dec
While I consider this to be little more than propaganda in places and making assumptions detached away from the evidence base. Also that some people do not have the expertise to be making such assumptions.
There is a comment that I find interesting:
huffingtonpost.co.uk/neil-ayres/can…
"is an overriding compulsion to control situations and avoid demands made by other people, due to exceptionally high levels of anxiety."
@AhabInSpace
Read 15 tweets
11 Dec
@ekverstania @lynchauthor @NeuroClastic I think it needs more thought being put into to be honest, into exactly how it works. I think that "autistic features", i.e. what many would call ASD, is a smaller component of autism, which is how autistic features interact with each observer's bias.
@ekverstania @lynchauthor @NeuroClastic Autistic features, would need to be modelled with the situation a person is in.
@ekverstania @lynchauthor @NeuroClastic Thinking aloud, I suspect autistic features themselves cannot be subtyped, but the broader autism phenomena probably can be.

You can have subtypes/ subgroups, but it they routed in observers bias, instead of intrinsic differences between autistic persons.
Read 4 tweets
11 Dec
@ekverstania How I define autism is an interesting question.
@ekverstania I do not have time to do a blog post on this so I will do my best to cover here briefly.
@ekverstania First point is that, I think autism is complex, it is not a simple concept. Any such approach to do so, is going to have issues. At the same time, depending on the situation, I can be happy working with such models, like DSM-5 autism criteria.
Read 50 tweets

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