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Richard Woods Profile picture
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26 Dec, 8 tweets, 2 min read
Is PDA relevant.
"The role of Facebook Groups in the management, and raising of awareness of, antidepressant withdrawal: Is social media filling the void left by health services?"
Free to access pre-print
repository.uel.ac.uk/item/88w32
I should probably thank Chloe for indirectly leading this article to me, through setting up google scholar alerts for @peterkinderman
Why this is PDA relevant is it fits into these arguments:
Now there are parallels between this study and what is happening for PDA in its support in social media:
repository.uel.ac.uk/item/88w32
So the above study, a failure of clinicians to listen & respect a person's experience of a situation (symptoms and issues related to withdrawal of anti-depressants), leads to people finding help in peer-led support groups online.
Which has parallels in how caregivers find out about PDA and the "The Lightbulb Moment". Caregiver interacts with professionals, child often gets an autism dx. Strategies do not work. Goes online (often joins support groups), comes across PDA.
There are similar arguments in the above paper for appropriate support needs to be provided for tapering off antidepressants. Similar arguments are made to recognise and support PDA.
One could also argue parallels in hidden experiences of thousands of persons and it is an international issue.

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More from @Richard_Autism

Richard Woods Profile picture
26 Dec
I am going to say this, I am confident that anyone saying that original PDA DISCO questions viewed PDA social manipulative behaviours as being "Strategic"/ not "manipulative" are either mistaken or lying.
The reasons for this, is that literature before O'Nions et al (2016), the LWC PDA DISCO paper viewed social demand avoidance to be manipulative. Also that two tools derived from original PDA DISCO questions view such behaviours as manipulative.
Definition of manipulation:
"to control or play upon by artful, unfair, or insidious means especially to one's own advantage"
&
"to change by artful or unfair means so as to serve one's purpose"
merriam-webster.com/dictionary/man…
Read 39 tweets
Richard Woods Profile picture
24 Dec
Probably PDA relevant.
"Mental health of parents as a factor in dealing with Autism"
Not open access.
tandfonline.com/doi/abs/10.108…
"The results show that not only did the psychological support given to the parents have a direct effect on the mental health of the parents, but that it also indirectly decreased the levels of autistic symptoms of the children."
Why it is relevant is because research suggests that PDA caregivers have high anxiety levels themselves. This is also predicted from being an erratic, unpredictable (extreme) behaviours a CYP with PDA often displays.
Read 8 tweets
Richard Woods Profile picture
21 Dec
So I have been briefly looking into how OCD is assessed. I came across this image. Crikey, it just makes me think even more that PDA should be viewed as an OCD & related disorder.
I do not have time to explicitly how PDA matches up this, but if one looks at the work of Liz O'Nions here.
lizonions.files.wordpress.com/2019/09/1909ch…
One should see that the model she is describing matches up to the OCD cycle.
Read 17 tweets
Richard Woods Profile picture
19 Dec
While I consider this to be little more than propaganda in places and making assumptions detached away from the evidence base. Also that some people do not have the expertise to be making such assumptions.
There is a comment that I find interesting:
huffingtonpost.co.uk/neil-ayres/can…
"is an overriding compulsion to control situations and avoid demands made by other people, due to exceptionally high levels of anxiety."
@AhabInSpace
Read 15 tweets
Richard Woods Profile picture
11 Dec
@ekverstania @lynchauthor @NeuroClastic I think it needs more thought being put into to be honest, into exactly how it works. I think that "autistic features", i.e. what many would call ASD, is a smaller component of autism, which is how autistic features interact with each observer's bias.
@ekverstania @lynchauthor @NeuroClastic Autistic features, would need to be modelled with the situation a person is in.
@ekverstania @lynchauthor @NeuroClastic Thinking aloud, I suspect autistic features themselves cannot be subtyped, but the broader autism phenomena probably can be.

You can have subtypes/ subgroups, but it they routed in observers bias, instead of intrinsic differences between autistic persons.
Read 4 tweets
Richard Woods Profile picture
11 Dec
@ekverstania How I define autism is an interesting question.
@ekverstania I do not have time to do a blog post on this so I will do my best to cover here briefly.
@ekverstania First point is that, I think autism is complex, it is not a simple concept. Any such approach to do so, is going to have issues. At the same time, depending on the situation, I can be happy working with such models, like DSM-5 autism criteria.
Read 50 tweets

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