1/ THREAD: With many schools going back on Monday and the infection rate now high across the country, we are concerned that parents who have blood cancer are not being considered in the Government’s decisions.
2/ Where schools are staying open, the Govt urgently needs to give advice and support for parents with who are vulnerable. This include ensuring high-quality home learning is in place, so children don’t fall behind if they have to stay at home to protect the health of a parent.
3/ We know that many parents with blood cancer are worried about their children going back. If you have blood cancer and live in an area where the infection rate is high, we think it is now worth considering keeping your children off school if you can.
4/ This is because people with blood cancer are at high risk from the coronavirus, and we are now at a point where the infection rate is very high and yet we are just weeks away from getting vulnerable people vaccinated.
5/ If this applies to you, then speak to your school to tell them your decision. No parent with blood cancer should feel under any pressure to send their children to school over the next few weeks if they think keeping them off is the right thing for their family.
6/ But we know this isn’t going to be possible for everyone, and people should be supported in making whatever is the right decision for their family and their personal circumstances.
7/ If you have blood cancer and it’s not practical to keep your child off school, then you can still reduce your risk from the virus by social distancing, mask-wearing, and good ventilation. There’s more about this on our website bloodcancer.org.uk/support-for-yo…
8/ We know the next few weeks will be very difficult for our community. Our support line is here if you need it – we’re on 0808 2080 888 between 10am and 7pm on weekdays and 10am to 1pm at weekends. ENDS
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BREAKING: people with blood cancer who are extremely clinically vulnerable have been moved up the provisional priority list for a vaccine. They are now at the same priority level as people aged over 70. This is great news! /1
Previously, younger people with blood cancer were only expected to get a vaccine after everyone aged 65+ had been offered one. But the new priority list better reflects the fact that people with blood cancer are especially vulnerable to #COVIDー19. /2
There’s also the good news that adults who live with people with blood cancer will also get priority. This is important because any vaccine might not work as well in people with compromised immune systems. /3
⚠️ The Government yesterday published guidance for people in England who are clinically extremely vulnerable (CEV), for after England returns to the tier system on December 2nd.
It says: “your employer may be able to furlough you under the Coronavirus Job Retention Scheme, which has been extended until the end of March 2021”. 2/
This applies to all tiers, so if you can’t work from home you should speak to your employer about whether this is possible. But we’re concerned that elsewhere in the guidance it says that people who are CEV and can’t work from home can carry on going into work. 3/
👨👩👦 Our Support Services Team have been hearing from lots of people who's children are experiencing anxiety around going to school, and are worried about the risk of bringing the virus home with them and infecting a parent who has #bloodcancer. 1/
🏥 This is a difficult situation for both children and parents. Sometimes, your treatment team might have access to psychological support for your children or teenagers, or an option to get support as family – it's worth asking. 2/
Shielding has been incredibly tough for many people, but this blanket approach to lifting it is only going to add anxiety in many cases. 1/
This announcement does not give people greater freedom, as the shielding guidelines have only ever been optional.
Instead, it risks taking away people’s freedom not to go to work or to the supermarket if they do not feel it’s safe to do so. 2/
The government needs to think again and continue to support those most vulnerable to becoming seriously ill from the coronavirus, or we could see people being forced to choose between their financial security and their health. 3/
🔬 This month we're celebrating the work of Professor James Allan, who leads on a Blood Cancer UK funded project and is based at the @UniofNewcastle.
💉 James' work is about understanding how unique genetic changes in acute myeloid leukaemia (AML) can be used to tailor treatment.
🧓 AML is most common in the elderly and many of these people cannot have #chemotherapy because of the harsh side effects it causes.
💊 To get around this, James and his team are looking to find ways of using other existing therapies more strategically, based on specific characteristics of these peoples' disease. This is called "stratified medicine."
Here at Blood Cancer UK, we want to use today to raise awareness of what #survival means to those who live with slow-growing (chronic) #bloodcancer, and share some of their stories.
Read the rest of our thread to find out more.... 👇
👨👩👦As many of our community will know, surviving blood cancer can be a very different experience to overcoming some other types of cancer.
🔎For those with chronic blood cancer, 'survival' means learning to adapt and finding new ways of living to accommodate ongoing symptoms.
😴 This is the case for Erica, who has chronic lymphocytic leukaemia (CLL) and experiences extreme tiredness (fatigue) as a result.