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My holiday reading included @AndrewKavchak’s The Fight for Autism Treatment in Canada. I encourage all advocates to read this book and learn from past attempts to help shape our advocacy efforts most effectively going forward.

#NationalAutismStrategy #autism
Throughout Canada, autism programs are underfunded, limit the amount of services one can receive, reduce services available based on age, impose age cut-offs and have long wait lists.

#NationalAutismStrategy
Many families end up draining their assets and life savings in an attempt to make up the difference. This is an outrageous situation for a country that pride’s itself on its universal healthcare system.

#NationalAutismStrategy
As advocacy evolves, it’s important to know our history. What have others tried before? How have politicians responded? The Fight For Autism Treatment in Canada provides this background.

#NationalAutismStrategy
So often the excuse is that healthcare is a provincial matter, however the hypocrisy is on full display when we see a bevy of national healthcare strategies and health accord agreements brokered at the federal level.

#NationalAutismStrategy
It’s imperative that access to evidence-based treatment be a focal point as we advance the #NationalAutismStrategy this year.

The Fight For Autism Treatment In Canada - Reflections Of A Parent Activist amazon.ca/dp/B084DG18P2/…

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More from @ScottCorb

28 Sep 20
2 YEARS AGO today @MacLeodLisa and the @fordnation govt ordered providers to freeze the waitlist for autistic kids therapy and hid this from parents.

2 years later and @ToddSmithPC hasn’t fix the mess. Utter fiasco!

#onpoli #AutismDoesntEndAtFord ottawacitizen.com/news/local-new…
“Note the ministry has asked us not to stray outside of their messaging. (i.e. we would not tell families directly that there will be no service offers through the end of the fiscal year.)”

This was 2 years ago!!! Unreal.

#onpoli #AutismDoesntEndAtFord
The documents have infuriated Scott Corbett, an Ottawa father of two sons on the autism spectrum, including one who has been on the waiting list for more than two years.
“Frankly, I find this a complete betrayal of the public trust”

Sentiment is still valid today!

#onpoli
Read 5 tweets
21 Jul 20
Thread on FAO Autism Report

1. $608M wasn't actually spent on services in FY19/20. $174M is tagged as carry forward to this FY for childhood budgets (that's if the OAG okays it). Also, $97M in CBs received does not = spent on services last FY.

#AutismDoesntEndAtFord #onpoli
2. If the OAG okays the carry-forward budget expense, will the government spend $774M this year ($600M budget plus the $174M carry-forward)? I'll believe when I see it.

#AutismDoesntEndAtFord #onpoli
3. The $174M unspent last FY is trending higher than the $192M underspend I estimated over the two FYs before the new program is up in 2021. The govt could've reinstated the OAP as the interim plan, put kids in service and stabilize service capacity
#AutismDoesntEndAtFord #onpoli
Read 11 tweets
17 Jul 20
Thread
One year under @ToddSmithPC leadership and we have a 75-83% decrease in the number of children in therapy! The choice to continue @MacLeodLisa's childhood budget scheme as the interim plan has had serious consequences

#AutismDoesntEndAtFord #onpoli
medium.com/@scottcorbett_…
The reality is that nearly 2 years since “freeze-gate”, thousands of autistic children are still waiting for the services they need.

#AutismDoesntEndAtFord #onpoli
thestar.com/politics/provi…
@ToddSmithPC promised there would be a continuum of care for those in service, but the numbers would suggest otherwise.

It's the "gold standard to childhood budget switcheroo" that @MacLeodLisa dreamt up.

#AutismDoesntEndAtFord #onpoli
Read 4 tweets
6 Jan 20
THREAD:
It’s a disgrace that nearly a year since @MacLeodLisa started her destruction of the Ontario Autism Program that advocates are still protesting for the government to fix this mess.

#onpoli #AutismDoesntEndAtFord

ottawacitizen.com/news/local-new…
2/4:
This time the protest was brought to @JR_Ottawa office. Despite nearly doubling the autism budget @ToddSmithPC can’t figure out how to direct the money towards needs based services. Wants to stall until 2021! Parents and advocates are fed up.

#onpoli #AutismDoesntEndAtFord
3/4:
As one parent said to me today, there already is a program, how hard can it be to add more kids to it?

He’s right, it isn’t hard. Regionals have no problem processing behaviour plans for thousands of kids in the legacy OAP.

#onpoli #AutismDoesntEndAtFord
Read 4 tweets
30 Dec 19
Thread
1/ As 2019 ends, it’s time to reflect on the decisions being made to the Ontario Autism Program.

@ToddSmithPC @JR_Ottawa have lost sight of the highest and most urgent priority

#AutismDoesntEndAtFord #onpoli
2/ By prioritizing system design of the new OAP and delaying services until 2021, @ToddSmithPC has chosen process over people, a terrible decision given the dire straits the @fordnation has put the autism community thru
#AutismDoesntEndAtFord #onpoli
3/ Let’s rewind to the beginning of 2019, the problem was the preposterously long wait times to receive autism services.

Instead of solving the problem @ToddSmithPC is chasing rabbits down holes
#AutismDoesntEndAtFord #onpoli
Read 12 tweets
22 Dec 19
Thread – 8 thoughts on @ToddSmithPC Dec 17 Ontario Autism announcement

1/ April 2020 was a fantasy target date tied to the start of the govt fiscal year, there was NO PLAN.

#AutismDoesntEndAtFord #onpoli
2/ @ToddSmithPC frames his interim choice between wait list children getting nothing or a 1-time payment.

That’s a false choice.

He could have enrolled them into ABA with @Roman_Baber 30/hr wk cap.

#AutismDoesntEndAtFord #onpoli
3/ When directly asked if in-service children face an interruption in service, @ToddSmithPC doesn’t answer and deflects to implementation team. Promptly ends Q&A with press.

Families are left with uncertainty. Merry Christmas!

#AutismDoesntEndAtFord #onpoli
Read 10 tweets

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