My holiday reading included @AndrewKavchak’s The Fight for Autism Treatment in Canada. I encourage all advocates to read this book and learn from past attempts to help shape our advocacy efforts most effectively going forward.
Throughout Canada, autism programs are underfunded, limit the amount of services one can receive, reduce services available based on age, impose age cut-offs and have long wait lists.
Many families end up draining their assets and life savings in an attempt to make up the difference. This is an outrageous situation for a country that pride’s itself on its universal healthcare system.
As advocacy evolves, it’s important to know our history. What have others tried before? How have politicians responded? The Fight For Autism Treatment in Canada provides this background.
So often the excuse is that healthcare is a provincial matter, however the hypocrisy is on full display when we see a bevy of national healthcare strategies and health accord agreements brokered at the federal level.
“Note the ministry has asked us not to stray outside of their messaging. (i.e. we would not tell families directly that there will be no service offers through the end of the fiscal year.)”
The documents have infuriated Scott Corbett, an Ottawa father of two sons on the autism spectrum, including one who has been on the waiting list for more than two years.
“Frankly, I find this a complete betrayal of the public trust”
1. $608M wasn't actually spent on services in FY19/20. $174M is tagged as carry forward to this FY for childhood budgets (that's if the OAG okays it). Also, $97M in CBs received does not = spent on services last FY.
2. If the OAG okays the carry-forward budget expense, will the government spend $774M this year ($600M budget plus the $174M carry-forward)? I'll believe when I see it.
3. The $174M unspent last FY is trending higher than the $192M underspend I estimated over the two FYs before the new program is up in 2021. The govt could've reinstated the OAP as the interim plan, put kids in service and stabilize service capacity #AutismDoesntEndAtFord#onpoli
Thread
One year under @ToddSmithPC leadership and we have a 75-83% decrease in the number of children in therapy! The choice to continue @MacLeodLisa's childhood budget scheme as the interim plan has had serious consequences
THREAD:
It’s a disgrace that nearly a year since @MacLeodLisa started her destruction of the Ontario Autism Program that advocates are still protesting for the government to fix this mess.
2/4:
This time the protest was brought to @JR_Ottawa office. Despite nearly doubling the autism budget @ToddSmithPC can’t figure out how to direct the money towards needs based services. Wants to stall until 2021! Parents and advocates are fed up.
2/ By prioritizing system design of the new OAP and delaying services until 2021, @ToddSmithPC has chosen process over people, a terrible decision given the dire straits the @fordnation has put the autism community thru #AutismDoesntEndAtFord#onpoli
3/ Let’s rewind to the beginning of 2019, the problem was the preposterously long wait times to receive autism services.
3/ When directly asked if in-service children face an interruption in service, @ToddSmithPC doesn’t answer and deflects to implementation team. Promptly ends Q&A with press.
Families are left with uncertainty. Merry Christmas!