Autistic Strategies Network - 2021: A year of increasing collaboration [THREAD]
We begin 2021 with a number of programmes and projects in the pipeline. These are some of our focus areas for the year, on the continent, in our country and in our province:
AFRICA: Autistic advocacy
We’re building relationships with autistic activists throughout Africa and with cross-disability organisations serving communities in African languages to support autistic strategies in ways that draw from the best of African values and culture.
AFRICA: Ableism
A meeting with the head of the Health Department in the Western Cape identified ableism as the single greatest obstacle to better health services for disabled people in the province.
AFRICA: Ableism (continued)
We also see ableism (including internalised ableism) as a major stumbling block to progress in any of our other activities in the continent and internationally, and recognise that ableism is often perpetuated by disability organisations themselves.
AFRICA: Ableism (continued)
Working with both local and international activists, we intend to start shifting perceptions in view of better service-delivery and the acceptance of disabled people as full, valued members of society.
AFRICA: Communication rights
Communication is a human right. In 2021 you can expect to hear more regularly from the nonspeaking collaborators within the Autistic Strategies Network.
AFRICA: Communication rights (continued)
We intend to support the growth of service-delivery and fundraising to provide communication access to nonspeakers who cannot afford suitable AAC, with a special focus on autistic people with apraxia.
AFRICA: Communication rights (continued)
Our efforts over the past five years have contributed to a growing number of young autistic people in South Africa being able to express their thoughts in words.
AFRICA: Communication rights (continued)
It has always been our goal to extend the growth of such opportunities for nonspeakers to the rest of Africa as well.
SOUTH AFRICA: Emergency shelter
Shelters are often not accessible to disabled people, particularly to families. Some homeless shelters also have quotas of the number of disabled people they ar prepared to take.
SOUTH AFRICA: Emergency shelter (continued)
We will work with a variety of civil organisations and government departments to address this problem.
SOUTH AFRICA: Chemical restraint
We’ve had tip-offs that chemical restraint is once again being used in schools. We are seeking partners to help us address this illegal practice, whereby parents are forced to give their children specific drugs to be allowed to attend a school.
SOUTH AFRICA: ABA
We are working with a number of agencies and activists to ban nonconsensual Applied Behaviour Analysis (ABA) in South Africa, and we hope that this will set a precedent for other countries in Africa to do the same.
SOUTH AFRICA: ABA (continued)
This in keeping with the provisions of the UN Convention on the Rights of People with Disabilities (#CRPD). The programme will run in conjunction with some of our other programmes to reduce ableist crime.
WESTERN CAPE: Public health
In collaboration with the Western Cape Network on Disability (WCND) and the @WesternCapeGov, we will be training public health workers in how to work with autistic and other disabled people.
WESTERN CAPE: Public health (continued)
Part of our training will create awareness of the common health issues in autistic people and their families, and how to address them using available resources.
WESTERN CAPE: Autistic Community Network
This is a support programme in which we collaborate with fundraising organisations and allies in the community to support individual autistic people and sometimes also friends and family.
WESTERN CAPE: Autistic Community Network (continued) This is for emergencies such as evictions, difficulty in accessing medical services, abuse or hunger. We’ve been doing this informally for years, but this year we intend to formalise these activities.
This alarming message came through on WhatsApp this morning from Johan Pretorius of DeafBlind SA:
"With the predicted stormy weather in KZN, Mpumalanga and Limpopo please do take care. Avoid unnecessary traveling and be careful during dangerous weather conditions by staying indoors."
(Keep reading; that's not the big problem yet.)
"I am currently making enquiries with our local police about accessable emergency contact number with local police stations all over South Africa. The usual phone call number 10111 is not accessible for Deaf and DeafBlind persons."
If you're a speaking autistic person who suddenly discovered that nonspeaking autistic people have something to say, are you going to concertedly continue amplifying their words after you have used them to bolster your anti-Sia campaign, or is this just a one-time thing?
People who SAY they care about nonspeaking autistic people can't be judged merely on how much they talk about it. They can work with nonspeakers, have a nonspeaking brother, start an organisation to support parents and research etc. etc.
Why the predominant paradigm of personal achievement in the US (and the main approach to working with autistic children there) is immoral, unscientific and counterproductive.
(Long educational video. Spend this hour. It may be essential to do so.)
The USA isn't the only culprit, but Alfie Kohn focuses on the US, because they have some uniquely extreme manifestations of the problem.
He even connects it to why anti-maskers are so common and so extreme in their selfish rebelliousness in the US compared to other countries.
I am going to try taking megadoses of thiamine to persuade my mitochondria to cooperate with my desire for productivity.
My vitamin B complex supplements contain 28 mg, which is, like, nothing compared to where I want to go, so today I am adding 200 mg thiamine, and will work my way up to 700 over a few days, then see whether it needs to be more.
Also getting lysine again, so that I can take lysine and citrulline together as well.