There may have been tears. Thank you so much @jesslinworld and also to @BexGoneWest@RoseUnwin for your contributions. Feel so humbled by the recognition of late 👊❤️🙌
'The light in the darkness. Each one has worth, each one has value, and each one is loved'
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This gift was sent with these, Becky is so talented.
I am so grateful for the support for my work; for the families who share their loved ones lives and deaths with me; for everyone who has supported my work financially; for those who keep sharing despite the horror.
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I can not express easily how grateful I am to those of you who look out for me. The kindness and gifts. The DMs checking in. The chat and humour. The photos of babies that I return to if I ever question why... because there's a brighter future ahead.
Gather round twitter, you know the drill, grab a brew and settle in to learn about Matthew Copestick, seen here on a water flume on a family holiday as a teenager.
This story doesn't have a happy ending, but it is important, and IMHO deserves your attention
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Matthew was a summer baby, born in August 1997. He was just 21 when he died at his home in Rochdale, a little over two years ago.
Matt was polite and respectful, he took responsibility and loved his identification as a gentle giant. Matt was big on respect.
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He would never sit in the front of the car if there were older people in it, he always shook your hand when he met you and so should you, that sort of thing.
What my Gran would have called 'good old fashioned manners' that you don't see so much nowadays.
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Senior Coroner for Worcestershire David Reid found that Rachel Johnston died as a result of complications of necessary surgery, to which neglect contributed
TLDR Lowlights (I can't bring myself to call them highlights) below
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Coroner described Rachel as 'a lively and happy woman who loved music, theatre and the company of other people. She was blessed with a close family who would visit her regularly and bring her back home when there were family gatherings'
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The Coroner accepted that Rachel’s extensive dental surgery was necessary.
He ruled on a factual dispute, and found that on discharge Staff Nurse Kate Griffiths failed to provide a leaflet about dental surgery to the support worker who returned Rachel to her care home.
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Twitter, indulge me in a quick trip back down memory lane would you please. I'd like to talk a little about two beloved young men who died in the care of @Southern_NHSFT and the wider response to their deaths by our beloved #NHS, Connor and Edward
Thinking of Paula Rawnsley and all of Thomas's family and friends today. Thomas died in February 2015, coming up to 6yrs ago.
Last September I was in Sheffield Coroner's Court with Paula on Day 2 of his inquest when it was adjourned for more expert evidence.
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I just want to talk a little bit about Paula and her search for answers about what happened to Thomas. Paula told me that she had already been labelled as difficult way before Thomas died.
Thomas was a much loved youngest brother and enjoyed a happy childhood at home
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As a teenager Thomas became more anxious and Paula asked for support to keep him at home.
She thought maybe they could get some respite help, or some advice. Thomas used Makaton to communicate and was able to make most of his needs known to those he knew well
Gather round twitter, I've not done a post like this for a while, but I'd like to introduce you to Jared.
Last week I spoke to Jared's mum, Vicky, and wanted to share some of what she told me, and let you know how you can help #JusticeforJaredB 1/29
Jared was Vicky's first born, arriving on 20 February 1994. Vicky was a young mum, only 19, but very excited for the future.
Jared was a perfect baby, he didn’t cry a lot, he slept and fed well, but at his 6mth check-up there was concern he wasn’t putting weight on. 2/
From that point on Jared received support. They had input from physiotherapists, occupational therapists and a speech therapist at their home, along with a brilliant community paediatric nurse. 3/
Spent day reading PFDs (Prevention of Future Death) reports and associated stuff. So disheartening to see same issues crop up repeatedly. Am gonna share one lowlight, whilst recognising these are only written due to ongoing concerns after someone has died..
so really they're all lowlights. In my experience NHS Trusts and care providers will do *anything* to avoid being issued a PFD, it's like reputation is all that matters.
'Mr Gregory died because he had not been drinking enough, though his Alzheimer’s was not end stage, and before he was admitted to hospital he had been mobile; able to wash, dress and feed himself; and enjoy a good quality of life'