I have #LongCovid. I don’t know if I’ll ever be able to work full time again. I got a PhD in Applied Physics, in part funded by the Dept of Defense, to get my job WHICH I LOVE. I am incredibly privileged to have good health care, disability insurance, and understanding managers.
https://twitter.com/RebeccaCokley/status/1365873973381246978
It is ... infuriating, confusing, and difficult beyond words to be watching the world continue to ignore #LongCovid when discussing outcomes of this disease, and impacts on society. It’s not just about whether you live or die in the near term.
I got sick last March; the first week of March, in fact, theoretically before Covid-19 was spreading in the US. Only in hindsight, as we learned more about the disease did I realize that my symptoms lined up perfectly with it.
I thought I had recovered, until my debilitating neurological symptoms started in early October. WE DO NOT KNOW HOW THIS DISEASE PROGRESSES. We do not know how disabled people will be by this disease. We simply do not know.
The NIH study that I’m in, looking at neurological effects of #LongCovid, is incredibly open-ended, because, again, WE DO NOT KNOW. As a scientist, I find this positive. As a patient, it’s really hard to face.
An update thread on my six-month symptom anniversary:
https://twitter.com/sagetoko/status/1378528537745879047
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