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Blood Cancer UK

11 Mar, 10 tweets, 2 min read

https://twitter.com/bbcnews/status/1369897146649042945

1/ People with blood cancer will be concerned by this news. We have been worried about how much protection the vaccines will give people with blood cancer because vaccines do not usually work as well for people with compromised immune systems.

https://twitter.com/bbcnews/status/1369897146649042945

2/ This study, while not peer reviewed and only looking at a small number of people, adds to that concern.

3/ This means that if you have blood cancer, it is important that you do not assume you have protection even after you have had the vaccine, particularly after just one dose, and that you continue being careful to avoid Covid.

4/ But while this news is concerning, people with blood cancer should still definitely have the vaccine, as it is safe and even a smaller chance of protection is much better than none.

5/ This study highlights why it is so important to focus on vaccine effectiveness in people with blood cancer, but it does not tell us what factors predict if someone with blood cancer is likely to be protected.

6/ We urgently need research to get answers for this, and so far the Government has not provided the money needed to carry out this research properly. Until it does, we worry people with blood cancer face a future of shielding indefinitely, not knowing whether they are protected.

7/ The Government needs to make this research a priority. The JCVI also needs to look again at the evidence on the right timing for the second dose for people with cancer, as this raises questions about whether people with cancer should get the second dose sooner.

8/ If you’re feeling worried by this news or want more information, please call our support line on 0808 2080 888 - it’s open at 10am.

https://twitter.com/bloodcancer_uk/status/1369962075485769729

9/ We've also spoken to Dr Piers Patten, a clinical haematologist from Kings College Hospital and one of the researchers behind the study, to find out more.

Here's what he had to say 👇

https://twitter.com/bloodcancer_uk/status/1369962075485769729

https://twitter.com/bloodcancer_uk/status/1369988201465675776

https://twitter.com/bloodcancer_uk/status/1369988201465675776

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More from @bloodcancer_uk

Blood Cancer UK

@bloodcancer_uk

2 Jan

1/ THREAD: With many schools going back on Monday and the infection rate now high across the country, we are concerned that parents who have blood cancer are not being considered in the Government’s decisions.

2/ Where schools are staying open, the Govt urgently needs to give advice and support for parents with who are vulnerable. This include ensuring high-quality home learning is in place, so children don’t fall behind if they have to stay at home to protect the health of a parent.

3/ We know that many parents with blood cancer are worried about their children going back. If you have blood cancer and live in an area where the infection rate is high, we think it is now worth considering keeping your children off school if you can.

Read 8 tweets

Blood Cancer UK

@bloodcancer_uk

27 Nov 20

BREAKING: people with blood cancer who are extremely clinically vulnerable have been moved up the provisional priority list for a vaccine. They are now at the same priority level as people aged over 70. This is great news! /1

Previously, younger people with blood cancer were only expected to get a vaccine after everyone aged 65+ had been offered one. But the new priority list better reflects the fact that people with blood cancer are especially vulnerable to #COVIDー19. /2

There’s also the good news that adults who live with people with blood cancer will also get priority. This is important because any vaccine might not work as well in people with compromised immune systems. /3

Read 5 tweets

Blood Cancer UK

@bloodcancer_uk

27 Nov 20

⚠️ The Government yesterday published guidance for people in England who are clinically extremely vulnerable (CEV), for after England returns to the tier system on December 2nd.

Here are our thoughts (thread). 1/
gov.uk/government/pub…

It says: “your employer may be able to furlough you under the Coronavirus Job Retention Scheme, which has been extended until the end of March 2021”. 2/

This applies to all tiers, so if you can’t work from home you should speak to your employer about whether this is possible. But we’re concerned that elsewhere in the guidance it says that people who are CEV and can’t work from home can carry on going into work. 3/

Read 5 tweets

Blood Cancer UK

@bloodcancer_uk

27 Nov 20

👧 Supporting your child's mental health 👦

(A thread...)

👨‍👩‍👦 Our Support Services Team have been hearing from lots of people who's children are experiencing anxiety around going to school, and are worried about the risk of bringing the virus home with them and infecting a parent who has #bloodcancer. 1/

🏥 This is a difficult situation for both children and parents. Sometimes, your treatment team might have access to psychological support for your children or teenagers, or an option to get support as family – it's worth asking. 2/

Read 10 tweets

Blood Cancer UK

@bloodcancer_uk

22 Jun 20

⚠️ Shielding announcement - 22/06/20 (England only) ⚠️

Shielding has been incredibly tough for many people, but this blanket approach to lifting it is only going to add anxiety in many cases. 1/

This announcement does not give people greater freedom, as the shielding guidelines have only ever been optional.

Instead, it risks taking away people’s freedom not to go to work or to the supermarket if they do not feel it’s safe to do so. 2/

The government needs to think again and continue to support those most vulnerable to becoming seriously ill from the coronavirus, or we could see people being forced to choose between their financial security and their health. 3/

Read 8 tweets

Blood Cancer UK

@bloodcancer_uk

11 Jun 20

@UniofNewcastle

Today is #BiomedicalScienceDay2020 - and what better way to celebrate than sharing our latest #ResearchSpotlight with you all!

🔬 This month we're celebrating the work of Professor James Allan, who leads on a Blood Cancer UK funded project and is based at the @UniofNewcastle.

💉 James' work is about understanding how unique genetic changes in acute myeloid leukaemia (AML) can be used to tailor treatment.

🧓 AML is most common in the elderly and many of these people cannot have #chemotherapy because of the harsh side effects it causes.

💊 To get around this, James and his team are looking to find ways of using other existing therapies more strategically, based on specific characteristics of these peoples' disease. This is called "stratified medicine."

Read 5 tweets

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