@OldHeadFighta @lakeparkcpl @JT_Berone @national_pain 1-The NPS focus is primarily a data mining study of CPPs and pain, states pain is a biopsychosocial experience, places emphasis on 'alternatives' & 'multi-modal' options while constantly equating opioids w/ OUD & addiction as 'risk'.
'Reduce new starts', a rule of thumb.
@OldHeadFighta @lakeparkcpl @JT_Berone @national_pain 2-While NPS professes to support 'patient centered care' we know that that is not possible when opiates are concerned as treating pain in that realm is overseen by non medical entities creating policies that involve DEA/DOJ/LE involvement.
@OldHeadFighta @lakeparkcpl @JT_Berone @national_pain 3-The NPS actually removes MD and PT autonomy in making medical decisions. It also professes not to discriminate but promotes screening people for recreational drug use, childhood trauma, domestic violence or rape as a 'risk management' tool in regard to prescribing practice.
@OldHeadFighta @lakeparkcpl @JT_Berone @national_pain 4-Guess that's where I'd start if I were pointing out issues I have with the National Pain Strategy.
And I'd be remiss if I didn't add the involvement of 'pain psychologists' leading a lot of the discussions re: policies and practices. 😔
@OldHeadFighta @lakeparkcpl @JT_Berone @national_pain 5-For anyone who is unfamiliar with the National Pain Strategy, here is the summary/strategy.
You tell me if YOU are getting 'patient centered care'.
You tell me if YOU feel you have a CHOICE in how YOUR PAIN is treated. 🧐 #ShareOurPain
iprcc.nih.gov/national-pain-…

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More from @ravensspirit68

8 Mar
@OldHeadFighta @headdock @BethDarnall 1/People on coumadin who have PRO TIMES isn't a good example to pain patients being tested for illicit drug use to see if they're closet recreational drug users or addicts. People in pain should not be being penalized for the actions of others.
@OldHeadFighta @headdock @BethDarnall 2/Now if we're going to put ALL patients with ANY disease or health condition into PDMP databases and drug test them multiple times a year randomly, all to ensure 'pt safety', let me reiterate ALL PATIENTS, then it would no longer be a discriminatory policy. It also wouldn't fly.
@OldHeadFighta @headdock @BethDarnall 3/For instance, a heart patient using cocaine for instance. It would be in their best interest to drug test them regularly right to prevent a catastrophic cardiac event? And since anyone could be using illicit drugs that could harm them ALL ppl should be tested by this 'logic'.
Read 6 tweets
5 Feb
1/Here's the content of the letters being sent out for the National Pain Council letter drive.
I'll also be composing a letter for the White House, POTUS, and FLOTUS.
@JonelleElgaway @ThomasKlineMD #PainCareCrisis

My name is Arianne...
2/ I am one of tens of millions being harmed by the unauthorized and baseless set of new standards and one-size-fits-all "rules” set forth by the CDC for treating chronic pain.
3/ I have two painful conditions, Myalgic Encephalomyelitis and a C-spine injury, both conditions leave me dealing with daily intractable pain.
Read 18 tweets
9 Dec 20
…worthy of our own love and acceptance…worthy of respect, worthy of feeling beautiful, worthy of living our dreams…worthy of just feeling worthy.
cont...👇 Image
2/I wish that I could be one of those women who are naturally comfortable in their own skin, a woman who bears their unique qualities like a jeweled robe and who sheds her robe often to reveal to the universe her true inner radiance.
3/I wish I could be a woman whose confidence permeates any room that she’s in, a woman who owns her space and honors her gifts inside and out.
Read 9 tweets
8 Nov 20
We can break this down point by point and apply it to what is happening to people in pain who require opiates for adequate pain relief.
#OpioidHysteria
#PainCareCrisis
#HumanRightsAbuses
“MORAL JUSTIFICATION” The rallying cry, “NOT MY KID”.
Moral justification & high emotion drove legislation. The #GreatOpioidLie of how addiction by prescription was the cause of ODs became mainstream fodder.
Pts in pain? Acceptable collateral damage.
#OpoioidHysteria
“EUPHEMISTIC LABELING” #CATASTROPHIZER became the catchphrase of the day.
OVER PRESCRIBER
DRUG SEEKER
When pushback came against the catastrophizing label, those being labeled were actually asked to come up with a label that is more acceptable to them, but means the same thing.
Read 10 tweets
1 Nov 20
1-By Jacob Nordby
I don’t know how humans got here
Probably not a garden and a snake
Or a rib and angels
And whatever
I don’t know how our brains became machines
Always calculating ways
To take things or each other
And destroy or at least use them
You know?
As if somehow we aren’t part of everything
Don’t need all of it
And each other
Just as much as air
Or food or the blood in our hearts & veins
But I do know how my father’s hands looked
Holding my little sister
When she was born
Like some fragile thing made of
Light & silk & dragonfly bones
Read 9 tweets
10 Oct 20
Drug Seeker Part III
"DRUG SEEKERS" BEWARE
#OpioidHysteria
#PainCareCrisis
#GetTheFacts
👇
So after almost 8 years of undertreated/untreated pain, this year I was officially labeled a drug seeker by certified mail & banned from care by a medical clinic in our town for requesting a benzodiazepine medication that was helping to mediate severe spacial disparity & vertigo.
Vertigo is now another battle that started after a Shingles & a #MyalgicEncephalomyelitis flare. I was also beginning diagnostics to determine if I have breast cancer as well. Getting that letter was humiliating-Devastating as I live in a rural town with limited options for care.
Read 15 tweets

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