@kirstyforbes15
I would also mention that surely if many PDAer adults are living happy and independent lives, then how can they have PDA?
It contradicts how PDA is meant to be pervasive. Some argue demand avoidance is often illogical & crippling.
@kirstyforbes15
You are technically correct about significant disagreement over PDA's name, & its "pathological" descriptor. Did you know that even Newson expressed dislike for the name?
@kirstyforbes15
I would also add that there are ethical concerns for forming an identity around PDA considering the premature decision to view PDA as an ASD. Also lack consideration of perspectives of non-autistic persons with PDA.
I would say it is interesting that you say it is not always a choice to display the demand avoidance. The fact that it is noted it is a choose sometimes, directly contradicts some clinical accounts of PDA...
@kirstyforbes15
If a PDA's brain acts like someone has experiences trauma, then that raises the question that PDA etiology is routed in trauma. Thus cannot be autism.
@kirstyforbes15
You discuss PDA being from early life. The literature does not require to be from early life, or developmental in nature.
@kirtyforbes15
For one persons can transition into under transactional accounts. Clinicians state people can transition into PDA, including Newson, Wing and Gould. Developmental traits are not essential for a PDA diagnosis.
@kirstyforbes15
Interesting point about misunderstanding & labelling of PDA actions, I would point out it is good practice to work with individuals and to place CYP/ adult in control researchgate.net/publication/33…
@Kirstyforbes15
Advocating for PDA to be diagnosed as a dual diagnosis with autism, ignores the rights of non-autistic persons with PDA. Views them as non-entities. Disregards autistic wishes for autism not to be subdivided.
Slide 28
@kirstyforbes15
I would point out accepting PDA exists in non-autistic persons, and advocating for their rights is inline with neurodiversity perspectives, as neurodiversity is about inclusion of others.
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They go on argue that using reinforcement based approaches can be detrimental to a person, as it leaves them without a functioning way of escaping aversive experiences.
@DrJessTaylor Should a person always be held accountable because they chose to do an act?
For example, some autistic persons are innocent of some charges because they did not mean to do it, like not meaning to harass someone, i.e. they lacked "criminal intent".
@DrJessTaylor From my understanding most/ all persons who are carrying resolved trauma/ still affected by trauma will have issues regulating their arousal levels.
A highly aroused person will process information more slowly, make more emotive decisions...
@DrJessTaylor Highly aroused persons are more likely to display distress behaviours, some of these are quite extreme. People, who are sometimes panicking maybe violent/ self-harm/ threaten voilence & self-harm etc.
@Autisticcat2 Potentially, I fully accept that one could argue that there would be a different culture & society if autistic persons were 98% of the population.
@Autisticcat2 For one I think social model of disability would be fully practiced, with universal design incorporated into as many things as possible.
@Autisticcat2 One could also argue that autistic "logic", sense of fairness, strong sense of right and wrong, would create a much more socially just society and culture.
"Instead, we argue for much-needed research to establish what interventions are most effective
for problematic demand avoidance in autism spectrum disorder." (O'Nions et al. 2018). thelancet.com/journals/lanch…
Term "problematic" demand avoidance is a HUGE problem
It is an issue due to the subjective nature in what is a problem, dependent on person's views, and the nature of the situation at any given time etc etc.
What is "problematic demand avoidance" in autism, is likely to be different for different stakeholders. I suspect many autistic persons would view certain dogmatic positions by some non-autistic stakeholders to be a "problem".
Autistics have joked about non-autistics being the ones with a mental disorder, or who have ToM (autistic) deficits, or RRBIs, such as overwhelmingly pathologising autistic features.
Has anyone joked that such actions, like always interpreting autistic features as deficits/ something wrong, could be viewed as meeting the definition for "autos"; non-autistics become removed from social interaction with those who are neurodivergent?
That effectively autistic persons can joke that non-autistic persons are also autistic, due to their RRBIs and issues with social interactions, including ToM & Empathy deficits?
I am getting the impression that O'Nions arguments for viewing social demand avoidance in PDA as "strategic" are contradicted by her early work".
O'Nions is partly trying to argue that PDA social demand avoidance behaviours are not the same as "sophisticated" behaviours of those with callous-unemotional traits. (O'Nions and Eaton, 2020).
In their previous work, they viewed PDA social demand avoidance to be manipulative in nature. See O'Nions et al, 2014 and 2015. This matters as O'Nions helped to develop two tools that view PDA social demand avoidance to be manipulative.