sometimes people assume i’m generalizing my experience of being autistic but honestly i don’t find my experience very representative - where i’ve learned the most is from the experiences other autistic people have that i don’t connect to, and delving deeper to find out why
the diagnostic criteria are biased & largely unhelpful & it bugs me how arbitrary they are - NT “experts” don’t bother wondering *why* some autistic people would demonstrate those traits. what do they mean? where are they coming from? what is a good reason for a brain to do that?
when i hear a lot of autistic people talk about an experience/trait i don’t have, i want to know more about it. how it feels, where it comes from. almost every time i have eventually seen how it relates to something within myself that seems different externally, but really isn’t
finding the common thread, the source for these disparate experiences shows what is actually going on - the processes and algorithms our brains are running on, the systems of our bodies and brains that appear to be a random dispersal of traits but are actually cohesive & logical
i always look for a good, logical reason a brain would function that way. “it’s broken” or “it’s slow” are not reasons, they’re arbitrarily value-laden characterizations. i go logically from one step to the next and usually there is a good reason. a rational, consistent answer.
i don’t expect to always find a good intentional reason a brain would work a certain way, so if i don’t find one, i look for a logical chain of events. sometimes i can’t see one until weeks go by, i learn something else, and suddenly i can see the pattern i couldn’t see before
when i find an explanation, i go challenge it. try it out on people. as i figured out more and more, the big picture started to take shape. all our eccentricities make more sense than i knew. our brains feel more intentionally made the way they are than i imagined.
so when i talk about how our brains work, i’m not talking about traits and experiences. there are so many other things that affect a human brain than its basic structure and processes and that’s why diagnosing by traits is so unhelpful and leaves so many people out.
i don’t expect everyone to see the processes i describe immediately reflected in their own brains. i didn’t see them all immediately in my brain. i figure if people like how i think, they’ll think about how the processes i describe relate to their own minds or not.
i figure if people don’t find my way of looking at their brain helpful, they’ll keep doing it their way. i want people to see just how truly differently brains can operate and appreciate what theirs is doing - to be able to see the rational, cohesive system at work
i think it’s really helpful to be able to see what is your brain and what is the result of what happened to it. i want you to be able to see how the whole thing works, if you want to, because that’s what i need. i can really see the big picture of our brains and what they do now
so i’m not generalizing my experiences, but i am using the skills of rational analysis and logical deduction that are native to my autistic brain so my ideas will be shaped by the way my mind works. it’s one worldview. there’s no way to ever objectively prove one worldview right
i know for sure, however, that it’s more accurate and realistic than the medical model. that thing is logic-free. it makes no fucking sense at all and it’s an intensely unhelpful and damaging way to see ourselves. that’s why i’ll keep looking for the truth it’ll never provide.

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More from @erikaheidewald

4 Apr
i started contemplating something & i have no idea if it’s right or wrong so i’d love to hear people’s personal thoughts. basically - are we sure autistic people don’t pick up on social cues? or do we just not know the unspoken social rules behind them that dictate their meaning?
i was thinking in particular about facial expression and tone. those are things you can learn from pattern recognition, and a lot of people who have spent a lot of time socializing learn so many patterns so well that they struggle to figure out if it was instinctual or learned
i was thinking in my own personal life - who have i seen not pick up on social cues? obviously there’s always the chance i’m not the ideal observer, but the examples i can think of are neurotypical men ignoring women’s cues of discomfort. they pick up on it, but they don’t care
Read 15 tweets
3 Apr
the topic of ADHD meds and addiction was making me think about how we discuss addiction as if it is a monolithic experience and this has always been confusing for me because i don’t get physically addicted to things. i just don’t. i don’t know what that feels like, at all
nobody ever acknowledged this as a possible reality so i’ve tested it over and over again. anything i like and do consistently, i’ll quit for a while just to see what happens. i’d hear people talk about what it was like to quit coffee or soda or sugar so i’d try it and.. nothing
i started vaping because i enjoy it and also because i don’t have great impulse control and i despise cigarettes but i would smoke them if people offered them to me so i decided i’d get a juul and never accept a cigarette again. that worked. i decided to quit vaping a year ago
Read 18 tweets
3 Apr
i mentally feel totally fine but my body has major anxiety - can’t eat, tons of muscle knots, everything hurts - and by now i know that means it is clearly feeling some type of way about something and i’m more than ready for it to just hurry up and tell me what it is
a lot of people identified with having anxiety pain so fyi if you live in a place where this is available, i ate one square of this 5 to 1 CBD to THC chocolate before bed and it made me really relaxed and my body feels so much better today. lightyears better. i recommend it!
weed is really complicated and individual for people with anxiety and i wish people had been more truthful with me about that early on so FYI from what i’ve learned for myself - weed without a higher CBD content gives me panic attacks but high CBD makes it *completely* different
Read 5 tweets
3 Apr
autistic kids are described in terms of “delay” - reaching developmental milestones later than NT kids. i think we should cut that the fuck out. autistic kids aren’t neurotypical so we aren’t going to be on the same developmental schedule. what if we’re right on time for ours?
many autistic kids start speaking later but when they do, speak in full sentences. a family friend didn’t speak until he was 4 and his mom was encouraged to send him to an institution. he can remember before he spoke and he knew people wanted him to, but he didn’t know why
we learn differently & think with a different process which means we will learn some things earlier and some things later than NT kids - and a lot of it depends on if we have access to the information and tools we need. there are logical reasons behind our developmental schedule
Read 6 tweets
2 Apr
omg i just found out about the phonics vs whole language debate and for decades people have been fighting over which is the best way to teach kids to read and apparently did not realize that phonics works for NDs and whole language works for NTs?? it’s... really fucking obvious
this is the problem with the assumption of neurotypical as default. neurotypical is not default. it’s not an overwhelming majority by any means, might not even BE a majority. there is no one best way to teach anything. there are always going to be at least two.
neurotypical people are holistic processors - they process things in chunks that do not need to be broken down into discrete parts. autistic people are data processors - we process all the discrete parts. this affects how we learn, think, process stimuli - everything.
Read 13 tweets
2 Apr
being extroverted & autistic is a bit different bc being the least favorite person in a friend group isn’t an option for me. i can’t blend in. my only social options are to be the center of attention or not there at all. i don’t know how to be inconspicuous
being the least favorite means you are liked, but less than other people. this does not happen to me. if people don’t like me, they fucking HATE me and they will stop at nothing to get rid of me and it turns into really intense bullying and shit like that
there’s such an association between neurodivergent people and introverts and i wonder if it is really so rare for autistic people to be extroverted or if that just causes us to not get diagnosed so then it seems like we don’t exist
Read 5 tweets

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