the topic of ADHD meds and addiction was making me think about how we discuss addiction as if it is a monolithic experience and this has always been confusing for me because i don’t get physically addicted to things. i just don’t. i don’t know what that feels like, at all
nobody ever acknowledged this as a possible reality so i’ve tested it over and over again. anything i like and do consistently, i’ll quit for a while just to see what happens. i’d hear people talk about what it was like to quit coffee or soda or sugar so i’d try it and.. nothing
i started vaping because i enjoy it and also because i don’t have great impulse control and i despise cigarettes but i would smoke them if people offered them to me so i decided i’d get a juul and never accept a cigarette again. that worked. i decided to quit vaping a year ago
i was really curious if i’d experience the withdrawals and stuff people talked about bc i’d never had a nicotine craving but i felt like maybe i am just so delusional i tell myself i don’t have them because actually i am addicted? but i didn’t feel anything. i felt normal.
after a while i decided to start vaping again because i like it. i’ve done my research, i feel fine with the low level of risk involved. i’d just quit because i felt like i should. the constant narrative of “you must be addicted to these things if you use them” made me paranoid
i don’t have to not do things because other people get addicted to them. i don’t. i very much see the difference. i’ve seen my friends having nicotine cravings and withdrawals and i can tell they are going through something really difficult that i have never experienced.
i had a friend steal from me when she was struggling with cocaine addiction and i saw it with my own eyes right in front of me and i knew i’d never experienced what she was feeling. i felt awful for her because it was clearly not her and she wasn’t in control. i couldn’t be mad.
it kinda pisses me off that for years people were basically gaslighting me telling me that i must be addicted to things because those things are addictive to other people and it was really fucking confusing and caused a lot of self-doubt. i doubted my perception of reality
it was like - if i think i have never had a craving or withdrawal feeling, if i deeply believe i am not addicted to anything, does that mean i am actually so horrifically addicted that i have completely deluded myself? that’s the psychological turmoil it used to put me in.
but now, i’ve tested it enough. i know myself. i’ve met a few other autistic and ND people who have mentioned the same thing to me, so i know that it’s a real thing for some of us. i know many NDs do struggle with addiction, so i feel like it may be another area with a wide range
autistic people have hyper- and hypo-sensitivities. i have incredible hearing and vision and almost no sense of smell and very dull sense of taste. addiction must be like that, too - some of us tend to get addicted to things very easily, and some of us not at all.
i’d really like for society to start acknowledging that addiction is far more complicated than people make it seem and it doesn’t happen to everyone. some people need ADHD or pain meds to function and treating us like we’re addicted is harmful to our mental and physical health.
it also really trivializes what people go through when they are dealing with addiction. i can stop doing anything i do whenever i want and will feel no physical repercussions. they can’t. don’t say that we are the same, that’s cruel to all of us.
meds don’t affect my body the same way they do other people and it’s actually really frustrating bc there are never any answers for me, just people telling me i must be wrong or lying. i’ve avoided taking most meds bc they just didn’t do anything. normal dosages do nothing.
i would actually love to have medical information that applies to me. i’d love to know for sure what is safe and effective without having to do experiments on myself after consulting medical journals to try and figure out what levels of meds will kill me so i can avoid those
i’ve had headaches almost every day of my life and taking fewer than four ibuprofen at once is a waste, it does nothing. so i research the shit out of every drug i take and see how much i can take how often without killing my organs and i only take them if my pain is over a 5
this is ridiculous. despite billions of dollars being spent on research into autism - focused on how to make us act neurotypical or not exist at all - every autistic person i know has almost zero information about our health & we have to play guess & check our whole lives
very random side note but bc a lot of people also feel like meds don’t work on them - the only nausea med i have ever found that works is Ondansetron/Zofran. i was fucking shocked bc nothing else has ever worked. if you have a problem with nausea try bringing it up to your doc 🤷‍♀️

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More from @erikaheidewald

4 Apr
i started contemplating something & i have no idea if it’s right or wrong so i’d love to hear people’s personal thoughts. basically - are we sure autistic people don’t pick up on social cues? or do we just not know the unspoken social rules behind them that dictate their meaning?
i was thinking in particular about facial expression and tone. those are things you can learn from pattern recognition, and a lot of people who have spent a lot of time socializing learn so many patterns so well that they struggle to figure out if it was instinctual or learned
i was thinking in my own personal life - who have i seen not pick up on social cues? obviously there’s always the chance i’m not the ideal observer, but the examples i can think of are neurotypical men ignoring women’s cues of discomfort. they pick up on it, but they don’t care
Read 15 tweets
3 Apr
sometimes people assume i’m generalizing my experience of being autistic but honestly i don’t find my experience very representative - where i’ve learned the most is from the experiences other autistic people have that i don’t connect to, and delving deeper to find out why
the diagnostic criteria are biased & largely unhelpful & it bugs me how arbitrary they are - NT “experts” don’t bother wondering *why* some autistic people would demonstrate those traits. what do they mean? where are they coming from? what is a good reason for a brain to do that?
when i hear a lot of autistic people talk about an experience/trait i don’t have, i want to know more about it. how it feels, where it comes from. almost every time i have eventually seen how it relates to something within myself that seems different externally, but really isn’t
Read 13 tweets
3 Apr
i mentally feel totally fine but my body has major anxiety - can’t eat, tons of muscle knots, everything hurts - and by now i know that means it is clearly feeling some type of way about something and i’m more than ready for it to just hurry up and tell me what it is
a lot of people identified with having anxiety pain so fyi if you live in a place where this is available, i ate one square of this 5 to 1 CBD to THC chocolate before bed and it made me really relaxed and my body feels so much better today. lightyears better. i recommend it!
weed is really complicated and individual for people with anxiety and i wish people had been more truthful with me about that early on so FYI from what i’ve learned for myself - weed without a higher CBD content gives me panic attacks but high CBD makes it *completely* different
Read 5 tweets
3 Apr
autistic kids are described in terms of “delay” - reaching developmental milestones later than NT kids. i think we should cut that the fuck out. autistic kids aren’t neurotypical so we aren’t going to be on the same developmental schedule. what if we’re right on time for ours?
many autistic kids start speaking later but when they do, speak in full sentences. a family friend didn’t speak until he was 4 and his mom was encouraged to send him to an institution. he can remember before he spoke and he knew people wanted him to, but he didn’t know why
we learn differently & think with a different process which means we will learn some things earlier and some things later than NT kids - and a lot of it depends on if we have access to the information and tools we need. there are logical reasons behind our developmental schedule
Read 6 tweets
2 Apr
omg i just found out about the phonics vs whole language debate and for decades people have been fighting over which is the best way to teach kids to read and apparently did not realize that phonics works for NDs and whole language works for NTs?? it’s... really fucking obvious
this is the problem with the assumption of neurotypical as default. neurotypical is not default. it’s not an overwhelming majority by any means, might not even BE a majority. there is no one best way to teach anything. there are always going to be at least two.
neurotypical people are holistic processors - they process things in chunks that do not need to be broken down into discrete parts. autistic people are data processors - we process all the discrete parts. this affects how we learn, think, process stimuli - everything.
Read 13 tweets
2 Apr
being extroverted & autistic is a bit different bc being the least favorite person in a friend group isn’t an option for me. i can’t blend in. my only social options are to be the center of attention or not there at all. i don’t know how to be inconspicuous
being the least favorite means you are liked, but less than other people. this does not happen to me. if people don’t like me, they fucking HATE me and they will stop at nothing to get rid of me and it turns into really intense bullying and shit like that
there’s such an association between neurodivergent people and introverts and i wonder if it is really so rare for autistic people to be extroverted or if that just causes us to not get diagnosed so then it seems like we don’t exist
Read 5 tweets

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