Now reading Nobody’s Normal: How Culture Created the Stigma of Mental Illness. It’s a new book by @roygrinker, who also wrote the autism assumptions-challenging Unstrange Minds. Will try to thread my ongoing commentary.
Although Grinker is not himself a psychiatrist, he comes from a line of such professionals, and also studies mental illness from an anthropologist’s perspective.
“Although 60 percent of people with a mental illness in the United States still receive no mental health treatment, mental illness is fast becoming a more accepted and visible part of the human condition.” @roygrinker, in #NobodysNormal
“Stigma isn’t in our biology; it’s in our culture. It is a process we learn from within our communities, and we can change what we teach.” #NobodysNormal
Grinker’s grandfather, formerly a patient of Freud’s, said one of Freud’s wishes was that “doctors could lead people out of misery, not into a perfect life but into ordinary unhappiness.” #NobodysNormal#MentalHealth
“The stigma of mental illness is when your psychological state defines your identity; when people see you as flawed & incompetent; when you are invisible; or when people see your suffering but blame you for it.” -Roy Richard Grinker, in #NobodysNormal
“By illuminating the extraordinary range of beliefs & practices in the world, anthropology challenges the mechanisms of exclusion—race, class, sex & the institutionalization of the “insane,” for ex.—that doctors, scientists, & policy makers once justified w/biological arguments."
“Nobody’s normal. And since we have for so long used the concept of ‘normal’ to decide who we accept into our social worlds and who we reject, it’s about time we realize that normal is a damaging illusion.” @roygrinker, in #NobodysNormal:
I had no idea (or more likely had not retained) that the DSM-I (The Diagnostic and Statistical Manual of Mental Disorders) was written by U.S. Military psychiatric personnel during WWII, and was not adapted for civilian use until 1953. #NobodysNormal
An obsession with “independence” is why Europeans "created mental illness categories during the early industrial revolution. The idea was to separate out unproductive workers into distinct identities.” #NobodysNormal
In societies with multiple caretakers and a range of social supports, no one expects anyone to be completely independent, which means disability isn’t stigmatized the same way as it is in Western society—because Interdependence is the implicit norm. #NobodysNormal
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Having a disabled child is not particularly rare. Yet our society rarely addresses disability as a real parenting possibility, which means non-disabled parents like me are usually in the dark about best practices for raising a child with a disability. 2/
This state of ignorance is unfair to everyone involved and has made countless kids and parents miserable.
Let’s talk about Why No Autistic Child Should Be in ABA Therapy. I am coming at this from the perspective of a parent whose autistic son is an older teen. Regrets, I have a few. And so we need a thread!
Professionals usually tell parents of newly diagnosed autistic children that it is "critical" to put those children in early intervention therapies like Applied Behavioral Analysis (ABA). Parents are warned about "missing a developmental window…” 2/
…then urged to place young autistic children in intensive therapy for up to 40 hours per week. We are told that these therapies are justified by decades of research, and that they will save our autistic children by making them "indistinguishable from their peers.” 3/
I think it should be OK to write about our autistic kids. I do. Because parents who aren't autistic themselves—or who are new to autism—need parent role models who do their best to understand & love their autistic kids, and be the parents those kids need them to be.
A thread! 1/
Parent role models are needed because media & social attitudes about autism/autistic ppl are consistently awful. Parents who have only every hear awful things about autism need guidance for accepting who their kids are, so they can avoid blaming their kids for who they aren't. 2/
Parents of autistic kids also need to learn to give mainstream social expectations a flying middle finger.
All parents, whether their children share their genes or not, obsess about how alike and how different their children are from them. Some of us want to write about that. 3/
Sadly, most writing from parents about autistic kids is not only awful, but self-defeating: If you publicly write smack about your kids, then it is hypocritical to complain when other people treat those kids badly.
So what does GOOD writing about autism & parenting look like? 1/
Also, how can we parents recognize harmful writing about autistic children, and avoid those negativity pitfalls?
Following are four too-common examples of such bad "autism parent" writing, why using these approaches is not useful, and what you can do instead. 2/
Bad autism parent writing trope #1: "I am furious that people celebrate autism acceptance. My child suffers from autism and needs a cure.”
Considering autism a curable disease is misinformed thinking. High-support autistic people have always been part of society. 3/
Autistic distress behavior is then perceived as non-compliance & the kids get punished for "misbehaving." And THEN the parents publicly complain about the kids, focusing on how awful autism is for the parents—rather than on the tragedy of autistic kids' needs being overlooked. 6/
I can't blame parents of autistic children for being pissed off in general, because our kids' and families' rights, supports, and services needs are rarely sufficiently addressed: We ALL feel disenfranchised, because we ARE all disenfranchised. 7/
But this sorry state of autism & family supports is also why, as non-disabled parent, I look to developmental disability organizations like @autselfadvocacy and @TheArcUS for their insider disability experience and knowledge about how to address disability disenfranchisement. 8/
As the parent of a high-support autistic young adult, what do I want for my son’s future & from society? I want other people accepting my son on his terms, & letting him know he's considered part of the community.
(Yes, my pretties, sit tight for a thread.) #neurodiversity
1/
I wish attitudes of autism and disability acceptance were more common, so that I could feel less anxious about my son's safety and well-being as he moves through the world now, and also in his future without me and his father by his side. 2/
But an accepting attitude is not reality for most autistics, whether or not they share my son’s intensive needs. He and his autistic community members tend to encounter disinterest, misunderstanding, or outright hostility from society—sometimes even within their own families. 3/