I found out that I was Autistic, at the age of 29, fairly late in life.

When I would tell people this newly discovered information, often, they would have a range of reactions, from not knowing how to respond, to disbelief.
In my experience coming out, Autistic has been a lot like coming out Queer -you have to come out over & over again.

It is an endless process with each & every new person you meet (if you choose to disclose that information).
When you do decide to disclose this information to people who may have been close to you in your life, you may lose people, because some humans will be unable to accept the new information, in relation to the way they think of you.
People tend to have a very narrow, preconceived, idea of what it means to be Autistic.  That idea may not match the person that is standing in front of them, because representation of Autistic People in the media has historically been very limited.
Something else that I’ve seen happen, when an Autistic person is explaining their experience of what it is like to be Autistic, you may hear, someone’s say, “Oh, well, doesn’t everybody experience that?” or “Everybody feels that”.
No. Everybody is not a little Autistic. There is no little Autistic. Autistic is a yes or no checkbox. You are, or you are not Autistic.
Years ago, many years ago, long before I was diagnosed and found out I was Autistic, I remember sitting and listening to a woman sharing about the fact that she was Autistic.
I remember thinking, as she shared her experience of what it was like to be an Autistic person, “Well, it doesn’t everybody’s stories that?” “I experienced that too?”

I didn’t know I was Autistic.

Not everybody experiences those things, but I didn’t know that back then.
I know two people now who have made these comments. “Well, doesn’t everybody experience that?” who have then later identified to be Autistic.

I’ll leave you to think about that for yourself.
I would say that out of all of the reactions, to my disclosing of my late autism diagnosis at the age of 29, my childhood best friend’s response was probably one of my favorites.
When she said, “Oh, suddenly everything makes sense” I didn’t have the need to now justify what I had just divulged.
Many other responses, such as “I’d never guessed”, or “you don’t look autistic” or, “but you must be so high functioning” left me needing to do further explaining, because these responses seem to portray doubt.
One difference I want to notate between coming out Autistic/Neurodivergent and coming out Queer.

When I’ve come out in the past as a Queer person, people don’t typically question it – tell me that they “would never have guessed:“don’t believe it”/“I don’t look Queer”.
For some reason, people feel like these responses are appropriate when you disclose being Autistic.  I think that has a lot to do with stigma.
We still have a lot of stigma around being Autistic.  When you tell someone you are Autistic, right now, a lot of people are going to automatically assume that is a bad thing, because that’s what they’ve heard – “being Autistic is a bad thing”.
They’ve heard that having Autistic child is a bad thing, because that is what the message of the mainstream media has been saying for so long.
You share “I’m Autistic” and someone says, “Oh no, you’re not, I wouldn’t have guessed”. Because they think you are saying something bad about yourself.
When we hear people self-deprecating, even though that’s not what we’re doing, when we share that we are Autistic, a lot of society’s instinct and cultural instinct is to tell the person, “Oh, there’s nothing wrong with you. You’re not broken”
This is assuming that Autistic people are broken.

We’re not broken. 

I didn’t always know that Autistic people are not broken.

I didn’t always know that I was not broken.

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More from @NeuroRebel

6 Apr
We’re only in the first week of April & I’ve already received a multitude of emails asking about how to respectfully speak about Autism & Autistic people.

Here are a few gentle reminders, for those of you who want to be good allies this month:
In the debate over “Autistic Person” or “person with autism”, though individual opinions can and do vary, Autistic person is preferred by most Autistic (not all) people.

It’s always good to ask & respect the individual’s choice in how to identify themselves.
Aspergers is being phased out as a diagnosis though some Autistic people have received this label in recent years (depending on where they live in the world).

Autistic is Autistic.

Separating Autistic people this way harms all of us even those who are given the Aspergers label.
Read 9 tweets
2 Apr
It’s official April. You may have heard that April is considered “Autism Month” to many people.

A few gentle reminders to non-Autistic people, as we jump into this month:
1. Please step aside and let Autistic People lead the conversation about Autism this month.

Historically, April has often been a time non-Autistics speak over Autistic voices, effectively silencing us and cutting us out of conversations about issues that impact us.
2. Please DO help to amplify the voices/words of Autistic people on Autistic issues this month (and all year long).
Read 7 tweets
13 Nov 20
We’ve got a long history of missteps when it comes to autism and gender. For example, the original model of autism is based very specifically on a very narrow definition of straight, cis, white, male autistic children.
This is why for a long time, we see autistic women, girls, and non binary people being missed - because our original model of autism very narrowly is based on little autistic boys leaving the rest of us somewhere undescribed.
Eventually ,after years and years of light up blue campaigns and people championing the idea that autism was a boy’s condition, there was an outcry to take a look at how autism manifests itself in Autistic women and girls.
Read 16 tweets
27 Oct 20
The founder of ABA said the following about Autistic kids:

“You see, you start pretty much from scratch when you work with an autistic child. You have a person in the physical sense – they have hair, a nose and a mouth – but they are not people in the psychological sense...."
"One way to look at the job of helping autistic kids is to see it as a matter of constructing a person. You have the raw materials, but you have to build the person.”
Lovaas strongly believed in intense behavioral modification interventions, that included harsh aversive techniques such as withholding touch and attention, isolation, and even giving electric shock "therapy"...
Read 6 tweets
23 Oct 20
I believe untraumatized Autistic people exist, though many are likely undiagnosed because the diagnostic manuals used to determine if a person is Autistic is a weakness model - based on Autistic people in distress.

No good can come of grouping people ONLY by their weaknesses.
So the medical gatekeepers, who Autistic people rely on in order to receive the diagnosis, tend to be very unaware of what Autistic people in good mental health even look like.
Because all they talk about is our weaknesses. They've never bothered to care about what success can look like in Autistic people.
Read 9 tweets
8 May 20
A meltdown is beyond an autistic person’s control. Their brain is overwhelmed & can’t take anymore. They might start crying or fall to the floor because they’re just mentally done - completely overwhelmed.
The fight, flight, freeze response has been triggered, almost like a panic attack kind of a feeling. It’s a horrible feeling.
You can also shut down, and just implode in on yourself instead of having an outward explosion.

A shutdown can actually be worse and more painful for an autistic person. At least with a meltdown, you have a bit of a catharsis at the end and sometimes can feel better after.
Read 8 tweets

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