I still think PDA discourse needs to evolve include divergent perspectives, although, that now seems further from happening than ever. I mean, not even acknowledging valid critique etc. rationaldemandavoidance.com/2021/04/30/a-d…
There seems to be little interest or motivation for "PDA is an ASD" supporters generally engaging with critique. I think what will happen is that similar studies to this occurring to PDA. psyarxiv.com/zh64e/
And that people will start testing PDA's validity in different conceptualising and applying pressure that way.
I am being transparent I stating PDA is not autism for various factors & I am certainly not risking my reputation stating it is.
It is telling that I am first year PhD student, if I can produce such high quality PDA scholarship, that notices the many flaws in PDA, that it really is on thin ice that is awaiting crack (so to speak).
It concerns me for many reasons. The sheer of amount vulnerable buying into it, that stand to be harmed when it falls down.
Who is going to be there to be there to pick up the pieces?
What is the lasting damage to autism community?
There is already substantial issues from Refrigerator Mother, or vaccines causing autism. Other problems with entrenched poor quality ethics and poor quality research.
The lasting damage to the neurodiversity movement for not accepting non-autistic persons with PDA?
To set out just how bad the situation is with PDA research. They miss/ ignore non-autistic persons in Newson's research, disregard her view PDA is NOT autism. Miss/ ignore non-autistic persons in their own research samples.
Some create stricter definitions of PDA as they view it as an ASD and only diagnose it in autistic persons, which contradicts how Newson removed those who showed autism features from her database.
I am slightly upset by this. For those who think PDA is significantly different for autistic persons vs non-autistic persons. I give you 150 reasons that contradicts you (as it includes non-autistic persons): adc.bmj.com/content/88/7/5…
There are other reasons to think, such as processes that develop & maintain PDA behaviours are not specific to PDA. Also need same strategies & protection from reinforcement-based approaches.
I will keep on saying this what matters the most
"criteria will be their clinical utility for the assessment of clinical course and treatment response of individuals grouped by a given set of diagnostic criteria."
A quick thread on reasons why PDA is controversial.
I would appreciate feedback on this, and it is in no particular order.
•The “pathological” descriptor is demeaning and horrible.
•PDA lacks consensus on what it is.
•There is no standardised diagnostic profile or validated tools.
•PDA is not in either main diagnostic manuals.
•PDA risks undermining validity of clinical based language, as it involves an atypical approach to nosology.
Does anyone else consider the potential impact of propagating a controversial construct, that is clinically unrequired and possibly heavily stigmatising?
Kind of expecting @milton_damian would pick up on this if I do not.
The point here it is a reasonable question, considering PDA strategies are good practice & widely practiced. Critique PDA represents features/ traits from accepted constructs also seems valid. Another point I have forgotten.
Then there is substantial dislike of "Pathological" descriptor & other "problematic" connotations around PDA, like like substantial non-compliance to societal/ cultural norms.
So I have been looking at Soppitt's PDA and how it relates to other conditions diagram. This is my version of Soppitt's diagram (2021, p299). I fully spelled out ADHD's name.
This is my version of the diagram. I might change the "Rational Demand Avoidance" to "Pathological Demand Avoidance", as to me its the same thing. Nominally using RDA as it is a better name than PDA.
I have added anxiety in between autism and trauma circles. I have added trauma/ developmental trauma to recognise some view PDA to be developmental (even though that is optional for a PDA dx/ not needed).
@Keirwales If you do have Sammi Timimi on the podcast, please could you ask him, what is their response is to the points around the validity of autism made here: tandfonline.com/doi/full/10.10…
@Keirwales How co-occurring conditions often present differently inside & outside autism, due to simultaneously interacting with each other. Surely, there is something valid there causing co-occurring conditions to present slightly differently?
So I was flicking through these slides of Christie's in 2016 dp.dk/decentrale-enh…
There are some comments towards the end which I think are insightful, not necessarily for good reasons.