Today's #MyEDSChallenge is about doctors/nurses.
Epidemics, Book I, of the Hippocratic school says to doctors: "Practice two things in your dealings with disease: either help or do not harm the patient". Every chronic illness patient has seen doctors who have violated this. 1/6
First there were the doctors who didn't even bother to see us. Next the ones who saw but didn't care enough to do anything. After that came the ones who didn't know what they were doing but did it anyway, our bodies & minds be damned. 2/6 #MyEDSChallenge #NEISVoid
Later came the doctors who thought they knew best & asked us to not research about our own bodies. We were tossed & turned through CBT & GET repeatedly until our bodies & minds broke. If we are lucky & our stars align, we may find those rare doctors, #MyEDSChallenge #NEISVoid 3/6
who either know or make the efforts to know about our condition & are ready to work with us. Sadly these doctors' hands are mostly tied by a medical system made for robots, not humans, an insurance system made for the rich & no one else. #MyEDSChallenge #NEISVoid 4/6
Being a chronic illness patient in our medical systems is like gambling in a vegas casino. The house always wins. Some doctors actively help it win. The ones who care & want to help us can't do anything. Some just don't care who wins. 5/6 #MyEDSChallenge #NEISVoid @TheEDSociety
I really hope that the next generation of doctors currently in med school will make themselves aware of chronic illness patient lives & be our allies. Otherwise our children's lives will be as f***ed up as ours. #MyEDSChallenge #Doctors #MedTwitter #NEISVoid @TheEDSociety

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More from @renudhinakaran

12 May
#NEISvoid, #ParentingwithPain chat is this Saturday, 15 May, 6 - 7 PM CET. You can find the #twitterchat guidelines: apainfulidentity.com/uncategorized/…
Q1: How do you prepare your child(ren) for the uncertainty that chronic illness causes in your life (cancelled plans, for ex)? 1/3
Q2: Have you had to take your child(ren) to your medical appointments? How did you handle it? Were they overwhelmed?
Q3: If you are in a relationship, how do you divide your parenting tasks? Is there any resentment from your partner on how this is done? 2/3 #ParentingwithPain
Q4: How involved are you in your child's day to day activities (meal prep, school run, homework assistance, etc)?
Q5: For parents of older children, has your relationship gotten better or worse as your children grew up?
#ParentinwithPain #NEISVoid #twitterchat
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