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7 Jun, 4 tweets, 3 min read
Listen to @cori_crider here from 35:30 asking why NHS Digital dropped out of a planned debate with us today on @bbc5live on the #NHSDataGrab: bbc.co.uk/programmes/m00…
We think it’s probably because NHS Digital actually *agrees* with us that patients need more time to learn about the data grab and to choose whether or not to opt-out, as the BBC reported here: bbc.co.uk/news/technolog…
That means it's only Matt Hancock who refuses to do the right thing: stop the plan, drop the opt-out deadline and launch a proper national debate. Sign our petition to tell him to see sense before we’re forced to take him to court: foxglove.org.uk/nhs-data
And click here to learn how to opt-out of the data grab yourself, via @medConfidential medconfidential.org/how-to-opt-out/

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More from @Foxglovelegal

Foxglove Profile picture
8 Jun
🚨BREAKING🚨: @Jochurchill4 has just announced the government is CAVING on the deadline for the #NHSDataGrab.

“We will take some extra time." Implementation now 1 Sept.

People, we've managed to win more time!

WATCH: parliamentlive.tv/event/index/0a…
"We will use this time to talk to patients, doctors, health charities, doctors, and others to strengthen the plan, build a trusted research environment, and ensure that data is accessed securely." - Jo Churchill
This is an important step.

We still have questions: how will patients be notified, including people who aren't online? How will the trusted research environment work? On what terms will corporations be allowed to access people's health data?

But the first battle is WON.
Read 12 tweets
Foxglove Profile picture
5 Jun
☀️Morning!☀️ There’s been a TON of news in our NHS GP data grab case – here’s the latest for people catching up.

First, we teamed up with five organisations and an MP to take this scheme to court and try to win everyone more time:

ft.com/content/a13225…
Then, the @RCGP and @TheBMA_UK called for a pause to the scheme and said it risked a repeat of the care.data fiasco.

Doctors have weighed in and said this thing needs to be stopped.

Will Hancock listen?
theregister.com/2021/06/04/bma…
There IS no public health without public trust – so we were also v concerned when the gov’t wouldn’t rule out dodgy US tech companies like Palantir being given contracts to manage this giant new pool of confidential patient data:

dailymail.co.uk/news/article-9…
Read 6 tweets
Foxglove Profile picture
4 Jun
BREAKING: We’ve built a huge team to take the GP data grab to court – but we need your help.

@JustTreatment, @TheDA_UK, @allthecitizens, @NPCUK, @openDemocracy, and @daviddavisMP are fighting for people’s right to a say in the use of their health record: crowdjustice.com/case/stop-the-…
Time is running out. The deadline to opt out is 23 June. Most people haven’t heard of the scheme. The gov’t hasn’t properly informed or involved patients.

If they don’t fix it, we’ve got to go for an injunction ASAP. We sent an urgent legal letter: ft.com/content/a13225…
Our coalition says the process for scraping 55m people’s confidential health records and putting in a central database has been rushed and unfair – and is unlawful.

Unless the scheme is stopped and changed, we will take the government to court.
Read 12 tweets
Foxglove Profile picture
3 Jun
CAMPAIGN LAUNCH: #NoPalantir in our NHS!

Today, 52 organisations formed a coalition to tell @BorisJohnson, @MattHancock & the government to #DropPalantir from our NHS.

We’re asking everyone to join us in doing the same: nopalantir.org.uk

[THREAD]
Palantir, whom you might remember from 🍉 cocktail fame, is using COVID-19 to get their hooks into our NHS. They were brought in without public consultation or open procurement, and we had to threaten a lawsuit to get information about their data deal:
Why does this matter?

Time and again Palantir’s tech has been used to harm, not heal. Founded by Trump-backing Peter Thiel, they’ve enabled some of the worst actions of the US surveillance state - from border forces to police.

A firm like that has no place in our NHS.
Read 7 tweets
Foxglove Profile picture
26 May
⏰BREAKING: HMG quietly rolled out a scheme to seize - & sell access to - the health data of every man, woman, and child in England. Patients weren’t asked.
Legal issues? We think so. So we helped @JustTreatment send a legal letter.
@madhumita29 in @FT: ft.com/content/9fee81…
In many ways, this fight is about the future of the NHS.

The NHS sits atop the most valuable trove of health data in the world. Why? For years, your GP record has been stored not in doctor's scrawled notes but using GP codes, which a computer can 'read'. (h/t @marcus_baw)
This makes NHS health data of *massive* interest to researchers. So far, so good - we all want the NHS to come out of the pandemic stronger.

But there are issues: who gets access? On what terms? Who can patients trust? And who benefits – us, the NHS, or private companies?
Read 7 tweets
Foxglove Profile picture
30 Mar
📢NEW📢: we've won the Palantir case!

At last, officials admit YOU have a right to a say in long-term deals between the NHS and US tech firms like Palantir.

It only took us a year, thousands of you speaking up, and two court cases with @openDemocracy to get there!
Here’s our write-up by @martyftz and @cori_crider.

They’ve hit pause – they won’t extend Palantir’s NHS role beyond Covid without stopping to consider our rights, and ask.

This is a major step. NHS now says they’ll consult the public.

opendemocracy.net/en/ournhs/weve…
Special mention to our friends at @TBIJ who obtained key emails at the start of this case, showing Palantir wooing NHS execs and UK officials over Davos chats and watermelon cocktails.

thebureauinvestigates.com/stories/2021-0…
Read 9 tweets

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