🚨BREAKING🚨: @Jochurchill4 has just announced the government is CAVING on the deadline for the #NHSDataGrab.
“We will take some extra time." Implementation now 1 Sept.
People, we've managed to win more time!
WATCH: parliamentlive.tv/event/index/0a…
“We will take some extra time." Implementation now 1 Sept.
People, we've managed to win more time!
WATCH: parliamentlive.tv/event/index/0a…
"We will use this time to talk to patients, doctors, health charities, doctors, and others to strengthen the plan, build a trusted research environment, and ensure that data is accessed securely." - Jo Churchill
This is an important step.
We still have questions: how will patients be notified, including people who aren't online? How will the trusted research environment work? On what terms will corporations be allowed to access people's health data?
But the first battle is WON.
We still have questions: how will patients be notified, including people who aren't online? How will the trusted research environment work? On what terms will corporations be allowed to access people's health data?
But the first battle is WON.
We're so grateful to our partners - @justtreatment, @TheDA_UK, @DavidDavisMP, @allthecitizens, @openDemocracy - who fought to win more time. And for @medconfidential who have been posting hundreds of opt-out forms. And for all of YOU, who signed petitions and supported this case.
We will be following up urgently about our questions with government through their lawyers and will keep everyone updated.
And if the scope of the concessions don't actually protect people's data, when you read the fine print, rest assured - we will take this issue to court to fight for our NHS and for patient trust.
We hope the gov't will use this time to rebuild trust.
They may be hoping delay means people lose interest - we need to keep up pressure, and stay laser-focused on protecting privacy and preventing privatisation of this major asset without people's say so. Our data, our choice.
They may be hoping delay means people lose interest - we need to keep up pressure, and stay laser-focused on protecting privacy and preventing privatisation of this major asset without people's say so. Our data, our choice.
Make no mistake - it was people power that forced them to this position. We couldn't have done it without you. To follow this story as it develops, please sign up for updates: foxglove.org.uk/get-involved
Oh, and one more thing: this is what the threat of judicial review can achieve. It protects *everyone*.
The government wants to limit your access to the courts. We can't let that happen.
The government wants to limit your access to the courts. We can't let that happen.
The threat of JR is only possible with our amazing legal teams. So MAJOR shout-out to Robert Palmer QC and Julianne Morrison of @moncktonlaw, who represent the coalition in this case.
And given all these questions remain -
if you aren't yet satisfied about what's happening to your health data, to protect your position until you ARE, go here:
medconfidential.org/how-to-opt-out/
if you aren't yet satisfied about what's happening to your health data, to protect your position until you ARE, go here:
medconfidential.org/how-to-opt-out/
Oops - should've mentioned our amazing partners the @NPCUK! (Sorry, team). They stood up for thousands of older people who aren't online and who'd had no chance to hear about this.
Government can leaflet the nation. It can text everyone with a phone. Will they? Stay tuned. 👀
Government can leaflet the nation. It can text everyone with a phone. Will they? Stay tuned. 👀
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