After an autistic person is officially diagnosed, their family members and friends may start noticing their autistic traits more.
This can lead to accusations that the autistic person is exaggerating for attention, being inauthentic, etc.
But that’s rarely (if ever) true.
The reason why others may notice the person “acting more autistic” is twofold:
1. Now that there’s a word to describe the person’s traits, they are ascribed to autism instead of just being seen as “weird,” and
2. The autistic person feels less pressure to mask who they are.
This dynamic is often especially present in people who were diagnosed later in life, or who have the ability to mask their traits.
I was diagnosed pretty early (between 8 and 9 years old), but I can mask my traits when I’m feeling pressured (though not always convincingly).
But what happens when the pressure is gone and I can relax? What happens when I feel safe?
That’s when I seem “the most autistic.”
And usually that’s a state of being I only reach when I’m alone in my room, or with friends who deeply understand and accept me.
I find it very ironic that my autistic traits are the things most often called into question, given that they are my most authentic expressions.
It’s masking, and acting neurotypical, that is the performance.
But people don’t see it that way because it’s expected.
It’s expected that I will act neurotypical and not display any autistic traits, because that’s expected of everyone.
So when I deviate from that by showing who I really am...
People think I must be doing something unnatural, just because it would be unnatural if they did it.
But it’s not unnatural, because I am autistic. It doesn’t matter that I can fake being neurotypical for short periods of time.
I’m autistic the whole time I’m masking, and I’m autistic when I stop masking.
It’s just that you see my autism more when I stop putting up a facade.
It is incredibly hurtful when I let my guard down around someone and release a noise or a stim that I would usually repress, only to be met with criticism and accusations that I’m exaggerating.
It forces me to mask around that person again, because I feel unsafe being myself.
Can you imagine how you would feel if you did something completely innocuous and genuine that you didn’t even think people would react to (like clearing your throat or bouncing your leg), and then they accused you of doing that thing for attention?
It would be confusing, right?
There is nothing autistic people gain from displaying our traits, other than the relief of not having to hide who we are.
When we stop hiding we often face ridicule, questioning, and ostracism. There are no upsides to that.
So please, stop accusing us of exaggerating.
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If you are someone who, like me, finds it difficult or impossible to speak when you’re overstimulated:
You don’t have to keep all of your thoughts in your head just because it’s “easier.”
You’re allowed to use AAC, sign language, text-to-speech apps, etc. In fact, you should.
Yesterday I went to the mall with Abby and two of our friends. I had forgotten how busy malls can be.
One of the shops we went to had colored strobe lights inside that I had to move & look away from. Others had loud music playing. There were people and bright lights everywhere.
These stimuli weren’t a very big deal to the people I was with, but they impacted me significantly.
I could feel myself withdrawing, and losing speech.
Without me having to ask, Abby knew I needed earplugs and gave them to me. I was very grateful.
I’m doing a linguistic ethnography for my final paper in one of my classes this semester.
I’m going to be comparing autistic people’s speech when they’re talking to other autistic people, versus when they are talking to non-autistic people.
In order to accomplish this, I need autistic people who are 18 or older to email me recordings.
You should to collect two different recordings:
One of a conversation with another autistic person(s), and one with a non-autistic person(s).
You can stop each recording after 5 minutes. The recordings don’t need to be about any specific topic, and you don’t need to censor yourself (cursing is fine, etc.)
These should be natural conversations where you talk to the other person/people the way you normally would.
In honor of AAPI Heritage Month, here are some Asian autistic people you should know about!
Lydia X.Z. Brown is a Chinese-American adoptee. They are heavily involved in disability justice work, and their writing on disability is foundational to the movement.
Yuh-Line Niou is a Taiwanese-American politician who serves in the New York State Assembly.
She represents the 65th district, which includes Chinatown. She originally ran as a member of the Working Families Party, but she is currently in office as a Democrat.
Kodi Lee is a Korean-American musician and singer with perfect pitch, who recently won America’s Got Talent.
He is also blind (due to optic nerve hypoplasia) and has Addison’s Disease, which affects hormone production in the adrenal glands.