Thread by @jenbrea

This a really great overview of the metabolic effects of hypoxia, which could explain many of the symptoms of #MECFS. Hypoxia can result from many different neurological and vascular conditions, including essentially all of the neurological & vascular syndromes common in #EDS.

https://twitter.com/DaveLeeERMD/status/1410568537836490754

For example, any condition that causes ”neural strain“ (such as tethered cord syndrome and CCI) can cause hypoxia due reduced perfusion (blood flow) to the affect area. When it’s your entire spinal cord + brainstem that’s…a pretty big deal! #MEspine

https://twitter.com/jenbrea/status/1201429588556959744?s=20

A range of vascular conditions can also cause reduced perfusion. e.g., Median Arcuate Ligament Syndrome (MALS) and Nutcracker Syndrome, also associated with EDS, can cause hypoperfusion of the gut/internal organs. (These can also cause #POTS and exercise intolerance.)

There are many people in the #MECFS, #POTS, and #EDS community who are undiagnosed for these conditions. We know this because we see long-time members of these communities get diagnosed every day. There is no reason for these diagnoses to be missed.

It is my hope that our organizations can begin to do a much better job to raise awareness through medical education but most crucially, patient education. At present, they are being largely ignored and I don’t quite understand why.