Tomorrow is the PARC PDA event: Understanding PDA. Speaker order is:
Keith Howie.
Jonathan Green.
@Richard_Autism (no idea who that is - joke).
Grace Trundle.
Then Round table.

Most/ All the talks should be recorded.
My slides are already added to LSBU's repository & I have a video ready to go on @autimedes based on my talk. I will add the slides to my researchgate on Wednesday (when LSBU slides embargo is lifted).
Dani Ropar should be hosting and doing the intro.
Title of my presentation tomorrow is:
"Demand Avoidance Phenomena (“Pathological”/ “Extreme” Demand Avoidance): is it a Disorder at a lower diagnostic threshold?"

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More from @Richard_Autism

21 Jul
Reflecting upon Jonathan Green's talk yesterday about Demand-Avoidance is relational to each other. My thinking has been to separate demands & avoidance to make it reflect transactional understandings of PDA; which we all should be working with.
I am making a subtle but important change to "Demand Avoidance Phenomena", to "Demand-Avoidance Phenomena". I think I will add the hyphen whenever using a "full name" for PDA.
One thing that I recalled is how in Newson's first publication on PDA in 1983, she calls "Pathological demand-avoidance syndrome". There are signs of a transactional perspective being taken, like how roleplay/ fantasy seems to be a coping mechanism.
Read 8 tweets
20 Jul
This is a fundamental reason why I am so annoyed that key "PDA is an ASD" have not tried to investigate if divergent outlooks on PDA are valid. They basically assumed that their own views on PDA are correct & everyone else's is mistaken (& also on autism).
It is so arrogant to only conduct research & advocate for PDA as an ASD, despite the literature being contested, with both evidence & other experts stating PDA is seen outside of autism. Also PDA maybe other things, like an Attachment Disorder.
It is NOT scientific to only conduct research to support one outlook on the topic, such as PDA is an ASD (this has been happening). Researchers should not be favouring any particular outlook over another.
Read 26 tweets
11 Jul
@SamFellowesHPS I think from those advocating PDA as an ASD, are referring to the entire autistic population, which confusingly includes any non-autistic persons with PDA. So I think they view it a bit like this.
@SamFellowesHPS That PDA is dimensional, perpendicular to autism severity/ functioning (yes I know this is a false dichotomy & flawed conceptualisation of autism).
@SamFellowesHPS Sorry, you should want this image.
Read 24 tweets
11 Jul
@SamFellowesHPS Oh Sam, sometimes your comments make me gush in admiration. Nick Chown often elicits a similar response from me, & I am happy he has agreed to be a panel examiner on my first PhD deadline. I will do my best to respond to your comments.
@SamFellowesHPS Science tends to go through paradigm shifts, especially when something is severely critiqued at odds with predictions. Physics to some extent is evolving again due to recent research results.
@SamFellowesHPS One could argue our understanding of Disorders is due a major paradigm change. I think there is a credible case to stop using them.
Read 5 tweets
10 Jul
Dimensional approach to PDA, & yet it is meant to be a rare ASD subtype. How exactly is taking a narrow definition of PDA (hence its rare ASD subtype), fits in with broader spectrum nature of disorders & how narrow categories do not reflect human nature?
Point is, how is adopting a narrow definition & approaching PDA as a rare ASD subtype; inline with current understandings of human nature, that disorders & most human characteristics are spectrum in nature & overlap each other? How exactly is it dimensional?
Or this another one these things, where a PDA is an ASD supporters are essentially trying to blag it & hope no-one actually checks it?
Read 4 tweets
8 Jul
@DrMBotha @DjzemaLouiz @AnnMemmott @milton_damian @DrAmyPearson
Started to read an email to see if I have spoons to respond to it today.

Saw this "Our society doesn't fear autism". I do not know where to start with how problematic & wrong this statement is.
No, I do not have the spoons to respond to this problematic statement today. It is an issue in wider context the statement was made.
Subtext of this is that society often does fear autism. It is an essential feature of commodifying autism, & creating a demand for interventions/ treatments to "cure"/ wipeout autism. @anneemcguire powerfully argues this in her "War On Autism" book.
Read 5 tweets

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