This is a fundamental reason why I am so annoyed that key "PDA is an ASD" have not tried to investigate if divergent outlooks on PDA are valid. They basically assumed that their own views on PDA are correct & everyone else's is mistaken (& also on autism).
It is so arrogant to only conduct research & advocate for PDA as an ASD, despite the literature being contested, with both evidence & other experts stating PDA is seen outside of autism. Also PDA maybe other things, like an Attachment Disorder.
It is NOT scientific to only conduct research to support one outlook on the topic, such as PDA is an ASD (this has been happening). Researchers should not be favouring any particular outlook over another.
This is the crux of, divergent outlooks for PDA should have tried & tested before assuming PDA is an ASD and lobbying for PDA's acceptance as an ASD. Such engagement with divergent perspectives, just has not happened.
Just an idea of how arrogant it is only conduct research for PDA as an ASD, & to lobby for it. For are only some of the things that would have to be mistaken for "PDA is an ASD" advocates to be correct.
Elizabeth Newson stating PDA is not autism, and it is a mistake to view PDA as an ASD.
Anxiety is not part of autism, but a co-occurring issue.
That all attempts to divide autism through clinical and research means have failed, i.e., autism cannot be divided; that autism is an indivisible construct, and nature of support between subtypes is the same.
That is PDA is its own distinct clustering of features (which is supported by multiple studies), & Newson's own comments that PDA needs to be substantially different to autistic disorder & Asperger's Syndrome.
All the research and expert that says PDA is seen in non-autistic persons.
Christopher Gillberg's prediction PDA is a common Disorder, possibly a new type of Disorder.
Basically our entire understanding of what autism is, that it is a way of being, a pervasive way of thinking. As it is OK for anyone who has RRBIs & social communication issues behavioural patterns to be viewed as autism.
So PDA does not even need to be developmental in nature, for persons with PDA to be viewed as autistic (so what is the point in autism needing to be early infancy?)
The fact that Disorders are heterogeneous, spectrum conditions with poor boundaries, and that they can have features that overlap other Disorders. As PDA has to have a hard boarder for it to be an ASD (Eaton and Weaver 2020).
When a feature actually becomes "pathological" in nature. A feature becomes pathological when it impacts only area of functioning, i.e., it does not have to be seen in multiple contexts, or be pervasive.
Also those who think PDA is related to constructs that are related to trauma, like Attachment Disorders and Personality Disorders.
All the persons who think PDA can be seen in "milder" presentations, both inside and outside of autism.
Also that most/ all people have a "need for control" and benefit being in charge of their lives, would also need to be mistaken.
"a need for control which is often driven by anxiety or an automatic ‘threat response’ in the face of demands"
Oh that basic logic is also mistaken. That PDA can be something it is more than, as PDA has features that found in accepted constructs.
Oh, also accepted definitions of Pervasive Developmental Disorders, within the DSM-4, would also need to be mistaken, as Newson's PDDs definition & diagnostic grouping does not conform to the DSM-4 PDD diagnostic grouping.
As I set out here
This is a strong list of everything that needs to be mistaken for "PDA to be an ASD", just off the top of my head. That @KeatesResearch partly explains why I have strong case for my position on PDA.
Why I find it ludicrous that we are meant to just blindly accept the claims of "PDA is an ASD" advocates, that PDA is an ASD; because so much opinion & established understandings need to be mistaken for them to be correct on the topic.
That moment when you discover you have been stressing over a deadline, that does not even matter! Avoidable, avoidance of demands!!!!!!!!! Argh!
My response:
PDA as a term, seems not to be mentioned. There are also other issues that it is unethical to favour viewing PDA as an ASD over its other proposed outlooks, when they await direct empirical testing...
Reflecting upon Jonathan Green's talk yesterday about Demand-Avoidance is relational to each other. My thinking has been to separate demands & avoidance to make it reflect transactional understandings of PDA; which we all should be working with.
I am making a subtle but important change to "Demand Avoidance Phenomena", to "Demand-Avoidance Phenomena". I think I will add the hyphen whenever using a "full name" for PDA.
One thing that I recalled is how in Newson's first publication on PDA in 1983, she calls "Pathological demand-avoidance syndrome". There are signs of a transactional perspective being taken, like how roleplay/ fantasy seems to be a coping mechanism.
Tomorrow is the PARC PDA event: Understanding PDA. Speaker order is: @milton_damian
Keith Howie.
Jonathan Green.
Break. @FidgetyF_cker. @Richard_Autism (no idea who that is - joke).
Grace Trundle.
Then Round table.
Most/ All the talks should be recorded.
My slides are already added to LSBU's repository & I have a video ready to go on @autimedes based on my talk. I will add the slides to my researchgate on Wednesday (when LSBU slides embargo is lifted).
@SamFellowesHPS I think from those advocating PDA as an ASD, are referring to the entire autistic population, which confusingly includes any non-autistic persons with PDA. So I think they view it a bit like this.
@SamFellowesHPS That PDA is dimensional, perpendicular to autism severity/ functioning (yes I know this is a false dichotomy & flawed conceptualisation of autism).
@SamFellowesHPS Oh Sam, sometimes your comments make me gush in admiration. Nick Chown often elicits a similar response from me, & I am happy he has agreed to be a panel examiner on my first PhD deadline. I will do my best to respond to your comments.
@SamFellowesHPS Science tends to go through paradigm shifts, especially when something is severely critiqued at odds with predictions. Physics to some extent is evolving again due to recent research results.
@SamFellowesHPS One could argue our understanding of Disorders is due a major paradigm change. I think there is a credible case to stop using them.
Dimensional approach to PDA, & yet it is meant to be a rare ASD subtype. How exactly is taking a narrow definition of PDA (hence its rare ASD subtype), fits in with broader spectrum nature of disorders & how narrow categories do not reflect human nature?
Point is, how is adopting a narrow definition & approaching PDA as a rare ASD subtype; inline with current understandings of human nature, that disorders & most human characteristics are spectrum in nature & overlap each other? How exactly is it dimensional?
Or this another one these things, where a PDA is an ASD supporters are essentially trying to blag it & hope no-one actually checks it?