1/18 I know you love a thread, so here’s one about today’s new report #YouOnlyHadToAsk from the Taskforce on Multiple Conditions, led by @RichmondGroup14 and @ImpUrbanHealth. Hear the voices of people living where multiple conditions meet health inequity. richmondgroupofcharities.org.uk/taskforce-mult… Image of report cover. ‘You only had to ask: what people w
2/18 My foreword highlights how rarely voices like these are *really* listened to. Yesterday Lord Stevens, in his farewell to @NHSEngland staff, said that the NHS is at its best when it listens hardest. If that’s the case, it needs to be all ears now. We all do. #YouOnlyHadToAsk Foreword. There are crucial decisions ahead for health and s
3/18 This bit of the foreword is about the power of the voices that don’t shout the loudest. That can be just as true of frontline professionals as it is of the people who told us about deeply personal, sometimes traumatic experiences. Thanks to all of them. #YouOnlyHadToAsk Very little is as deeply powerful as a clear, quiet human vo
4/18 Clear needs shine through. Understanding communities and individuals that services are supposed to be there for. Bridging the trust gap. Role for ICSs in developing partnerships to tackle the social determinants of health. Supporting people to take control. #YouOnlyHadToAsk In particular, policymakers and professionals need to consid
5/18 Our research agency @RR_research had a tough job on their hands to undertake detailed ethnographic work, virtually, in deprived communities during a pandemic. Thanks to them for their insight and stamina. We’re also publishing the initial evidence review. #YouOnlyHadToAsk Method and sample. The research utilised an ethnographic app
6/18 The people with multiple conditions and professionals we spoke to were in 4 localities across England. This report will interest @HWLambeth @HwMiddlesbrough @HWBrum @HealthwatchBfd #YouOnlyHadToAsk Living with multiple long-term conditions In this chapter weManningham & Toller wards, Bradford.North Ormesby, Middlesbrough.Sparkbrook & Balsall Heath East, Birmingham.
7/18 The people who tell their stories in #YouOnlyHadToAsk bring health theory to vivid life. Kumar (names are all pseudonyms) makes the point that medicine is only part of the picture. Portrait of Kumar, 40, Indian, Stockwell. A loving dad, befo
8/18 Vera highlights how a lifetime of working long hours can make it hard to switch into “healthy” habits later in life. #YouOnlyHadToAsk Portrait of Vera, 74, Portuguese, Stockwell. A retired clean
9/18 Ibrahim shines a spotlight on the #WeAreUndefeatable message that moving in ways that work for you is really important - and that people need practical, empathetic support with it. @undefeatable #YouOnlyHadToAsk Portrait of Ibrahim, 70, Pakistani, Bradford. A practical maHe takes painkillers regularly but also increasingly aims to
10/18 Even with her daughter’s help, Sabba struggles to find out exactly which conditions she’s dealing with. She also saw her women-only physio sessions stopped and is unable to join the replacement mixed-sex sessions. #YouOnlyHadToAsk Portrait of Sabba, 63, Pakistani, Bradford. Loves her daily
11/18 Roger’s story shows how huge a part housing can play. It also rams home the human impact of inflexible rules. Assisted living or staying with your pet cats in an old, cold home, when you’re bereaved: the ‘choice’ is yours. #YouOnlyHadToAsk Portrait of Roger, 70, White British, Middlesbrough. Loves f
12/18 Like several participants, Nathan has experienced abuse. He’s able to travel long distances to see a consultant he believes finally understands him. If he couldn’t afford it, he’d be stuck with the frustration of feeling no-one sees him as a whole person. #YouOnlyHadToAsk Portrait of Nathan, 33, White British, Middlesbrough. Intere
13/18 Bekele is very conscious of how ethnicity, language and geographical location can combine to reduce access to and quality of care. He’s been there, seen it and lived it. #YouOnlyHadToAsk Portrait of Bekele, 26, British Somali, Birmingham. An ambit
14/18 I was lucky to sit in on a focus group of people living with multiple conditions that @RR_research ran during the design stage. Shaima highlights an issue that came up then: caring for others without the right support can mean your own health suffers. #YouOnlyHadToAsk Portrait of Shaima, 32, British Pakistani, Birmingham. A kee
15/18 There’s a sense in the report of professionals sometimes struggling to understand why people won’t or can’t take what seems like obviously good advice. It’s clear that the answer lies in the web of issues that constitute people’s real lives. #YouOnlyHadToAsk Managing health inequity and multiple long-term conditions.
16/18 The social determinants of health, even if that’s not the term they use, loom large in people’s stories. This is bigger than the NHS but the NHS has a crucial chance now to work with councils and employers and leverage the role of anchor institutions. #YouOnlyHadToAsk What factors in people’s lives make it more difficult to m
17/18 You shouldn’t need sharp elbows to get what you need from health and care services but these voices say that you do. The system needs to change. But so does the way we all too often think about it. We’re still in the foothills of shared decision-making. #YouOnlyHadToAsk What elements of the health system make it more difficult toMany of the challenges people face in maintaining their heal
18/18 As the Taskforce ends, we at @RichmondGroup14 have made this agenda central to our future plans. We’ve responded to the report and made recommendations to a wide range of organisations. We in the VCS are part of this shared challenge too. richmondgroupofcharities.org.uk/sites/default/… Tackling these issues will be an acid test of how serious th
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More from @NTtweeting

16 Jun
1/9. The @NHSEngland design framework for ICSs has been out for under an hour, so this thread is what leaps out at me and I may gulp when I’ve read it in detail. But thanks to @DavidsonRoger for listening to what @RichmondGroup14 and others have fed in. england.nhs.uk/publication/in… Cover of design framework.
2/9. I particularly like numbers 5 and 6 in the list of partnership principles for ICS Partnerships. Text from p10 of document linked in first tweet.
3/9. Section on NHS ICS Bodies’ responsibilities to arrange care provision provides a useful framing of the relationship with local government and voluntary sector in relation to people’s needs. Text from p13 of document linked in first tweet.
Read 9 tweets
11 Feb
I know you’ve all been waiting for my thread on today’s @DHSCgovuk White Paper gov.uk/government/pub…
and the accompanying recommendations from @NHSEngland england.nhs.uk/wp-content/upl… Wait no longer 😀 1/9 Cover of DHSC White PaperCover of NHS England recommendations document
2/9 I’m not trying to cover everything in the documents but here are some thoughts on things others might not focus on so much. Good to see consistent messages about the strategic roles of the voluntary sector and local government. Detailed work needed to bring that alive. It’s about population health: using the collective resourcIn this paper we refer to health and care partners for breviA key responsibility for these systems will be to support pl
3/9 Very pleased to see issues core to @RichmondGroup14 priorities at the centre of the challenges the White Paper aims to address: namely the growing needs of people with long-term and multiple conditions, the role of mental health in that mix and the impact of Covid on that. Not only is our population growing in size, people are also
Read 10 tweets
30 Jul 20
Unusually, I didn’t live tweet from @MattHancock’s Future of Healthcare speech this morning. I wanted to think about the text afterwards, and the novelty of being IN A ROOM WITH PEOPLE made me want to pay real attention. A thread of my reactions. 1/11.
gov.uk/government/spe… Matt Hancock speaking at podium in front of background slide
2/11. This is all true but we need to acknowledge how little the system really knows about how people have experienced and are experiencing it. Nor can we make a final judgement on performance until we see the long-term impact of the needs that have been hidden and unmet. We’ve discovered things about our system that we could not
3/11. Again, true overall. But I worry that there’s inevitably been a 4th cultural shift, away from the advances we’d just started to make and the LTP planned to take further around patient and public voice and involvement, and the true personalisation of care. Need to refocus. Coronavirus has catalysed deep structural shifts in healthca
Read 12 tweets
11 Apr 20
Thread. 1/7

My walk in the park and woods today generated 7 haiku.

1.
Butterfly shadow
On my daily exercise
Announces it’s Spring. Trees by a winding river.
2/7

2.
A green parakeet.
An invisible virus.
Our world is so small. Plants growing in a stream in front of a willow tree.
3/7

3.
First came the blossom.
Then small, green buds extended
And now there are leaves. New leaves on a tree branch, in front of trees covered in white and pink blossom.
Read 8 tweets
15 Oct 19
I’ve been through today’s @CareQualityComm #StateOfCare report so you don’t miss the bits that matter but don’t make the headlines. Here’s a link to the report.
cqc.org.uk/publications/m…
Buckle up for my annual thread. 1/11 Front cover of CQC report on the state of health care and adult social care in England 2018/19.
2/11 #StateOfCare identifies the challenges faced by people with multiple needs and describes people and their families needing to chase services to get the right care. @RichmondGroup14 work on multiple conditions has also found people feeling exhausted and overwhelmed. Page 15 of CQC report.Page 18 of CQC report.
3/11 #StateOfCare shares a story from @RichmondGroup14 member @age_uk that shows how people can sometimes be viewed by professionals with a narrow focus, especially outside obvious moments of transition. Page 19 of CQC report.
Read 12 tweets
3 Jun 19
Good to see @didoharding @julianhartley1 work emerging today with the publication of @NHSEngland @NHSImprovement @NHS_HealthEdEng Interim People Plan. Thread shows where things that matter to people are covered in plan. #OurNHSPeople @HealthwatchE 1/7
link.medium.com/E5wR40HvdX
Here’s a link to the plan: longtermplan.nhs.uk/wp-content/upl…
The introduction (pages 2 and 3) puts what people consistently tell @HealthwatchE about the need for joined-up staff in joined-up services at the heart of the plan. #OurNHSPeople 2/7 Pages 2-3 of Interim People Plan.
Important commitment that @NHS_HealthEdEng will ask people what we need from future doctors, to inform planning by royal colleges and @gmcuk. Of course, this ought to apply to all professional education across health and care, but it’s a good start. #OurNHSPeople 3/7 Page 15 of Interim People Plan.
Read 8 tweets

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