Too many doctors resist diagnosing people with chronic illness bc they think it's not worth it, or that people get "worse" and "depressed" after the diagnosis. Hmmm, maybe people appear visibly worse bc diagnosis validates them and they stop pretending everything is fine???
It's absolutely bizarre to me that so many doctors seem to think the diagnosis is what causes the discomfort, rather than the symptoms. It really feels like they're revealing the extent to which they believe what their patients are telling them.
Even if something can't be "treated", a diagnosis means recognition. You have terms to google, and a community with strategies to lean on. You can tell your workplace. Your family believe you. You believe YOURSELF that what you're going through is real and deserves care.
And yeah, maybe you will seem "sicker". You might be less likely to hide your symptoms, and more likely to tell people "hey, I have this condition, so I can't do that/have to rest sorry!". That's a good thing!
In an ideal world, we should be able to do that without a diagnosis, and I advocate for making your life as kind to your body and mind as you can regardless. But a diagnosis for chronic illness often does help, and I'm sick of doctors gatekeeping with such weak reasoning.
P.S. For those who think this isn't true, I've literally been told by a doctor that he does not want to look into fibromylgia re my pain shit bc he thinks the people diagnosed with it "end up in despair". Like wtf.....maybe that's because it's fucking hard?

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More from @AdhdAngsty

2 Aug
Don't mind me, just sitting here thinking about how angry flatmates and family used to get at me for leaving kitchen cabinet doors open, when it turns out it's related to my ADHD. They always made me feel super inconsiderate even though I tried SO hard to remember.
I'm not saying that ADHD is a get out of jail free card for annoying your flatmates, but it's also not cool to moralise an ADHDer's behavior based on assumptions e.g. interpreting someone leaving kitchen cabinet doors open as them not respecting or caring about the shared space.
I'd love for people with ADHDers in their lives to think critically about what's important and why. If ur consistently hitting your head on cabinet doors or some equivalent, I get the frustration. But if it's bc of what it represents, are u sure it means what you think it means?
Read 6 tweets
22 Jul
I pretty much try to use this approach whenever I can and it helps SO much.
ps where can I find a therapist like this rather than ones who think they're gonna mental fitness me into having reliable routines lmao
Read 4 tweets
7 Jul
I am tired of seeing people (esp rich white cis men) pitch ADHD as a gift/superpower, when there are so many other variables at play that enable them to embrace and be celebrated for the strengths of ADHD. It's so disingenuous.
I'm still critical of framing ADHD as a curse to be cured, but claiming it's a superpower is not an alternative I support. It implies people's experiences of ADHD are totally within their control, and that they're individually to blame if they're not thriving with their "gift".
In reality, the extent to which your external context accommodates and accepts you will deeply impact your experience of ADHD. Money = better access to accommodations. And whiteness= greater acceptance for neurodivergent behavior.
Read 7 tweets
21 Jun
I could literally proofread something 10 times, and I'd still make a mistake somewhere. I know this bc I often DO proofread things 10 times, to no avail. It's crushing when people interpret this as carelessness, because I am SO careful. It doesn't make a difference.
I often think, "do the people who see my work as messy or rushed, ever notice how painstakingly slowly and carefully I do everything?". I might be the only person in the world who knows how careful and intentional I actually try to be each day.
Usually at work I'm doing things that have a built-in peer review and proof reading process. ATM I'm doing stuff that doesn't have that, and working harder than ever only to have everything be riddled with more mistakes. It's heartbreaking.
Read 5 tweets
21 Jun
From now on I'm going to be proactively blocking people who follow me and then get aggressive with the people I retweet. These are real people, and often people I really respect and/or have friendships with. It feels really gross to know I'm risking them being harassed.
This seems to be a really fucking problem in the ND community on here recently, and I'm over it. Being neurodivergent doesn't mean that you get to define and break boudaries, or that you're entitled to treat people like shit. Of course there should be consequences for that.
I want to be able to retweet stuff from NZ twitter, as well as other smaller ND accounts without people jumping onto it and getting belligerent. This sucks, because retweeting is one of the ways I show support, but I don't know if it's safe for me to do so now.
Read 5 tweets
18 Jun
Perhaps my least favourite quality in a person is when they relentlessly pursue a positive outlook on everything. I’m relatively reflective I think, and I like learning and growing, but not every experience is good or useful. It’s okay to call a spade a spade.
Idk, I guess I just don’t see critical as being the same thing as negative, and it annoys me when people hear me thinking through something in a critical way, and assume that I’m being pessimistic, or that I haven’t seen the “good” in it.
It just feels patronising tbh. I’m self-aware enough to determine whether something is harmful or helpful for me, and deserve to act accordingly.
Read 4 tweets

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